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A Bit of a shock!


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Hi Guys

I have turned to you to help me through the next few days. I am about 4mths post SAH but yesterday I had a seizure and got taken to hospital. They have prescribed anti-epilepsy drugs to take. This is a bit of a shock to me. I know I was lucky to come through the SAH but now I feel a bit thrown back

How have others coped with this and what advice or even words of comfort can you share with me. I do feel a bit scared and that my recovery has been put back

Kind Regards

Karen

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Hi Karen,

How are you feeling now?

It must have upset you having to go back into hospital, but it seem's as if they have got to the root of the problem, with starting you on some tablets. I am sure things will now improve and you will continue on your journey of recovery.

I don't think I have spoken to you before. I know you will find support, help and friendship here with kind folks who understand where you are coming from.

Just take things easy,at your pace,and don't ever feel alone ok.

Take care

Lots of Love and Smiles.

Sonia xxxx

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Hi Karoz/Karen

I have Post Stroke Epilpsey.

Mine is now undercontrol,with tablets, it did take a little sorting, as there are many different forms of medication on the market.

It might take a little time to find one that is suitable to you. As like Stroke, Epilpsey is also different to many people.

It may be, that you will never get another seizure, but no one can say that. Don't panic if you do have one, try and keep calm.

You can help your Gp/Specialist, by writting down any patterns of your seizures, also if any certain foods seem to trigger them of.

I've information about Epilpsey, I'm more than willing to pass on to you.

Don't let the Epilpsey run your life, it can be controlled.

There are some very usfull web-sites that also have links to area support groups.

If you need a chat, pm me.

Your not alone, in this. I asked for help, I got it, now I try to help others.

Edited by KeithH
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Karen, It must have been so scary at the time and so discouraging now! 4 months past the main event! I'm so sorry and sending hearts and hugs to you. Did you have any warning? Did the docs say this might happen? Curious, I've noticed epileptic seizures in some posts but I don't know much about them. Are you feeling exhausted? I imagine it takes all your energy during a seizure. Sorry if I have nosy questions. :wink:

Sandi K.

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Sorry to hear this Karen , I'm sure any one of us would feel the same as you do about this happening. I know a few on this site have experienced seizures following a sah/stroke and whilst it does sometimes happen, it is probably little comfort when you are the one who has just gone through it and is feeling concerned and worried about it all. It might just be an isolated occurence and having been given tablets should help control the situation for you.

My brother in law suffered his first and only seizure last April. He has not had a sah, but did find it quite scary, as did my son (aged 9 at the time) who was the only one with him at the time. I'm not sure how much info the hospital will have given you - sometimes knowing a bit more about the subject can help you come to terms with it, but this doesn't have to be immediately if you are tired or upset at the moment. I wish you all the best during this time and don't forget we are all here to support and help where possible.

Best wishes and a big hug,

Sarah

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Hi Karen

So sorry for you. Try not to worry to much there is a lot of support on here. I havent had anything seizure like, but at 4 months i started having headaches again which took me back in hospital. Nothing was found only my MRI which is showing signs of MS. I know what you mean about surviving getting on and then a set back. Im like that now waiting to find what my results are. Just try and be as positive as you can.

Sending love your way.

Traci S xx

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Hi Karen

sorry to hear that, I had a few seizures when I was in hospital, after the SAH, I was on anti seizure meds for over a year but didnt have another one, its very scarry, Keith's right tho dont let it run your life I did for a bit then gave myself a good old talking too:oops:

take care

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Karen,

Sorry to hear this. I'm sure it's been a scary time for you and certainly unexpected event in the recovery process. Hopefully the meds will help and you won't have another seizure. I'm sure the dr.s will do everything they can to help you with this. Set backs with our health can be frustrating and upsetting. Please know you are in my thoughts and I'm sending you big hugs and wishing you well! Hang in there sweetie - we're all here for you.

Carolyn

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Hi

I have been to my own GP and got a bit of positive encouragement. Always helpful! Luckily I now have info re where my annis were. One on the left posterior communicating artery, the small anni that caused the bleed and the larger anni that they have wrapped on my left middle cerebral artery ( too awkward to clip apparantly)

The doc assured me that many people who have had brain surgery go on to develop seizures and these may be just temporary or not we will just have to wait and see. Its not the seizures that Im worried about its the possible side effects fro the medication. Im keeping my fingers crossed!!!!

Thanks for all the support and help I have received so far

Karen x

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Karen, It must have been so scary at the time and so discouraging now! 4 months past the main event! I'm so sorry and sending hearts and hugs to you. Did you have any warning? Did the docs say this might happen? Curious, I've noticed epileptic seizures in some posts but I don't know much about them. Are you feeling exhausted? I imagine it takes all your energy during a seizure. Sorry if I have nosy questions. :wink:

Sandi K.

Hi Sandi

I didnt have any warning in fact I was just cooking dinner. Banged my head and have ended up with a black eye!! Dont feel exhausted and determined that it will not set me back trying to take it in my stride and continuing to move forward. I dont mind the nosy questions, I have been very nosy the last few months it really helps!!! Karen x

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Hey Karen, so glad the Gp was able to give you info to encourrage you, as I said I was on anti seizure meds for a year-year & a half and no side effects (that I was/am aware off), & we were told exactly the same as you....

take care

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Hi Karen

Sorry to hear about this set-back in your recovery.

I have not had any seizures since my SAH but I can only imagine it is a scary time for you, after months of trying to recover from the main event and operations, and now this.

I hope you manage to find the right medication soon enough and your recovery continues at a steady pace despite this set-back.

Take care

Kel x

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Hi Karen! I thought about you a lot yesterday. I kept thinking how scary it must be and so unexpected. Your determination to move forward despite the seizure is admirable but please don't go too fast. Maybe this is your brain saying 'whoa baby, slow down'.

Take care Sweetie

Sandi K xoxoxox

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Hi Karen

You're not alone, you can now join the post SAH epilepsy club, it's even more exclusive than the SAH survivors club, admission is by invitation only...unfortunately it's not an invite you particularly wanted.

I know it's a bit of a blow, it took me some time to come to terms with it, but you can and you will, mine is pretty much controlled now with anti seizure meds and to be honest I don't think I have any side effects.

The only real downside is the fact that they won't give you your driving licence back, but look on the bright side, your other half is now officially the designated driver!

If you need any advice or support or just have any questions about living with epilepsy I'm more than happy to share my experiences.

Good luck and don't worry

Adam

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Cheers everyone

Im sure you all now how wonderful it is to read your comments. It really helps. I am a little scared but trying to move forward and appreciate my life. No more do I want those night fears that I am just going to die!!! Reading your comments helps me through the dark times and make me determined to get on with it

Thanks again

Karen xx

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