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Recovery times after subarachnoid haemorrhage - Rachel


Rachel Mosley
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Hi my name is Rachel

 

I suffered a subarachnoid haemorrhage with hydrocephalus and vasospasm nearly five years ago.

I still suffer with daily headaches, tire really easily and wondered if anyone else still suffered like this year's after.

 

Is this now how things stay ?

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No Rachel xxx found you lol xx

 

Always see Doc if worried as stress is bad for us.

 

Some take longer than others so always get a check up.

 

Now you have posted people will tell you and just talking about it, I found made me feel easier and this site is good for us.

 

It makes things easier to cope with, so do not give up we will get there but if worried see a Doctor as this site does not give medical advice only your Doc or surgeon can do that.

 

I came on here thinking I was dying then all these people spoke to me and I thought to myself "I am not the only one"

 

So hang on in there and people will come on and reply to you xxx

 

Good luck Rachel nice to meet you in Chat room lol I used to get stuck in there a lot. 

 

Be Well  xx

 

WinB143 xx xx

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Hi Rachel :)

A very warm welcome to BTG, glad you found us.

Things will get better, it just takes time :)

I am 7 years down the line and I still have good days and bad days.

Fatigue is a problem, but I have learnt to know my limits and pace myself and listen to my body. Still catches me out though sometimes !

If your headaches persist I would definitely get it checked out by your GP as Win has suggested. Just for peace of mind.

Nice chatting with you and hope the link helps.

Look forward to hearing more from you.

Take care

Tina xx

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Hi Rachel,

A warm welcome to BTG.

It's nearly 6 years since my SAH, I too had hydrocephalus and I had a borderline vasospasm. I had clipping surgery for ruptured aneurysm.

Headaches,temple pressure and fatigue have always been a big issues for me, they did ease off after 2 years but they are still with me on a daily basis. Temple pressure is less, but I have headaches every day. I've forgotten what it's like not to have them. Fatigue also still floors me.

They are worse on days that I work, or when I'm stressed, or when I've just done too much.

I have leant to manage them better, to pace myself, and I almost kind of accept that my lil re-arranged brain will always have the last word!

I often need a little complete brain rest time, the dark, no conversation, no tv etc.

However in recent months I've been having lots of worsening symptoms, on average 3 migraines a day, balance issues too.

So I've been back to see my Neuro Nurse Specialist and I'm awaiting an appointment with Neurologist.

So I'd say to always seek medical advise if you've any concerns. They're there to help you.

Take care,

SarahLou Xx

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Hi there

 

warm welcome.

 

headaches are about the only thing I dont have now (all that much) anyway my head reacts to the weather.

 

yes I'd get them checked out just for your peace of mind.

 

Are you keeping hydrated, doing way too much or stressed all makes the fatigue much worse I find..

 

Take care

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Hey Rachel, welcome and you have some great Insights shared already. I had hydrocephalus and now have a shunt and like louise am very weather affected which affects my pain level plus have fatigue which limits my work hours but Sarah Lou said it well in that you become more used to it.

I'm four years and a half years out and can do things now that I couldn't even two years ago, i have much less fatigue than I did and hope that that recovery and gradual change continues and i have hope it will.

Headaches are hard though. are you doing too much maybe? i don't have daily ones like you and definately you should get that checked out but also we don't carry stress at all well now. My personal theory is our ability to process any chemical change in our brains has been compromised.

So for instance just before my period I get a whopper of a head now , previously it was not much to write home about, now it's a shocker, same goes for grief, tense situations and pressure, all land me needing absolute still and quiet yet were things I used to take in my stride....so Win and Louise share their great wisdom when they says avoid stress. We can't absorb it the same way and maybe that's something we all have to learn to live with, pacing ourself and knowing what takes its toll .

Be kind to yourself Rachel.

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Hi Rachel,

 

I'm 5 years out and I still get headaches now and again.  They usually come either when I am tired or when the weather is like it is today, low pressure and humid.

 

I just accept it and work around it as best I can, stay hydrated as Super Mario says and avoid mental pressure where you can ie stress.  Fatigue is a daily battle for me as my pituitary gland was damaged when they coiled me but this was a small price to pay for the reward of the rest of my life to look forward to.

 

Things generally get better over time, albeit a long time - patience is a virtue, they say and it certainly has been for me.

 

Stay positive, and if it is a real bind, go back to the hospital (not your GP) where you were treated and tell them about your problem. It's what they're there for. Don't be shy, just get in there and ask!  You have nothing to lose and everything to gain!

 

Macca

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Hi Rachel, I had my SAH only a year ago so I can't help with your question,I just want to let you know that you have found THE best place to come for help/advice, sharing thoughts , concerns and worries. BTG is an absolute godsend for me.

Take good care of you

Love

Jan x

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