phil13 Posted September 10, 2009 Share Posted September 10, 2009 Hi Everyone, Sharon is going to Walkergate on the 23rd September for a one week assessment. Naturally, I am extremely sceptical of them in view of the last time she was there two years ago when they wrote her off indefinitely. Plus, one week isn't a great amount of time to do an assessment of Sharon's condition. I'm getting quite anxious about it and if they try to write her off again I will blow a fuse!! One week seems to signify an attitude of 'yeah, we'll have a quick look' - it's all about money and resources. I'm going to travel up with Sharon when she goes (regardless of what anyone may say) to make sure she is OK as it will be very strange for her. This is another thing I'm concerned about, as she might completely clam up - as soon as any nurse wonders into her room at the home, she stops trying to talk immediately. Sorry if I appear to be cynical but I do think they are a pack of ******* for what they did the last time. Speak to you soon, Phil x Quote Link to comment Share on other sites More sharing options...
Janet Posted September 10, 2009 Share Posted September 10, 2009 Hi Phil How really frustrating for you I know how much it means to you for Sharon to be re-assessed properly and the amount of time you have been fighting for the re-assessment to take place. I really hope that the assessment goes well for Sharon. It sounds like Sharon maybe saves all her energy for trying to communicate with you. Sending lots of love and hugs to you both. Quote Link to comment Share on other sites More sharing options...
paul99 Posted September 10, 2009 Share Posted September 10, 2009 hi phil im please sharon is going to be reasessed hopefully by a new team who will give her a chance take your camera with you and all the supporting items you can muster i was very cynical when lin was moved although not to rehab but the new team of drs has sussed that lin wasnt getting the care she needed and due to their help lin is making minute progress every day is different as you know finding out everyday drugs are being withdrawn weekly i agree with your apraisal re the prevoius situation but hopefully there is a new team in place with fresh eyes hopefully and dont forget a week can be moved into more than one week at a moments notice i do understand how you feel but explain to sharon why she is going and that its up to her to try and make them understand its what she needs please dont give up on sharon or the team she is gong to be under before she gets there hopefully fresh eyes and team a lot can happen in a week cant it. you have taught me well i will never give up on lin because of sharons comeback as small as it is but to both you and sharon its massive i wish you both well and have my fingers crossed for you both chin up mate give both sharon and the team a chance please keep us informed i for one will be on tenderhooks waiting for news take care phil and dont lose heart hugs and cuddles to you both and the family xx Quote Link to comment Share on other sites More sharing options...
perrycornish Posted September 10, 2009 Share Posted September 10, 2009 Phil, can't do much more than this, but I promise to think of you and of course of Sharon. Good Luck Quote Link to comment Share on other sites More sharing options...
Tina Posted September 10, 2009 Share Posted September 10, 2009 Hi Phil...really hope all goes well for Sharon...you take care. Love Tina xx Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted September 11, 2009 Share Posted September 11, 2009 Hi Phil Sending hugs and kisses and hoping everything works out for Sharon. Good luck Quote Link to comment Share on other sites More sharing options...
phil13 Posted September 12, 2009 Author Share Posted September 12, 2009 Thank you all so much and sorry for the rather graphic expletive but I have been at a bit of a low ebb the past few days. I've just come back from playing a gig which was great. I popped to see Sharon before I went and again after I'd set up, and each time I got a lovely smile from her - worth the two twenty minute visits, she's made my day. I've told Sharon to try and respond as quickly as she can and she will, it may take a while for her to process the information but she does understand. Last night she was shouting the words out bless her, 'Hi baby', 'I love you' and 'Help me' - she has real determination. I'll keep you all posted and thank you all for your support, I know she'll make it, it'll take a long time but she would do exactly the same for me and more. Speak to you soon, Phil x Quote Link to comment Share on other sites More sharing options...
Tina Posted September 12, 2009 Share Posted September 12, 2009 Hi Phil Bless you both......really hope all goes well...Sharon is showing amazing determination Love Tina xx Quote Link to comment Share on other sites More sharing options...
Skippy Posted September 12, 2009 Share Posted September 12, 2009 Hey Phil Maybe it worthyou taking any evidence of Sharon's improvement with you - can you video her on your phone or record her talking so that they can she has improved? Keeping everything crossed for you and like Paul said, hopefully it will be a different team with fresh eyes - but at least they are sending her for a re-assessment - its a step forward no matter how small. Stay positive and it may help Sharon to stay positive too. Let us know how it goes - Good luck Quote Link to comment Share on other sites More sharing options...
phil13 Posted September 12, 2009 Author Share Posted September 12, 2009 Thanks everyone, I'll be compiling all the videos I take of Sharon to hand them over to Walkergate right up to the day before, so there'll certainly be enough evidence of her speech. Take care and I'll speak to you soon, Phil x Quote Link to comment Share on other sites More sharing options...
phil13 Posted September 12, 2009 Author Share Posted September 12, 2009 Hiya everyone, Sharon said she's worried tonight and when I asked here about what it is she replied, 'everything'. On the positive side, she knows how important Walkergate is but it's awful hearing her getting uptight about something in her condition. I told her not to worry about anything and that I'd be with her all the way, and if they try to be funny about things I'd blow my top with them. She's really coming on, bless her, but at the same time the more she progresses the more it hurts me and especially her. I'll speak to you soon and thanks again for all your support. Phil x Quote Link to comment Share on other sites More sharing options...
Vivien Posted September 14, 2009 Share Posted September 14, 2009 Good Luck Phil and Sharon x Quote Link to comment Share on other sites More sharing options...
Karen Posted September 14, 2009 Share Posted September 14, 2009 Yes, wishing you and Sharon the very best of luck Phil.... Must be distressing to see Sharon getting so upset, but good news though, that Sharon is progressing with her recovery. xx Quote Link to comment Share on other sites More sharing options...
Cal Posted September 14, 2009 Share Posted September 14, 2009 I wish you and Sharon good luck! My thoughts and prayers are with you both. I am so glad that Sharon is progressing. Cal XXXX Quote Link to comment Share on other sites More sharing options...
phil13 Posted September 14, 2009 Author Share Posted September 14, 2009 Hi Everyone, Thanks again for all your support. I read Dr Mitchell's report from Sharon's July assessment last night. It is somewhat less than enthusiastic about Sharon's long term recovery, with phrases such as 'impossible to say that she'll progress much further than where she is now', however, he acknowledges that some progress over a period of time could be achieved in the communication between Sharon and myself. Apparently, what concerns him most is Sharon's inability to follow commands which I suppose, naturally is a problem for any rehabilitation. But it looks like the whole Walkergate thing will be yet another dreadful prognosis, which makes me wonder whether there really is any point fo her going up there yet. She's getting worried about it herself which is distressing both of us, particularly her, so I think I'll ask her tonight if she feels ready for it and hopefully her response will decide. What looked like a positive step forward for Sharon is now looking like yet another dreadful suckerpunch in the making and we could plainly do without it. I'll speak to you all soon. Take care, Phil x Quote Link to comment Share on other sites More sharing options...
paul99 Posted September 14, 2009 Share Posted September 14, 2009 phil please dont give up just yet see what sharon says but also a new dr may see something dr mitchell hasnt and the rehab people might just get through to sharon by asking in a special way if sharon wont or cant react it dosnt mean the end to everything trust your sharon and your own gut feeling we all want sharon to get as much support and chances she deserves hugs and cuddle mate take care love to sharon Quote Link to comment Share on other sites More sharing options...
phil13 Posted September 14, 2009 Author Share Posted September 14, 2009 Thanks Paul, I'll never give up on Sharon or her chances of progress, but I still live under the cloud of two years ago when she was there and probably can't shake it off. Dr Mitchell obviously hadn't had the chance to look at the videos I gave him when he wrote his report, as he states that 'Her partner believes she has said "I love you" and "help me" ' implying that there is doubt to any authenticity. Don't get me wrong, I thought he was amazing with Sharon and certainly an expert in his field, but the professional scepticism has made me feel very low. He did acknowledge that when Sharon spoke it wasn't vocalised groans and was an attempt at speech. Sharon has worked so hard to get where she is and I can't be bothered with any negativity towards her or myself for that matter from the same people who said she wouldn't progress at all. I'll see what happens of course and maybe this frame of mind is the best way to be as I may get a surprise, but I'm not holding my breath. Anyway, enough of my ranting. Thanks so much for the message and support Paul, it's very much appreciated. Speak soon, Phil x Quote Link to comment Share on other sites More sharing options...
paul99 Posted September 15, 2009 Share Posted September 15, 2009 phil dont get down get angry and prove them wrong take care phil Quote Link to comment Share on other sites More sharing options...
Tina Posted September 15, 2009 Share Posted September 15, 2009 Hi Phil.....hang in there....as Paul says prove them wrong. Sharon has done so well. Sending lots of love to you both. Love Tina xx Quote Link to comment Share on other sites More sharing options...
phil13 Posted September 17, 2009 Author Share Posted September 17, 2009 Hi Everyone, It seems there's been a mistake made and Sharon is going to Walkergate for a one month for reassessment. Apparently, four weeks is the minimum stay for reassessment and they are quite puzzled at how someone there could make such a mistake.! Nevermind, I still won't be holding my breath for their prognosis, but it will be highly stimulating for Sharon which is a good thing. But she's still worried bless her and I'm apprehensive about her settling in after being so adjusted to the home, but we'll see. Take care, Phil x Quote Link to comment Share on other sites More sharing options...
Karen Posted September 17, 2009 Share Posted September 17, 2009 Hi Phil, Well, at least a month's stay, will hopefully, give them some idea ..... however, can understand Sharon feeling worried and your apprehension ..... change is unsettling, even when we're well, so wishing you both all the best and it's certainly worth a try....xx Quote Link to comment Share on other sites More sharing options...
paul99 Posted September 17, 2009 Share Posted September 17, 2009 phil thats brilliant news i understand what you mean about sharon being unsettled but she seems like a girl who knows what is what so to speak promise to take her out for a knees up if she does well a month will be amble time for new eyes and new blood to assess sharon and with the evidence you have i think they might just take note and push sharon as far as she can plus a bit more at least i hope so and a month is good news and if sharon pulls it of it could be longer couldnt it take care phil love to sharon Quote Link to comment Share on other sites More sharing options...
phil13 Posted September 17, 2009 Author Share Posted September 17, 2009 And it changes yet again...8 weeks!! But I'm still not holding my breath, it will be very good for Sharon and that's what matters. x Quote Link to comment Share on other sites More sharing options...
paul99 Posted September 18, 2009 Share Posted September 18, 2009 wow phil another roller coaster wishing you both well fingers crossed Quote Link to comment Share on other sites More sharing options...
phil13 Posted September 18, 2009 Author Share Posted September 18, 2009 Last night, Sharon's Mum told me about her distant cousin's daughter who suffered exactly the same ordeal as Sharon. After two and a half years of absolutely nothing from her they contacted her GP who called in a specialist. He referred her to Walkergate and they kept her in after the 8 week assessment. She's recovered but still has trouble walking. Anyway, I'm still not going to hold my breath and if anything does happen it'll be a surprise. Besides, the stimulus will be very good for Sharon. Speak to you soon, Phil x Quote Link to comment Share on other sites More sharing options...
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