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Karen

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Everything posted by Karen

  1. With many thanks to Katow for her very kind donation today! x
  2. With many thanks to Subzero for his very kind donation today! And also many thanks to those BTG members who make a monthly contribution to keep the site up and running. Your support and kindness is very much appreciated. x
  3. Bless you Louise and I really can't believe that it's been 20 years! I also know that it's a difficult time of year for you. 鉂わ笍 x Like Sami, I also feel very proud of you and all that you've achieved. It's hard to remember the early days of the website as I was literally just winging it and stumbling in the dark, needing support myself and then, you came along Louise and became part of my BTG family! .... somebody that was 6 years ahead of me .... just having your presence on the website and realising that what I was experiencing, was "normal" in the terms of SAH recovery, was a huge help to me in my recovery, so thank you! All that we've learnt over the years from each other with our own experiences....the good, the bad, we've been able to share it and pass it on to other survivors and the circle of support continues, knowing that you're not alone. It's good to talk! Louise, it's a complete pleasure to know you and to still share your journey. Sending love and hugs to you!xxx
  4. Sally, I also couldn't remember dreams in the first few years, after the SAH .... I do now and had my SAH in 2005. It does get better and perhaps it's the brain healing itself and giving you a much needed rest. x
  5. Thank you so much CharlieD! Donation received and it will help take Behind the Gray forward for another 3 months! Thank you for your kindness and I'm so glad that the site has helped you. x
  6. Thank you Sallios, that's very kind of you and donation received. x
  7. Many thanks to those members who've made a donation towards the running costs of Behind the Gray in September! It's kept the site ticking over! 馃槝 x
  8. With many thanks to those members who are making a monthly donation towards BTG funds.....It's very much appreciated.xx
  9. Thank you, for all of your lovely messages! My aneurysm isn't totally fixed and next brain scan will be in 2020....keeping everything crossed etc ... as you do! However, it doesn't freak me out, as it would have done in my earlier years... I've been lucky! Win, just keep singing and love you lots too...xx Here's to next year and taking things a day at a time and enjoying the moment! xxx
  10. Hey Sarah! Thank you and I'm not sure how you've juggled all of the balls in the past ... hope that you're managing a little more rest and relaxation. It was so lovely to meet you at Donna's a few years ago ... time passes too quickly. Love and hugs to you too....xxx
  11. Thanks Subs, that's so lovely!! and also thank you, for all of the help that you give to me and this website. Your friendship is very much valued. Love and hugs xx
  12. Bless you Sami....xx The camera was being very kind for once! Sometimes the time seems to have passed quickly ... the first 5 years pretty slowly....just glad to be here! Thanks lovely for all of your help, support and friendship...means a lot to me and couldn't have done it without you. Love and hugs back to you. xx
  13. I hope that this gives you a little comfort and today is my 14th year after the 2nd SAH ... It was as hot as it is, today... I'm still kicking! Lots of love to you all....xx
  14. Hi Yun, I didn't have clipping, but head and scalp were tender and my hair was starting to go thin .... Brushing the hair, especially in the morning or after washing wasn't good .... I found this detangler brush a huge help and I still use one .... it's called a Tangle Teezer and the following link will give you some ideas as to what it looks like, but you can pick these up now from any supermarket or drug store. https://www.tangleteezer.com/
  15. Wow Heather, that's such fabulous news and it's given me goosebumps! Please give my congratulations to Rebecca and I wish her all the luck in the World with her next adventure! I can well imagine that it's been extremely hard work for her, but she's done it and you must feel so very proud of her! Thank you so much for letting us know .. Well done to Rebecca and Mum too! xx
  16. My thoughts are also with Neil, his children, family and friends.... I wish them love and strength over the coming months. x
  17. It's with much regret and sadness to announce that Neil's beautiful wife Cassandra sadly passed away on May 6th after an epic battle to overcome her deficits. She passed peacefully and surrounded by love. Cassandra's recovery journey was an extremely difficult one, but one faced and fought with great courage and determination. It truly saddens us when we hear that we've lost a friend from our small community and we just hope that this site was a little comfort to Cassandra in her hours of need. She will forever stay in our hearts at Behind the Gray. Written by Neil for Cassandra's funeral service: Thank you, my darling Cassandra, for: 路 Your piercing insights and your companionable silences 路 Your disrupting home truths and your unswerving loyalty 路 Your sense of fun and your sense of gravitas 路 Your push for adventure and your acceptance of introversion 路 Your advocacy of entitlement and your honouring of humility. Thank you, my beautiful Cassandra, for: 路 Your ever-present luminous beauty 路 Your welcoming smile 路 Your authentic style and poise 路 Your flaming red hair. Thank you, my wise Cassandra, for teaching me: 路 How to bring up a daughter 路 How to release my emotions and turn it into support 路 How to not accept second best and send back meals, push for better accommodation and return stuff that didn鈥檛 fit 路 How to treasure relationships and nurture friendships. Finally thank you, my wife, my friend, my confidante, my guide, my mother of our children and my inspiration for your truly amazing love鈥upport鈥race鈥umour鈥nd honesty. Thank you for being the love of my life. Banksy has observed that you die twice; once, when you stop breathing, and a second time, a bit later on, when somebody says your name for the last time. I鈥檓 determined not to let you die a second time, Cassandra 鈥 goodbye until next we talk."
  18. With many thanks to all of those members who make a monthly donation to Behind the Gray! x I'm a little bit late with the "thank you's" but it's so much appreciated and it helps us to budget for the normal bits and pieces and the unforseen stuff that arrives at BTG's door .... Thank you so much. xx
  19. I think that you need to raise the question as to whether vaping raises blood pressure? I believe that nicotine does raise blood pressure in whatever shape or form. It's perhaps better for your lungs, but may be not for your BP and it's important to keep blood pressure down after a SAH. With vaping, you're probably still taking as much nicotine, as you did, when you smoked and perhaps even more, as you don't physically put the cigarette out. Personally, I would say, that vaping is perhaps even worse than smoking post SAH, as you don't know how much nicotine you're putting into your blood stream. I'm quite shocked, that your husband's GP has said that it was okay.
  20. Karen

    Sources of support

    Sources of support Subarachnoid haemorrhage is a serious illness and can leave you feeling isolated. Any concerns about your illness should be discussed with your doctor or with the hospital where you were treated. Most hospitals have specialist teams who can advise and support you. Attending a support group or joining an online support group where you can communicate with fellow sufferers can be very beneficial. Sharing experiences can help you feel less isolated and can help you to come to terms with what has happened. Support from family and friends is very important and can help with your recovery. It鈥檚 sometimes difficult for those who are close to you to understand what you have been through and how you are feeling. Try to help them too by showing them this website or some of the booklets from the links below. Joan from London says: Everyone rallied round and remained caring and concerned for my welfare. But of course, the bedrock of my life, Robert, has helped me come to terms with all that has happened and were it not for his dear love I don't know what would have happened. I sometimes think that I don't appreciate how traumatic it was for him to contemplate losing me, or imagining a future very different to what worked out. Vic from Frimley says: I have been with my partner for 14 years and he was and still is a great support. He has also had to change his life somewhat and accept my new foibles! Which he seems to have done pretty effortlessly! I'm sure there will be hard times ahead for the both of us and decisions to make but I couldn't have got this far without him. Our friends and our parents have been a great support also for us both. Karen from Dorset says: I have found this website to have been a Godsend. I really feel that you need to be able to talk to fellow sufferers and share experiences. When I have had down days, there's always been somebody to share it with and vice-versa, there's always somebody worse off than you. Sami from Nottinghamshire says: If it wasn't for talking to people in the same situation as me here at behindthegray, then I doubt very much that my recovery would have been as good as it has been.My close family and friends have been a huge support and helped me through the most difficult times. My husband has been an absolute star. He may not be able to know or understand how this feels but he has always been there for me with kind words, strong arms and plenty of tissues. Keith from Hampshire says: My wife and two sons were all very supportive, although it was difficult for my boys to understand what I was going through 鈥 my youngest is only eight! It was a great relief to find this site and to talk to others who understand exactly how I was feeling. It's understandably difficult for others who haven't been through this to comprehend how you feel and it helps a great deal to talk to others sufferers who have been through the same thing. Further Information The following booklets are available from the Brain and Spine Foundation: Subarachnoid Haemorrhage http://www.brainandspine.org.uk/subarachnoid-haemorrhage
  21. I believe that periarthritis is what's commonly known as a frozen shoulder and could possibly be down to age and wear and tear? I've never known a frozen shoulder to be linked to a SAH. I've had two frozen shoulders now, one on my right and the other on my left hand side of shoulder. I believe that the blood that dissapates from the bleed, down the spinal column can affect the nerve endings and the blood can take up to 3 months to clear. If you're worried and can't lift anything with your hand, I would suggest having a chat with your neuro team.
  22. We're looking to raise at least 拢800+ per year to keep this site running.... Hosting alone and part management with Invision, is now costing us 拢600 per year, so that doesn't include any extras that we may need to put into place ... such as paying for up to date software upgrades every couple of years and new themes/skins that support the new software. Information technology changes like the wind and in order for this site to work properly and without any glitches, we have to move with it. If we don't, it results in areas of the website becoming "broken" and the website and forums would eventually fall into decay and not usable. Everything, that is carried out on this site is voluntary and carried out to a high standard and would cost us significantly more, if we had to employ people in a professional capacity to do the same. Therefore, we rely on the goodwill of volunteers to keep this website running at the high standard that it is, for the minimum of costs. If anybody would like to give a donation to help keep us running there is a Donate button on the site .... if you would prefer to send a personal cheque, then please contact me via Private Message or the website via email. With many thanks to all who've set up a regular monthly donation with the website and you know who you are! x A regular monthy donation helps the site to budget for the following year/s and to be honest, it's a bit of a relief and less stress for me when working out our finances or if we need to consider fundraising. I'm not good or at all comfortable with asking for money to keep this site funded and it goes against the grain for me, but I can see that it's often down to some individuals who donate the one off larger amount who've floated the site funds to take BTG forward for another year, after I've appealed on the website and without these members, BTG wouldn't be here. So, it's also with many thanks to those of you, who've donated a yearly donation over the years and you also know who you are ...x Thank you all for your kindness and giving support to future survivors.
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