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Hi everyone, I'm new. My name is Sandi K and I had a NASAH Nov 10, 2010.

Does anyone have blocked sinuses? Not a cold, but sore between the eyes and in the forehead and pressure in the sinuses. I can breathe, but feel blocked. My bleed was at the back of my head.

How do you describe to people how your head feels? I don't have a headache. But my head feels weird. Spacey? Wavy? Not dizzy but....? And sometimes like it is being squeezed. I try to explain and people look at me with confused faces.

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Hi Sandi

Welcome to the site, i know exactly what you mean about strange head feeling. I have it most the time never know how to explain it to the doctor. Its not exactly dizzy but like im not here somehow. Also i get a feeling like a elastic band is around my head usually in the afternoon, evening time. I feel like i want to press the back of my head and massage it. Doctor just says its healing or maybe anxiety, mind you he dosnt seem to know much.

Friends on here have put my mind to rest though as alot of people have similar things happening. Its just very scary when your not sure, its like your on your own.

Just keep talking on here it really helps.

Tracy S xxx

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Hi Sandi

Welcome to BTG. You are still very early in your recovery. It can take up to 3 months for the blood to be absorbed by your body and it has to be processed by your kidneys, that's why it's a good idea to keep hydrated. Keeping hydrated also helps you have fewer headaches. You need to listen to your body and rest up as much as you can.

My bleed was at the back of my head, I had a dissecting aneurysm on the left vertebral artery. I remember experiencing all sorts of sensations in my head. I found I got the tightness when I was having to concentrate. I think I know what you mean by the wavy feeling and I think this is healing. That's what I put it down to. I can still get it sometimes now but it happens more when I'm trying to recall something.

I can't help you with the sinus pressure, maybe it's being caused by tension. But you should speak with your doctor and get him/her to check things out for you, maybe there is some sunus infection in there.

Take care.

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Hiya, i too have this tightnesses in my head, i had y SAH June2010. Its like pressure in the head. I too had these feelings in my face my Dr thought it was sinuses but it turned out to do with SAH, i have pressure in the face and numbness, it has all settled down now and i only have it if im very tired. I also have a burning feelings in the head too. Rest and drink plenty. Hope you are feeling better soon xxxxxx

Take care Rhiann xxx

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Good morning. Glad you've posted agian! I also had the strange head feelings, and it was worrisome. I had a continuous mushy (?) feeling at the back of my head, for months, along with constant headaches and frequent migraines. Many times felt disoriented, little pinpoint pains in certain areas of head, extreme fatigue, depression and anxiety.

I am happy to say that after almost 12 months, most of these weird feelings have subsided. The headaches are few and far between, fatigue is soooooooooooo much better. I am on medictions for depression and anxiety, which has also been a huge help. I do still get strange head feelings and some fatigue - I find these things occur when I'm tired, feeling stressed, or have overdone with physical things. I'm still learning how much is too much! It's a process.

I am so thankful that I have very few, minor defecits. It has still been a struggle, as friends and family think I am 100%. I have to remind them at times, that I am not feeling so well, need to rest, etc... Most of the time they get it, family anyway. Friends - a bit harder. Even Dr.s don't really get it. Very few medical professionals have actually had patients who've had brain bleeds and aren't always up to date on everything. Guess it's up to us to educate them as to what we're experiencing and that most of us are having many of the same symptoms and after effects!

Hang in there and know you can come here for help and support in many ways.

Hope all of our responses put you at ease a bit. Of course, do keep in contact with your doctor and keep them informed of what's happening with you. And don't hesitate to see your dr. if you feel something is just not right!

Take care sweetie - get some good rest today and be kind to yourself :biggrin:

Carolyn

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my hubby is 14 months down the line from his SAH and yesterday afternoon he got a head pain around his temples like something wants to be pushed out and for the first time yesterday he wondered whether is could be sinus problems.

could not get him into the doctors today as they are fully booked so the other alternative is a/e which he does not want to go as he don't want to be a fraud plus he said it does not feel anything like when his head did go pop.

the pain is still there, he does not get them that often but sat ans sun he did go in the gym and did a work out so wether this is the after effects.

will keep you informed he is sleeping at the moment.

it is such a worrying time.

di x

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Hi fellow NASAH's. Is it ok to call us that?

Wanted to share that today my head hurts mildly along with my temples and the whole front of my face. Even my front teeth. I hadn't thought of it in so much detail before until I read your posts and really started to think about it. Di, please do let us know how it goes with your husband's doctor visit and sinus check up. I'm curious if it's separate or related to recovery. I hope he's feeling better. Thank you for posting!

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Hi Sandi,

Mark saw the Doctor who said the temple headache could be down to stress and is he stressed about anything. His head was really bad last Monday but it has eased of where he has a few aches. i am going to start recording how often and see if there is a pattern to it. I know when it is cold he has to wear a hat and avoid cutting his hair. Mark is having an mri and a mra this friday coming to totally rule out a small anni which this will give give him more piece of mind. Mark is 14 months down the line i just try not to worry too much but it is very hard as it was an awful experience for you all and our famillies.

Di xx

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Good morning Di, thanks for posting.

I'm glad Mark is having tests this Friday and I hope it's all good news. It must be very annoying to have the doctor say it's due to stress. I mean, maybe it is but could it be part of recovery? There are so many symptoms and so many questions which makes it all so worrisome. You are doing the right thing by going to doctor and scheduling tests so you know for sure.

I hope you and Mark are having a good Sunday. :-D

Sandi K.

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  • 4 weeks later...

Sandi....Thats exactly how i feel had this problem since early December since the cold weather started and been back to doc's twice now and had two lots of antibiotics then the pain in sinus's comes back it is between eyes and over eyebrow area and my bleed was also in back of the head area. Mine is worse when i have been at work and i also wondered if stress has anything to do with it as my job is stressful but how you have described your sinus/face pain and weird head feeling is mine down to a T.

Vicky xx

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Di, great news about the outcome of the tests! You and Mark must both be relieved! :-D

Vicky, the front face/sinus thing hasn't let up. Even my front teeth hurt. I dont have a sinus infection, I can breathe. It just hurts all the time.

I get the burning head, its very much like during the angiogram every few days. Feels just like the angiogram.

Onwards and upwards as we say!!! :crazy:

Sandi K.

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  • 2 years later...

Hi sandy k.,I havent been able to post my story yet I will as soon as I can.im leaving for hawaii tmaro for two weeks.that's a whole othet story in itself..I just saw some similarities with you and I wanted to share.I get what I call fullness in my head and it def.is stress induced.good/not so good stress,it doesnt mater..and, like you people look at,me funny.also my sbh happened march 13 2010...when I hey that feeling my body is telling me skew down,stop talking so much or sound to much brain wise :wink: this site is awesome! Its been three years for me and ive been,kinda alone with figuring this stuff out!!so cool;-)

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  • 3 months later...

I hate to bring up old threads because I am sure the answer is here somewhere, BUT, a have pressure in my head like the band around my head and pressure in eyes and ears like they need to pop. Thought maybe it was sinus. Went to Dr and he thinks its all part of the "healing" process.

I would love to hear what others may think or what their Dr may have said.

thanks.

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Hi Iola,

I still get this feeling. I call it 'tight head' and most of my friends and family have heard me say 'my head is tight' or 'I have tight head' many times since SAH. It feels like a big elastic is wound round my head and something tightens it. I've been experiencing it this afternoon. It's once of the first signs that I need to stop and rest.

I don't get the sinus pain as often as I did but it will still come if I'm fatigued along with other 'weirdo' symptoms like sore and heavy legs, hoarse voice, etc.

My doctor doesn't know what it is, she thought it might be associated with migraine. I suppose that's possible, I have had migraines since SAH but not prior.

Sandi K.

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I'll share my theory on this. It's just a theory, I have nothing to back it up. I am not medical so it's probably complete speculation but I am very sensitive to my pressure changes which is attested to by many of my doctors! :lol:

I think when we get stressed or overdo things that possibly our ventricles produce a little extra CSF fluid, ( the scientists are not entirely sure what triggers CSF production) . Anyway maybe it's in anticipation of the 'flight from danger' we it thinks we are about to do and it wants to cushion the brain. So I wonder whether the brains absorption ability of the CSF is affected by the effect of a bleed on its surface, (mine Definatly was thus my needing a shunt.) and then it takes a little longer to be reabsorbed to the natural balance than perhaps before SAH. It's just a thought. I know if I get very emotional, be it sad or cross then I get a high pressure feeling, but not for long now as then my shunt kicks in, I can feel it.

I don't think that it's anything to be concerned about, but chek it out if your unsure, i do know if you had very high pressure then honestly I can tell you from experience that you would know you need to do something about it. The best remedy when I am high pressure is quiet but to keep my head slightly raised on pillows and wear a eye mask. Treat it like a bad migraine.

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Hi Iola,

Like the others I get tight head when stressed or overdo things or when there is some stupid idiot on TV lol

My tolerance levels have dropped honestly, I talk to the TV and say stupid moo.

Tell others around you "I need happy talk" as keeping spirits up helps us.

It helps me but when others around me go on about their lot I just switch off, I have become so rude !! bad Win!

Be Well and Happy

Love

Win xx xx

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Hi Iola,

I too suffer with pressure in my ears, like they need to pop. I compare it to the feeling that you get when you have been swimming under water. It is extremely uncomfortable and to date my GP has not been able to determine the cause or offer any solutions.

I have had my ears syringed (most unpleasant) and I am currently using a steroid nasal spray with no signs of improvement. The sensation seems to start as I become active in the morning and stays with me all day until I settle down in the evening.

He does not believe it is as a result of the bleed, but the problem started following the bleed last year and has continued this year, so I remain unconvinced that this is purely a coincidence.

I also have the tight head feeling, hoarse voice, soreness in the temples and specific random pain points in the head. I have resigned myself to the fact that it is something I may need to live with, but it does drag me down at times.

I have been asked to persevere with it until the end of the summer (to rule out any hayfever type allergies) and if there is no improvement then the next step is to refer me to a ENT specialist.

Hope things improve for you soon,

Wem

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Hi Iola, yep I too get thight heat when tired, stressed, & most of all the weather has a huge part to play on my head tightness...

Good you went to the docs about it though and yes could be the healing too...

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