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:redface:Hi everyone :o)

My name is Melissa, I am 26 years old, and about 8 months ago just after my 26th birthday I suffered a stroke which has left me with a four inch blood clot in my brain - I have been diagnosed with CVST or Cerebral Venous Sinus Thrombosis. I am undergoing warfarin treatment for this. I also have Intracranial Hypertension, for which I am awaiting an operation to insert a shunt into my head and attach it to my stomach. I also have epilepsy which I have had since I was 13 - I suffer from JME or Janz Syndrome Epilepsy and I take medication for this. I have tried tirelessly to find a support group or network that I can fit into and talk to people going through similar things and I really hope this is the place that I can accomplish this. Hopefully we can help each other through our various experiences :o)

Take care everyone and thank you for letting me be a part of this community :o)

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Hi Melissa and welcome! :-D

Gosh, 26 is so young .... I'm going to have to Google Janz Syndrome Epilepsy, as I have never heard of it.

There are some lovely guys on here and I'm sure that they will help to support you in any way that they can. I haven't got a shunt, but there are quite a few on here that have and it has helped to improve their situation.

Going to do some googling! xx

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Hi Melissa and welcome to behind the gray

gosh you have alot to deal with. i look forward to hearing from you. i dont have a shunt either but as karen said there are plenty of people here who will be able to help you. Take care and rest plenty

Donna xxx

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Hi Melissa,

I echo Karen's comments; gosh, 26 years old is very young. I am very sorry to learn that you have been through the mill.

I don't have a shunt either, but came very close to having one fitted. I am unsure what the future holds for me in that respect as I have 'dilated ventricles,' which is damage caused by the hydrocephalus after my SAH. There are people here who have shunts and I am sure that you will receive a lot of support from them.

It is very helpful to be part of a community where you can share experiences with others and it has helped me enormously.

I look forward to chatting with you again and receiving updates of your progress.

Lynne xx

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Hi Melissa

Warm welcome to the site....

I have a shunt also a tube too which goes down into my tummy....(my brain drain:roll:)

Like the others 26 is so young for all this but you've found a good place here hope it helps...

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Hi Melissa

I have had epilepsy since I was 14 and I had SAH in 2009...then in 2010 I had shunt fitted.

For me it was good as I was not with it as I had Hydrocephullus...(poo I cannot spell that word !!!!)

Now I can go shopping etc... eat chocs ..No Docs put me on diet darn it !!!!

Seriously though..Do whats right for you, as I can only speak for myself ....You will be fine so try not to worry

easily said than done !!!!!! Smile and sing it helps xxxxxx

Regards

WinB

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Hi Melissa

Welcome to the site! Glad you found us, and I hope some of the members on here will be able to relate to issues you are having to deal with. I haven't had epilepsy or a shunt so am unable to relate (and like Karen I will have to do some googling!).

You are so young to be dealing with so much, but I hope you find some comfort speaking to others on this site and getting some much needed support.

Take care

Kel x

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Hi Melissa! A warm welcome to you - so glad you found this site. I'm sure you will find lots of help and support from all the wonderful people here!

You've been through a lot, sweetie, and we're here to help you get through the coming days :)

Look forward to hearing from you.

Hugs,

Carolyn

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Hi Melissa and welcome!! Yes, I hope you find the support you need here. There are such wonderful, warm people, people with and without shunts, with and without epilepsy... ! My friend's daughter had CSVT last year, she was about 17 I think - it was a tough ride but she's doing great now.

Come back and talk to us again :)

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