subzero Posted January 14, 2015 Share Posted January 14, 2015 Hello Everyone Someone you know called Winnie introduced me to BTG four weeks ago. I have since read many of your stories and comments and found this website most helpful. I have also read the book- A Dented Image and we both watched the survivors video yesterday evening. My wife and I are 57 and she survived a SAH three and a half years ago. Since leaving school at sixteen-she had never had a day off work with illness. Four years ago my wife was diagnosed with Rheumatoid Arthritis. The prescribed Methotrexate caused her acute kidney failure and she ended up in hospital. Three weeks of undergoing tests still proved unsuccessful and she developed a DVT in her leg. This meant daily Dalteparin injections to counteract the clot. She was transferred to a renal ward and at week five underwent a kidney biopsy made more complicated because of the DVT. Now at week six in hospital and two days after the biopsy I paid my daily visit to see her But instead of sticking to my usual visitation time of 2.30pm, I went early that day at 2pm. She told me that during the night she had a massive headache- at five past two she became unconscious in front of me-I rushed for a nurse and our SAH journey began! Much later I was to reflect on what might have been if I had delayed my visit until 2.30pm! Anyone passing would have thought she was just asleep. With the alarm raised-she was put into an induced coma and transferred to ATU. These were the worst moments of my life- I was told that her chances of survival were 50%. After two days in ITU she gradually came out of the coma and proceeded to pull out all the blood lines and tubes attached to her. By mid week I was told that they had also made a diagnosis about the original problem-she had WG (Wegeners Granulomatosis)-a serious immune system disease where the body`s immune system destroyed it`s good cells. Thirty years ago the life expectancy was five months-now with medical advances hopefully it could be put in remission with powerful drugs. Also prior to hospitalisation she had suffered the onset of shingles- I am sure all of you can imagine how I was or was not coping with my wife fighting to survive these serious problems. I will continue with this link and explain her progress later and hope that our experiences three and a half years on will help someone and also that we can be helped by your comments too. 1 Quote Link to comment Share on other sites More sharing options...
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