Guest Beejay Posted December 6, 2008 Share Posted December 6, 2008 Hi, my name is Barbara, I'm 43 and had a SAH on October 11th. Luckily for me, I live in Southampton so was taken to the general where the Wessex Neurological Centre is based. Unluckily for me, the Doctors have not been able to tell me why it happened. My brain bled for no reason that they can tell, and this is the bit that frightens me so much because there is nothing I can do to help prevent it happening again.All of my tests, scans etc. were 'negative'. I am married with 4 children who have been so amazing to me and I am so scared every day that it will happen again and I'll lose them. Do these feelings go away? Did anyone else have an unexplained SAH? How do you cope with the fear? Bx Quote Link to comment Share on other sites More sharing options...
jess Posted December 7, 2008 Share Posted December 7, 2008 Hi Barbara welcome to BTG, there are a couple of people on here who had a sah with no reason found hope you get everything you need from this site. And yes the feelings do go eventually. Jess.xxx Quote Link to comment Share on other sites More sharing options...
myratas Posted December 7, 2008 Share Posted December 7, 2008 Hi Barbara A warm welcome to BTG we are one big family here. The fear will subside with time Barbara, the feelings you have are normal but give yourself time to heal. Hope to hear from you soon. Myra xx Quote Link to comment Share on other sites More sharing options...
bogbrush Posted December 7, 2008 Share Posted December 7, 2008 Hi Barbara and welcome to behindthegray. I can imagine that not knowing why it happened must be very hard to deal with. There is a topic in the Subarachnoid Haemorrhage Discussion forum that you may find helpful called "Non Aneurysm SAH". Click on the link below. viewtopic.php?f=1&t=76 Regards Keith Quote Link to comment Share on other sites More sharing options...
charty Posted December 7, 2008 Share Posted December 7, 2008 Welcome Barbara, you will find some answers on here, early days for you though! I hope you continue to progress, everyday it gets better. This is a wonderful site with lots of support. Caroline Quote Link to comment Share on other sites More sharing options...
Guest carol Posted December 7, 2008 Share Posted December 7, 2008 Welcome Barbara----early days yet and take things slowly---things do get better Join in with the gang----more the better,we laugh,cry,natter and support each other Carolx Quote Link to comment Share on other sites More sharing options...
Holly Posted December 7, 2008 Share Posted December 7, 2008 Welcome aboard, Barbara xxx It's still very early days for you, hun. We've all been there, we can all relate to the uneasy feelings that you are having just now. But, as the saying goes, "Time is a great Healer" , and with the love and support you'll receive from the folks in this site, you'll hopefully go from strength to strength. Please feel free to openly discuss your anxieties, as we're all here to help. Love and hugs to you, B xx Quote Link to comment Share on other sites More sharing options...
Janet Posted December 7, 2008 Share Posted December 7, 2008 Hi Barbara Welcome to the site we're a friendly bunch of people and the support and friendship you'll find on here will really help in the coming months. What you're feeling now is normal but it does get better just remember to be kind to yourself and listen to your body and rest as often as you need to. Take care hope to hear more from you soon. Janet x Quote Link to comment Share on other sites More sharing options...
Vivien Posted December 7, 2008 Share Posted December 7, 2008 Hello barbara Sorry to hear what happened to you, it must be a worry not knowing the cause, but us who know the cause still worry! As the others have said, this fades in time Vivien x Quote Link to comment Share on other sites More sharing options...
Ann Posted December 7, 2008 Share Posted December 7, 2008 Hi Barbara Welcome to the site and to a future of support and friendship. I too had an aneurysm with no known cause in January of this year, there are about half a dozen of us on here with no aneurysm. Apparently it is the best scenario with the best results in long term recovery although at times it does not feel like it! Feel free to PM me if you have any questions or just want to chat to someone with the same diagnosis. Like others have said, rest and listen to your body, I felt sure that I would recover really quickly because after all we have had no surgery and to all intents and purposes look fine, I was proved wrong, recovery can be just as long and unpredictable unfortunately. Talk to you soon Ann Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted December 7, 2008 Share Posted December 7, 2008 Hi Barbara, Welcome to BTG, a fab site offering the most wonderful support and advice possible. Feel free to vent frustrations or ask questions, everyone so understands. You arre very early in your recovery but things do get better. It is a rollercoaster ride but it does get gentler. Love and hugs Laura xx Quote Link to comment Share on other sites More sharing options...
MUTTI Posted December 8, 2008 Share Posted December 8, 2008 WELCOME TO BTG BARBARA THIS IS A GREAT SIGHT WITH A WEALTH OF FRIENDS AND INFO. XXX EVELYN Quote Link to comment Share on other sites More sharing options...
Tina Posted December 8, 2008 Share Posted December 8, 2008 Hi Barbara A very warm welcome to BTG ! You are still very early days.....take care and rest up. This website has been a Godsend to me....you will find lots of support and information here. Things will get easier. Love Tinaxx Quote Link to comment Share on other sites More sharing options...
Ann Posted December 8, 2008 Share Posted December 8, 2008 Hi Barbara Just re read my earlier posting and it seems to end on a very negative note! I did not mean it to, apologies! Yes, as everyone has said, it does get better, what I really meant was that at times it is one step forward and then one back and that it can be a frustrating time. 11 months on the improvement is great compared to early days. Ann Quote Link to comment Share on other sites More sharing options...
Guest ElaineW Posted December 8, 2008 Share Posted December 8, 2008 Hi Barbara and welcome. I am a carer, my mum had her SAH May 2008 and they could offer no explanation, my uderstanding is that this is often the case, high BP i know is often though a common cause. I can understand your fear as mum does still worry about it happening again but I also understand that this is very unusual and it is just an unfortunate thing that can happen to any one of us. I hope you progress, it is a long journey but this site has all the information you could ever want to know and everyone has a different story. Take Care Elaine Quote Link to comment Share on other sites More sharing options...
michelle C Posted December 9, 2008 Share Posted December 9, 2008 Hello Barbara, Welcome to a wonderful site with lots of friendly support and advice, its been fantastics for me and everyone is lovely, as everyone has said its early days rest up and keep posting. Love luck and laughter Michelle C xxxxxxxxxxxxxxxxxxxxxxxxx Quote Link to comment Share on other sites More sharing options...
Sasbo Posted December 10, 2008 Share Posted December 10, 2008 Hi Barbara Welcome to BTG. I can only echo a zillion times what everyone else has said - this is a great place to help your recovery, both mentally and physically, as we all share our experiences. There's always somebody who has been through what someone else is experiencing which really helps to put your mind at rest. It is early days for you yet and as someone else says it can often feel like one step forward two steps back, but that is normal and does improve. It's true, time is the great healer, but sometimes time can seem to move too slowly! Hang in and keep coming here, it will help. Lots of love Sarah xx Quote Link to comment Share on other sites More sharing options...
Louise Posted December 10, 2008 Share Posted December 10, 2008 Hi Barbara, Warm welcome to the site. I dont have a clue why I had the SAH either I was under a lot of stress at the time but they said that probably wouldnt have had anything to do with it..... Its just one of the mystory take care Louise.x Quote Link to comment Share on other sites More sharing options...
Anya Posted December 12, 2008 Share Posted December 12, 2008 Hi Babs, Try to focus on the positives and in getting yourself in peak shape. My sah, like yours, was diagnosed as cause unknow, at Southampton. My spell in hospital was like being on a conveyor belt…told I’d survived, now go home and recuperate! The consultant told me I could pursue anything with no ill effect & I took that advice to heart! Well its been four years and I have come a long way…still plagued with the headaches (weather influenced) and tiredness if I’ve overdone things, but emotionally I can take on the world again!!!I really wish I’d remembered to keep a diary of my progress - think it will help you if you did! Remember to be kind and patient with yourself…if you’ve good friends keep active in meeting up, etc, any lifelines are good. I know it’s a massive dent to confidence and stamina, but if it were not for my friends, I think I would have gone mad a long time ago!!! You have to strike a balance somehow and try hard not to overdo things, rest when necessary (which will be masses in the beginning) and try to keep upbeat. I hope your gp is supportive. You will have good days and bad, where you wobble all over the place, try not to put yourself in stressful situations (impossible I know with four kids), find a place to be quiet!! Stay away from shops, which I expect you’re doing & order the lot online!!! It is a salutary reminder of how fragile we are, but try not to dwell on your lucky escape!! Best Wishes… Anya Quote Link to comment Share on other sites More sharing options...
Skippy Posted December 16, 2008 Share Posted December 16, 2008 Hi Babs Welcome to the site and to the family - it's a fab place to be and everyone is excellent. Speak more soon Love Sami xxx Quote Link to comment Share on other sites More sharing options...
Guest Phil Price Posted December 28, 2008 Share Posted December 28, 2008 Hey Barbara, First of all - Happy Christmas and welcome to life post-SAH ! it is weird and difficult. I also suffered from a Non-Anuerysmal SAH this year (Aug 25th) - mine came on (excuse the pun) during sexual climax. I have been fortunate to experience what I might consider a pretty good recovery. I've experienced only a few very weird experiences (some call them set-backs) and after getting used to the strange sensations in my head, I feel as normal as I probably can expect. I can fully understand your fears and concern about a re-occurrence. Despite my Neuro consultant strongly suggesting that I am no more likely to suffer a further SAH as any other person, I do occasionally have a panic attack and wonder if I might suddenly be struck down again. What can I say?? there is no answer I can give I'm afraid. It is a massive cliche, but as time passes it gets a little easier. I am hoping that as more time passes, it gets even better still. I am considering looking for some alternative psychological help - perhaps in the form of Cognitive Behavioral Therapy. I'll let you know how I get on with that and whether it provides any further mental support - that is where most of my problems seem to be now. Anyway, not sure if I have been any help or not. Just wanted to let you know that you are NOT alone - I have been exactly where you have been!!! Contact me if you want to talk about any aspect of your experience. Lots of love - Phil. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.