Guest mollie Posted March 1, 2009 Share Posted March 1, 2009 I have had enough.....................My family think because the Doc says I am in recovery I am better..........I was at Liverpool on Tuesday and the guy I saw hadn't even seen my notes.........................I HAD TO SHOW HIM........Then he said.....................there is good news and bad news.......................now thats professional. He said......................the good news is........your brain is as it should be at this time........................It was lunchtime.................They said they had put themselves out to fit me in to their schedule............I said hang on I have been in Liverpool since 8am and its now 12.40................oh I'm rambling..........sorry people.................I live i the Isle of Man..............30 minutes on a plane..........................but 14 hours on NHS with no help apart form an escort who doesn't get paid because it's family...................Now I am rambling but I am sure most of you understand There is more to this story... Quote Link to comment Share on other sites More sharing options...
jess Posted March 1, 2009 Share Posted March 1, 2009 Hi Mollie I know it can be annoying it was only the other night I said to Kev I am going to pick my notes up from stoke on monday they have said I can (didn't want to wait either) and he said yes go then you can shut that door of your life and move on. I don't talk about it with him anymore haven't for a long time because of those reactions. Try not to worry about them Mollie concentrate on you getting better. Jess.xxx Quote Link to comment Share on other sites More sharing options...
Tina Posted March 1, 2009 Share Posted March 1, 2009 Hi Mollie......oh how i feel for you........it is hard enough without all this.....sending a big hug....i really hope things start to get better for you. Take care Mollie....lots of love Tina xx Quote Link to comment Share on other sites More sharing options...
Janet Posted March 1, 2009 Share Posted March 1, 2009 Mollie You have had such a hard time the last year or so really hope that things start to improve for you soon. As Jess has already said you do need to concentrate on yourself and getting you better. Our children unfortunately only see what they want to see and because we look alright we must be alright......... Take care sending some big hugs. Janet x Quote Link to comment Share on other sites More sharing options...
donna79 Posted March 1, 2009 Share Posted March 1, 2009 Hell Mollie I do know what you mean, this site and the friends on here are all I have that understand, My family seem to have forgot what I have been through ( but I havent forgot they was there with me x x I feel so alone with my feelings and like today I feel like my body is giving up I feel so weak But no one to talk to at home because they all want to forget and think I should get on with my life I wish it was that easy x x x There you are I have rambled on also You have to remember mollie you are not alone everyone here are your friends including me x x TC and sending you a massive hug x x x love donna Quote Link to comment Share on other sites More sharing options...
Guest Beth1957 Posted March 1, 2009 Share Posted March 1, 2009 Oh Mollie {{hug}} Try to ignore those who think you should be fine & concentrate on yourself xx Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted March 1, 2009 Share Posted March 1, 2009 Hi Mollie, I really feel for you. Try and concentrate on yourself so that you can get better and look after yourself. It is only you that counts. Big hugs Laura xx Quote Link to comment Share on other sites More sharing options...
Blondie Posted March 2, 2009 Share Posted March 2, 2009 So sorry Mollie, to hear what you are going through. It seems so common that people just want us to get on with it. How anyone can expect us to "close the door" amazes me. I think that with time you do leave it behind you more - I certainly think a lot less about my SAH now than I used to, but it will always be part of who I am now. Thank goodness for this site and the lovely people here. Big hugs to anyone feeling misunderstood... Blondie x Quote Link to comment Share on other sites More sharing options...
Skippy Posted March 2, 2009 Share Posted March 2, 2009 Hey there I'd tell these people to walk a mile in our shoes and then see if they have the energy both physically and mentally to be able to "shut the door" and move on - if only life and brain injuries were that simple. My family are pretty much the same now - it's as if I would be "milking" it to actually remind them that although I'm recovered physically, there are still the mental and emotional issues to deal with. John's death is the first one I've had to deal with since my SAH and I'm finding it hard - I've had to explain this to hubby and luckily he understands (after an almighty row and me storming out! ) This site is still a very important part of my life and the many friends I have on here are turning out the be the best friends I have ever had and I know they'll be there for the rest of my life - so thank you to you all. TTFN Lots of love Sami xxx Quote Link to comment Share on other sites More sharing options...
myratas Posted March 2, 2009 Share Posted March 2, 2009 I agree with everyone here, It's not easy to forget about what we have been through and still go through. Mollie, you have us here as we really do understand. Take care. Myra xx Quote Link to comment Share on other sites More sharing options...
Louise Posted March 2, 2009 Share Posted March 2, 2009 Hi Mollie sorry to hear how down you are, as others have said you have to think of you and only you getting well. maybe you could speak to a counceller about it. SO been there with family thing tho I understand just how Grr you feel.... I say 'live a week in this body then you'd know' for me I'm never going to recover to anything like I was, but I just try to go with what I have. Sami, my Dad died the day before my 2nd Anni-versary so I can quite understand how your feeling. Louise.x Quote Link to comment Share on other sites More sharing options...
Karen Posted March 2, 2009 Share Posted March 2, 2009 I think that we can all empathise with each other here on BTG ...... and the lovely thing is, that you can say exactly what you're feeling, as we're all in the same boat and nobody will judge you here. The mental issues are as bad as the physical reminders that are left with us ..... we each have our own scars. I would imagine that it is hard for people that haven't experienced this, to understand ...... I consider my life after a SAH, still to be a "work in progress" and I try my best to explain to those closest to me, how I'm feeling ..... I'm still coming to terms with it and even though it's got easier, I still have problems to deal with ..... physically and mentally. The two, go hand in hand. As for dealing with grief and the loss of somebody that we loved, then I know how hard that is .... may'be it's because we've also seen how our own life has hung in the balance and that we walk a fine line ..... it's definetly a stark reminder ...... A colleague of mine lost his life to a rare form of brain cancer, probably about 6 months after I had my SAH .... he was lovely to me after the SAH, even though he was poorly himself. I knew that I couldn't handle the funeral though and I was glad that I made that decision, as after being told about the songs that they played, I would have probably have had to leave in the first couple of minutes. My Uncle passed away suddenly after a stroke/brain tumour + aneurysm (near his heart) last year and it's been the first funeral that I've felt able to go to ..... It was a church service and then followed by a service at the crematorium ...... however, I could still only get through the church service and didn't go onto the crematorium. I couldn't deal with any more, as I couldn't control my emotions .... perhaps we're all a bit more finely tuned now, I really don't know ..... Quote Link to comment Share on other sites More sharing options...
Dee Woods Posted March 2, 2009 Share Posted March 2, 2009 Hi mollie. I think we all go through this it realy surprises me how many people think because you look alright them you must be alright.Its not that easy. good luck ......Dee. Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted March 2, 2009 Share Posted March 2, 2009 Hi Mollie, I must say I completely agree with all on here. My mum is suffering from depression and shows outward signs by heaving and tapping her legs etc. No endof people have commented on how recovered i am in comparison to her cos she shows outwrad symptoms! Then want to live with the tiredness, emotions and headaches etc that comes with our lives. Sami- I was exactly the same when I found out that that a friend had dies of a brain haem,even though he wasn't a great friend, I was devaststated. a) it was close to home and I just couldn't cope with the emotions. We have to think of all our great friends here for real understanding support Love and hugs Laura xx Quote Link to comment Share on other sites More sharing options...
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