Eruditedk Posted May 13, 2021 Share Posted May 13, 2021 Good morning all I hope everyone is feeling well and feeling positive.. It was suggested I start a new topic after my initial introduction thread so I hope this is in the right place, if not Mods feel free to move it to where will get the best responses and be most useful to others... So 3 months after my No Cause Nicola Sturgeon (OK SAH) for the unitiated in the new medical terminology... As an aside I really welcome discussion and agreement on a new terminology for what we have suffered... you all must feel the same... saying No Cause Sub Arachnoid Haemorrhage is a mouthful and utterly meaningless to most of the general population .... we need something punchier and more descriptive which is why I chose " Nicola Sturgeon" as she brings a universal pain and irritation to the brain that everyone understands immediately with no further explanation required... Going onto the title and my real request for help. Having a mathematical mind and being someone who tries to distill things into absolute answers I am desperately trying to understand what happened to me and what may happen in the future in statical terms.. I am searching for data, statistics based on general population, then drilling down, sub groups of smokers, cannabis users, hypersensitive and hyperactive people, people who lived on or thought they thrived on adrenaline and cortisol .. Skippy provided a statistic of 0.186% which came from something she had read... that becomes 1 in every 540 people who have a brain bleed die in the shirt term. Now I was given very different numbers from the hospital and doctors when my SAH happened.. I was told 30% of people would have been dead at my desk when it happened... A further 40% would have survived but been very severely damaged either mentally or physically The final 30% being a sliding scale of damage through to full recovery and that I was in the "Lucky" 1% that seem so far to be unscathed bar the recovery period i have to go through which would be 3 -6 months... As I have high blood pressure which they are trying different cocktails of meds to bring under control and a second "incidental aneurysm" my current risk factor of a re bleed is 0.7% elevated from general population being 0.4% Even my addled brain knows 3 months in the estimated recovery period was way out.... I am like bambi, weak and I don't have even 5% the physical or mental agility or stamina I used to have .... So the stats and numbers I have been given and Skippy has added too do not add up. The book " A Dented Image" kind of corroborated the doctors initial numbers but I would like to know what data others have been given or have found so I can calm myself with an approach I understand into working out what my own future holds... I also hope this leads others who need information in a similar format as me with facts and stats what help us understand... So I throw this open to all, please post sources, places to research, any and all information you can which I know will help me and will hopefully help others too... Now off to B&Q to buy timber i have an ongoing battle with a greenhouse I need to resolve.. Take care and have a lovely day... D x Quote Link to comment Share on other sites More sharing options...
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