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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 21,585
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      3,466
      posts
    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      208
      posts
    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      665
      posts
    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,172
      posts
    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,021
      posts
    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      599
      posts
    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      52
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,165
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      8,957
      posts
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  • Posts

    • I can only imagine your frustration at this point.  But please try to not let the stress get to you.  Hopefully they will get it together and get you scheduled soon.   Best wishes!   Chris
    • Ditto to what Clare said.  You have good days and bad days, but overall the trend can be up.  Just hang in there when things are rough, and reach out to your friends on here.
    • Julie,   Is it tomorrow ? don't want to put the kybosh on it so less said about it xxxx but good luck xxxxx   I wont tell you about my blood test as that pales into insignificance to yours lol xxx Trying to cheer you up !!   You will be fine and remember a happy song and sing it xxx but it must be a happy one also xx   Well I'll sign off.   Wishing you Good luck and a song will be waiting after your op tomorrow or next day xx just say if you need a song!   Love Win  xxxx  When you smile, smile, smile, smile ,smile ~  a song to keep you in good stead xxxx Shirley Bassey
    • Hi Dory,   Welcome to BTG.   You have certainly been through a lot and that takes a while to come to grips with. Even now I am still coming to terms with everything and learning to deal with the adjustments and I have had months to do so.   I had my haemorrhage whilst I was undergoing heart surgery for a congenital heart defect at the age of 27. I ended up in a coma and had an EVD fitted to reduce the pressure on the brain. Eventually this was changed to a permanent VP shunt as the hydrocephalus did not right itself. My neurosurgeons originally thought I had had a high grade SAH, however they have now said that I actually had an intra-ventricular haemorrhage (one within the brain) that spread into the sub-arachnoid space. I am still under these neuro-surgeons and have been told by them that I am definitely one of the lucky ones as the survival rate for the grade of brain haemorrhage I had is very low. I have also been told by the same ones that the side-effects I have experienced as a result of the haemorrhage are also to be expected.     I am now 19 months down the line and although I know I am lucky to have survived this I have to admit that I have times when I don't feel it. My life is now quite different to what it was prior to my haemorrhage. I have returned to work, but now work part-time, I have only very recently (yesterday) had permission off th DVLA to drive again and due to the spinal damage I suffered as a result of the haemorrhage this will have to be a hand controlled car. The spinal damage also means that I now walk with a stick and have lost sensation from the mid-torso downwards so pretty much all day-to-day activities are more difficult than they were. The spinal issues may get worse so I may have to undergo spinal surgery at some point in the future. There is also, of course, the brain side of things were too much stimulation is an issue and  my memory is rather diabolical.   As other members on here have said things do get easier with time and you will find that there are many things you can do again, although they may be in  different way. I am not going to lie - the journey post haemorrhage can be a rocky one with ups and downs but there are positives out there and there is definitely life (and a good one) post-SAH.   In terms of travelling post-SAH. I have yet to go abroad (although that is partly due to the fact I have struggled to get insurance due to being on the waiting lists for various things) however many on here have. I have also been away in the UK and have managed that. My family were told to cancel our holiday at the time of my event and they chose not to and I was able to go on it (although I slept for a lot of it). I would recommend trying to get in touch with your consultant or a specialist nurse if you have one to see what their reasons are for the cancellation and if it is necessary.   Take care, Gemma  
    • Hi Dory   Warm welcome, glad you found the site.   For those 'your lucky to be alive' smile and say I know!   take care