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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 21,918
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      3,737
      posts
    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      250
      posts
    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      680
      posts
    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,216
      posts
    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,150
      posts
    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      693
      posts
    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      69
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,234
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      9,335
      posts
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  • Posts

    • Same as Broncothor, I had an NASAH, and I was told if I wished to I could run, cycle etc just listening to my body and not going mad. The only suggestion made was that I leave lifting heavy weights alone (I used to weight train quite a bit pre my NASAH). Exercise is something that really seems to vary between folks post SAH, some people can run a half marathon no sweat, others me included really suffer  from fatigue if I do to much.   Unfortunately what is too  much now is far less than I used to, and the first time I went out for a cycle ride post SAH, I flattened myself for 2 to 3 days afterwards with fatigue from doing what I thought was a light ride. Ho hum! You just have to learn where the new normal is. I train once a week with a PT who is experienced in cardiac rehab, and she uses the same exercises regimes to keep my blood pressure/heart rate low enough not to give me fatigue but I can still get a reasonable work out for half an hour, and still be standing the next day.     There was a thread on here a coupe of years ago, and I recall that there was a lady who was a gym instructor (States side I think) who could still run some pretty long distances on a regular basis post SAH, but the thing that really triggered her fatigue was instructing big group classes. We all fatigue in different ways!   Good luck with it Josie,    Greg.
    • Hi Sam, I am two years out post my NASAH, and headaches are a daily part of life, some days you hardly notice them others days, they can be debilitating. As graham mentioned above, doing too much, is a common trigger, so the best advice is to find where your limits are for now. They for many of us this will improve, and as the months progress you will be able to do more, without triggering headaches, but it can be a bit of a battle of wanting to do more and then suffering the consequences. Some things are instant triggers, noise, large groups, over work, too much exercise but it varies for everyone what triggers the headaches and fatigue.   Good luck, you are still really at early days with it all, plenty of time for things to improve and plenty of time to learn how to balance things to accommodate!   All the best   Greg.
    • Hi Josie, Tiredness does seem to be the normal after SAH, i was like the other's about 6 months of severe fatigue, I'm nearly 3 years since my SAH, i still get tired but nothing like in the early days, you just have to listen to your body and rest when you need to.   Try not to be to hard on yourself, it is still early days for you, i say this all the time " the recovery road can be a bumpy one " tiredness is one of the many bumps on it, it will get easier.   Low mood seems to affect a lot of us, as Claire and Super Mario said if it doesn't improve over time I would try speaking to your doctor, i did and it was helpful.   Hope this helps. Love Michelle x
    • As others have said, you're still early in your recovery and this is a major trauma you've been through. I had fatigue for about 6 months and I notice still that I cope much more poorly after a bad night's sleep or if I'm stressed. Lots of water and lots of naps...it was a good 4 or 5 months before I stopped my daily half hour nap. Remember this is a big injury so be easy on yourself as it definitely takes a long time to recover/stabilise after it.
    • Hi Sam   My Neuro surgeon told me that people generally fall into 3 categories post SAH 1.  Some will suffer severe headaches for a prolonged length of time 2. Some will suffer mild headaches for a prolonged length of time 3. Some will suffer no more or no less headaches than anyone else   I know early in my recovery the headaches were daily and severe for a good 6 months and then they calmed down.  After a year they were mild and infrequent.  After two years almost non-existent.  Now, over ten years on, I suffer no more than I did before the SAH and normally only if I'm dehydrated, tired or hungover    Get plenty of rest and make sure you drink lots of water.