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Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke
Ya it hurts - so my chiropractor said it’s a nerve pinched from when I hit my head. I think it sounds right and it’s not as bad as it was. I’m trying not to take pain reliever but just now had to because my ear started hurting again. I guess that’s why I think it’s a nerve pinch because the pain is in weird places and comes and goes. Still trying to get referral to neurosurgeon. But I do feel improved.
Pat, have a shunt as well and I found I had almost no sensation around it to the touch of the skin for a good while after it was placed. Once the initial scar healed it was totally numb but then as it started to regain some sensation in that area of my scalp I found it was tender and also had some vey strange sensations, like a creeping feeling sometimes and it also felt tight.
That combined with being able to hear the mechanics of it , being barometrically sensitive and the tube sometimes aching means I don’t ever totally forget I have it ( I had mine placed 6 yrs ago) but equally I’m very grateful I have it.
If you have pain, or sensations that are changes to previous or increasing for you and you are worried you should always get checked out. Any hospital will take it very seriously indeed as a shunt malfunction is not to be ignored but I’m sure this is not that.
Main things is to educate yourself what a shunt malfunction would show up like; in extreme cases it is increasing dizziness, imbalance, eyesight deteriorating , vomiting. Other things to keep check of is make sure is no swelling around any of the pipe or shunt site and no redness or discolouration.
Clare, Thank you, I will try again, I was actually told that there was only a nurse specialist for patients with cancer!!! Odd? Yes. There was a neuro nurse specialist when I was discharged 3 years ago I will try again, Thank you.
Jan a consultants secretary has no right to tell you you can’t speak to a nurse specialist. You should be able to access one through the outpatients department. Or just try asking for the neuro nurse specialist through the switchboard. They will be able to give you the definitive answer so try again.
Hope you get an answer.