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Hello!

By registering with us, you'll be able to view our forums in full as well as discuss, share and private message other members of Behind The Gray. Why not join us now?

Forums

  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 22,630
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      4,663
      posts
    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      273
      posts
    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      677
      posts
    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,321
      posts
    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,206
      posts
    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      902
      posts
    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      70
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,311
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      10,282
      posts
    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

      247
      posts
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  • Posts

    • Hi JC   I would definitely go and see your GP regarding your work situation , they should help and support you with your ongoing recovery in between your follow up scan with your Neuro.   My GP has been very supportive and understanding. He had never come across a patient that had survived.  Please let us know how you get on.   Happy Birthday to you, hope you have a wonderful day celebrating  xx   Love Tina xx
    • Thanks everyone - it's really reassuring to hear from people who have had experienced similar situations and realise that rest will be crucial to my recovery. I think I've been so focused and desperate to return to normal I probably haven't taken in the severity of what has happened to me and also portrayed to many around me that I am fine (coz I've wanted to be fine!).   I guess I need to come to terms that I'm not 100% yet and probably won't be for a while... it's just so hard when you were a high-functioning busy person beforehand to be reduced to this. That is my biggest struggle.   Clare - you noted that your emotional resilience has changed, this resinated with me. I was someone that NEVER cried previously and now I often find myself upset and feeling helpless in situations, when I'd normally just be mad or angry.   Off the back of this forum, I had a chat to my work today about my regression in recovery and that I probably need to take a step back if I want to keep moving forward. Explaining that while I look well and at times can function well, I'm not there 100% yet and probably won't be for a while hopefully will help them understand what is going on (they were really good about it).     Can I ask, do you think it's worth checking in with a GP on my situation? My nuero said I only need to go back in a years time for a follow up scan.
    • Hi again,  appreciate all of your encouraging words here.   My second scan was clear all good!  It’s a strange occurrence though huh?  My doctor says your good to go!  But  I still am so tired all the time.  It’s been almost three months.  Although, I do see a lot of improvement.  My all day head aches and  the noise in my ear is gone.  Now I’m having sharp pains running down the left side of my head and in the bone behind my ear.   Any ideas on what this is?  It happens when I lay down to sleep. I do have TMJ from clenching my teeth.  .......But I do realize how lucky I am in the overall.     
    • Congrats Jan.  I too hope things just continue to get brighter for you.     Chris
    • Another runner here, but not marathons.  Hang in there!  The new you is every bit as special as the old you.   Chris
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