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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 22,061
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

    4. Stroke Discussion

      For all other types of stroke and childhood stroke

    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

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    1. Andi
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  • Posts

    • I was in a coma for about 3vweek I think xmartz after my sah  xx
    • Thank you all for the wonderful, thoughtful, kind and informative words.  I don't feel I am the only one feeling like this.  I totally expect any relationship would be hit hard with what has happened.  I just felt alone and a scared of everything being over.  I have to be brave enough to give my husband time to heal I guess.  I think the impact on him has been immense.   I think if I'm honest its truly hit him harder than I realised.  He had to be strong all through the time I was in hospital.  Being told that things where on a knife edge etc etc.  I can only hope things will improve for us.  I find however my patience is tested and I don't know if this is normal.  I think I am looking to the physical side of things for reassurance that we are ok.  As this is not happening it creates more anxieties and doubt for me.   I will try and somehow dampen down the anxieties and hope that things, as I become more independent, our relationship will get firmer, if not stronger and we once again I hope be husband and wife fully.  Its very hard, and I guess I sound selfish and uncaring but I truly am not.  I am grateful for all he has done for me, he has looked after me.  I notice as I get better he seems to get worse. It's as if my getting better has allowed him to collapse from the strain of it all.  Am I right?   I know no one can predict if things will improve for me and I guess I am just looking for certainty which I know at the same time I can't have!  Do marriages/relationships come through this awfulness?.  I find I am so scared at times of thinking it will all be over.   Sorry for going on.  I also scared if I'm honest of anyone showing me any kindness and interpreting that.  I feel so needy and at times so alone.  Then I think of others who really are in a worse situation than me and I then am angry with myself for being so selfish and uncaring.  Its like a vicious circle at times.  I hope at some point I will step off of this awful merry-go-round.   I know my marriage will never be exactly as it was before the SAH, but I hope it will be better than it is at the moment.  I hope we can be close again.  I'm not sure how long I can hold out as I feel so alone at times.  I think I need to pluck up courage to go to the support group.  Trouble is, it only meets once a month, but maybe that's a start.   I feel I'm asking so many questions and answering them at the same time.  I'm sorry to be such a pain.  Thank you all of you for you advice and support it is so appreciated.  I am going to try and be positive.  I think I might even dare to bring this up with my therapist!!   I must be brave.  Thank you all.
    • Most people with a gcs of three would be unconscious. I was in a coma following my SAH and had a GCS OF 5
    • Jan,   Weird isn't it  how we know !!!   I used to feel very heavy headed  in early days but like everything we get used to living with it, she says hearing thunder in background arghhh xx   Be well and thanks for the forecast  ha  xx   Love   Win xxxx      
    • Hi KMR   I remember nothing before shunt and I used to think I was in a café when it was dinner time, I'd say to my Daughter "Get my bag my treat"  we laugh about it now.   When I came home I had carers who washed me 3 times a day then 2 then none xx   My Family sang with me, love an old song  xx   But I remember none of this but I had a shunt put in as I had hydrocephalus  and it was like a light going on xx   Hubby got me a zimmer frame after I took 4 steps towards him. and from then on I was independent to a certain extent.  I could shuffle to bathroom.   Give Dad a song and see how he is coming on and I wish you all the best as it is a long haul for us and our carers.   Good Luck   Win xxxxx