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By registering with us, you'll be able to view our forums in full as well as discuss, share and private message other members of Behind The Gray. Why not join us now?

Forums

  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 22,675
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      4,753
      posts
    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      274
      posts
    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      677
      posts
    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,332
      posts
    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,211
      posts
    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      910
      posts
    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      70
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,327
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      10,338
      posts
    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

      252
      posts
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  • Posts

    • Coral,    i think you need to perhaps look at what you are asking of your brain and then think about what you can what you can do to give it time and space to heal.   Try keeping a diary of what heightens your emotional response or shortens your fuses.    here’s  the thing, our brain run everything we do and it uses huge amounts of energy to do it and it’s a pretty amazing complicated system of how it does it. All of us got blood mixed into a space which is a very delicately balanced system of minerals , chemicals and my personal theory is that everything gets completely out of whack when that happens and circuits don’t function as well. There’s is damage , different and unique to each of us but nonetheless it seems there and you need to understand what yours feels like to you so you can learn how to adapt gently.    The physical regains and recovery in my experience came faster and quicker than the emotional and cognitive and dealing with sensory overload was a big deal. Too much noise, light, conversation, emotions threw me out completely, brought me to standstill almost . all my taken for granted cognitive capacity that I had previously was gone and I had to slowly build up my capacity for dealing with it and that meant dialling everything back and managing my load. I still have to today six plus years on    look up pacing, you may find it can help you. 
    • Lovely words and advice from Valene.   My best advice to you when you have that negative voice or feeling is to stop and imagine what would you say if it was a beloved friend or relative stood in front of you saying those same things about themselves for a task done differently or a small mistake. You would no doubt reassure them, encourage them that their intentions were good, their efforts amazing and to remember how far they have come. Now extend that very same courtesy to yourself.   Please practise being kind to yourself. Cut yourself some slack. Yes aim high, have curiosity about what’s possible and push limits but when the voice comes which is usually ego and self doubt then Just silence it by being kind about your efforts and intention and focus and practice that.   
    • Hi , well got my date 2nd August two weeks, so here we go again..how was your scan Kemp’s or you still waiting?
    • Well, I'm new here,  but I can relate to feeling this way. I was diagnosed with MS years ago, and I have had my moments- alot of them.  Sometimes my family doesn't get it. How could they? And I don't think they mean to offend me those times they are not as patient or understanding.  They are just imperfect people, like all of us.   At any rate, know that you are not stupid! Look at what you survived! Look at how you adjusted and continued progressing in life. I find that often I can be my worst critic.  I have to acknowledge that, and work to consciously correct it. Every time that thought comes to you, replace it with an affirmation of self love.  "I am strong. I am a survivor. I am smart...." Sometimes we have to encourage and love on our selves! We have to be intentional about it.   Hugs to you.
    • Hi, looking for advice on how to handle that voice in my head that keeps telling me how stupid I am and will always be every time I make a mistake, lose something or just get frustrated because I can't do little things. Especially when family is hard on me because they just can't get it thank you!
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