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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 21,482
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      3,438
      posts
    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      206
      posts
    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      663
      posts
    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,170
      posts
    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,021
      posts
    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      571
      posts
    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      52
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,155
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      8,877
      posts
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  • Posts

    • It is a very interesting idea - when I have thought about it I am not sure which year has been harder (although to be fair I am only half way through the second year).   My first year was tough in terms of the immediate aftermath of the haemorrhage and the hydrocephalus. It was a steep learning curve in terms of learning to deal with these. I did, however, make more rapid progress in terms of what I achieved then what I do now.   I spent most of that year in rehab and started to make a return to work, although I was still on my sick note for all of this. By the end of it I felt quite happy in terms of what I had achieved and optimistic in terms of what I might go on to do.   I would agree that the second year is quite tough in terms of dealing with the long term effects of the haemorrhage. For me this has not just been dealing with the cognitive changes but also dealing with the spinal issues that I have developed as a result of the haemorrhage (arachnoiditis and arachnoid cysts - apparently these are a rare side effect of having a brain haemorrhage and of course mean more trips to the hospital and potentially more surgery).   This coupled with my phased return to work have been tough and as I have said previously I have second-guessed myself a lot in terms of whether I am doing too much in terms of this. I am now at the end of the academic year and have settled on a part-time timetable for the next teaching year, so will see what that brings.   I agree with what other people on here have said - I think the recovery from this is all about pushing yourself a bit and trying things out and then adjusting as needed. I also agree with the acceptance of things - I spent a while struggling to walk without any aids and once I started to use my stick and my AFOs more things got much easier.   For me it is a fine balance between accepting how things are now and pushing slightly to achieve a bit more.     Good luck with everything x
    • I don't mean to be frivolous about how you feel Jan but to me the others put 1 step forward and 2 back but I think they are doing the Hokey Cokey  xx lol. Joke All !!   Now to be serious we do get good days and days when we wish we never got up, but saying that you would not have heard my  joke !!   Keep your chin up and smile a big smile and as I put" if you feel like it only " !!  If not try tonight or tomorrow xx.   I remember a day when I felt normal all day, and me and normal don't go but that day I really felt like my old self.  I keep that day close to me as it was near to perfection.   We will get there pal,  and me and Carolyn will sing to you later xxx xxx  Stop crying okay I wont sing then lol  xxxx a wee smile as Subs would say  xx      
    • Hey Paul and Lin   Ditto to what everyone has said.  So very very pleased for you both - onwards and upwards.   Sending you both much love and many many hugs xxx
    • Hey there   The first year was definitely the hardest for me and the second was a period of acceptance and adjustment.  For me it was about stopping the fight against how I was pre SAH versus post SAH.  Acceptance is a great healer and the adjustment allowed me to push  myself a little further each day, week, month.  My emotions were all over the place and I'm still far more emotional now than I was pre SAH - but hey, you know what - that's what makes me human!!   I'm a decade post SAH this year and I work 37 hours a week in a very busy school office where two days are never the same and its never quiet.  I can manage it perfectly well now and have done for the past 5 years.  Feel free to push yourself a little each day, but don't get disheartened or down if you can't - it's about the little things making big differences.   Take care xx
    • I would agree with Daff, I'm ~18 months down the line, and right now things are feeling tougher than last year. Maybe for slightly different reasons to Gemma, but I guess by now I kind of thought some of the issues that I had 6 months back might have started to ease, I'd be doing better with my phased return to work, the fatigue would be slightly more under control etc. etc.   I guess this is the time where, at least for me, there is the learning to accept this is the new normal, and learn how to better manage life to make the most of everything.   With my positive hat on for today , one door may close, but another one opens, I'm not a big believer in fate or destiny (apologies to those that are), but right now this is what I have got, so "blow it" time to get on with it, and see where I land up!     Happy Tuesday folks!   greg