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Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke
I have returned to this site hoping to find information/confirmation/reassurance that I am not over-reacting or looking for problems that aren't there - as this is what I know those around me think! I have spent time reading through posts and advice and find this one.
MO5....I am truly sorry to hear of your situation & YOU should be proud of all you have been & continue to deal with, humbling indeed!! Furthermore, your original post mentioned so many things that I have been 'struggling' with over the last few years and recognise,.
But have been told by my GP that I am depressed, suffering from stress blah, blah, blah but ignoring or not listening to what I feel are my real issues....memory, language hesitation (verbal & written) confrontation fear, social engagement incompetence, utter fatigue and above all else "I am devoid of all fluffiness.
I feel nothing, long conversations bore me, little to no empathy" So, I am probably not simply an "attention seeker" (how I've been made to feel!?!)
It has been so long since my SAH (2008) & stent (2010) that I no longer believed that this & my mental state could be linked. I have found work more than challenging, my ability to cope deteriorating until I finally left in October 2015, the financial pressures and feelings of failure have plagued me since.
My 3 children are now all grown up, happy, secure & working abroad, so I don't have that responsibility but the belief I am not the person I used to be has finally hit home - but how do I explain this without sounding like a 'whining child looking for excuses?'
In conclusion, I would like to thank you for posting so honestly and wish you well for the 28th, hoping you get the answers, support and help you deserve and are entitled to!
Your post & this thread has convinced me to tackle my GP again and ask him to take me seriously, so it has helped at least one person.
In fact, I may just copy & take this with me........thank you!!
Glad I cannot remember mine Jimble.
When I ask my Family. "Did I have this and that" I know I am getting well as in early days they would tell me what happened.
Now they go tut sheesh and words like that lol xx
Glad all is well and good luck xx
I've had 2 angiograms now - both awake with no sedatives. The entry site is numbed with local anaesthetic - bit of a strange pushing sensation ss they get the catheter in. No pain whilst they are in doing their thing in your head.
The 2nd time as the contrast dye went in the sensation was different a hot/warm feeling, but it was over in seconds - for me the 4 hour bed rest is the worst - but I think the acknowledgement of what has just been done to you keeps you still and calm.
Glad that the testing is going well, and they are being really considerate in the way they are spreading it out for you.
You make a really good point, very few of us will have undertaken these test pre our SAH so a true baseline comparison is really hard to make.
I don't quite understand how, but there is part of the tests that apparently allows them to estimate a calibration point to give a good indication of where you were generally pre SAH ,so that you can get an idea of the degree of impact. (I'm not sure if this is for all or just certain parts of the tests, it wasn't explained to me very clearly).
Sorry to hear last week wasn't good, it can be a bit of a roller coaster ride at times, good luck with the rest of the tests, let us all know how you get on.
All the best
Interesting reading Greg. My neuropsychologist has said after I complete the test they may not show much deficiency but that it is flawed. This is because it depends where I was before the bleed. If I had very high functioning levels before, any drop now may not seem so bad on the scales.
We have completed several tests over the last 2 weeks and will finish them next week with memory and executive dysfunction. After that we will have a feedback session followed by a session on coping mechanisms. All told I am very pleased with the way the tests have been carried out.
The neuropsych knows I have to work after so leaves a good break for me to get into work without being rushed and stressed. Luckily it is in the same building - a very big Super Hospital (their name not mine), so I do not have to go far.
Had a melt down last week at work due to 2 days of intense pressure, luckily the Wednesday off helped and I was able to go back on the Thursday feeling refreshed. Makes me realise the wisdom of negotiating the Weds off in my new job.
I'll keep you all posted.