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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 22,765
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

    4. Stroke Discussion

      For all other types of stroke and childhood stroke

    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

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  • Posts

    • Pat,  have a shunt as well and I found I had almost no sensation around it to the touch of the skin for a good while after it was placed. Once the initial scar healed it was totally numb but then as it started to regain some sensation in that area of my scalp I found it was tender and also had some vey strange sensations, like a creeping feeling sometimes and it also felt tight.    That combined with being able to hear the mechanics of it , being barometrically sensitive and the tube sometimes aching means I don’t ever totally forget I have it ( I had mine placed 6 yrs ago) but equally I’m very grateful I have it.    If you have pain, or sensations that are changes to previous or increasing for you and you are worried you should always get checked out. Any hospital will take it very seriously indeed as a shunt malfunction is not to be ignored but I’m sure this is not that.    Main things is to educate yourself what a shunt malfunction would show up like; in extreme cases it is increasing dizziness, imbalance, eyesight deteriorating , vomiting. Other things to keep check of is make sure is no swelling around any of the pipe or shunt site and no redness or discolouration. 
    • Clare, Thank you, I will try again, I was actually told that there was only a nurse specialist for patients with cancer!!! Odd? Yes. There was a neuro nurse specialist when I was discharged 3 years ago I will try again, Thank you. Jan xx
    • Jan a consultants secretary has no right to tell you you can’t speak to a nurse specialist. You should be able to access one through the outpatients department. Or just try asking for the neuro nurse specialist through the switchboard. They will be able to give you the definitive answer so try again.    Hope you get an answer.    Clare xx
    • Tinaw, I think our posts crossed! Thank you for your reply, That helps to put my mind at ease 🙂
    • sM, Thank you, I have tried to phone my physio this afternoon but can’t get hold of her yet, she is aware that I’ve had a SAH so I’m sort of assuming from that it must be ok, To be honest, I think that because it’s something totally new to me I’m being over cautious. I was ok until I read the leaflet she gave me and this sentence jumped out at me . . . . . . Research shows that acupuncture stimulates the brain to produce natural pain relieving chemicals - Endorphins............... It’s the ‘stimulates the brain’  bit that  had me worried. I am just being a great big Wuss!! Jess, I was treated by Mr Tzerakis ( Not mis spelt, I just checked)!!! John and my sons referred (& still do!) to him as Dr Nik, much easier!!! Jan xx