This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.
Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke
This time 12 months ago my husband was rushing me into casualty...quite the journey to surgery 36 hours later. You guys have been great at helping me understand how to deal with such a life event! I may not be singing, but learning the piano is a great help! Thanks for all your support.
Welcome and well done for making the post, your thread will help someone else 'stalking' the site so well done for taking the plunge after all this time.
Also so can I just say I laughed out loud at the hubby comment so thanks for the smile there.
to be honest I heard echoes in everything you said. Like you my world is paced differently these days but even then sometimes that still doesn't work and I get all that you describe and nothing I do matters a jot, it will still send me reeling, my worries raised and my pain level back to nearly intolerable. Weather can also knock me off kilter as Win shares with big barometer swings.
That said I do agree with some of the caution shared on opiates and if you regularly use them it may be worth questioning and discussing other pain relief options with your GP as they can have unpleasant side effects.
Macca gives some great practical tips, all can really help you but making sure I'm always putting lots of tiny breaks of silence and doing nothing for those short breaks in my day I feel has helped me stretch what I can do little by little .
But we don't stretch as far or as easily as of old so maybe make life or pacing changesyk what you currently manage. Think about what you would like to do and what is bothering you most and concentrate on trying to improve or change that first, do one thing at a time though as we are hopeless multi taskers now.
One of the few on-going problems I have is acute headaches, mostly behind the eyebrows and by the temples. I always say they feel like a brain-freeze from drinking something too cold. Luckily, they don't seem to last very long. So if this is what you are experiencing, you are not alone.
I am sorry to hear that you are struggling so much for so long. I don't have much advice as I have been extremely lucky so far since my NASAH. Other than the occasional headache and some memory problems, I seem to be ok. But I can send you prayers and hope for things to improve. The vision thing worries me as colored vision was the first symptom I experienced when I had my bleed. I agree that a trip to an eye doctor may help.
Thanks for posting after all of these years of stalking. This site has great people who can offer advice and support.
from you statement I believe you should be asking for a neurologist appointment and ask him or her to give you a full work over... my partner is eight years down the line and it took me to get someone to see what I had, in my partner and now things are moving forwards.
it could be nothing and everything has an explanation, but for your peace of mind I would suggest getting an appointment sooner, rather than later. write everything down so when you see the neurologist he can request tests and the results should settle your worries. good luck paul