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Forums

  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 22,767
      posts
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

      4,822
      posts
    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

      274
      posts
    4. Stroke Discussion

      For all other types of stroke and childhood stroke

      677
      posts
    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

      3,347
      posts
    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

      1,232
      posts
    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

      950
      posts
    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

      70
      posts
  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

      1,327
      posts
    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

      10,356
      posts
    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

      261
      posts
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  • Posts

    • Great new Jan I knew by phoning direct you’d get an answer. Most staff on these types of wards are used to patients calling with queries  and are sympathetic.  Secretaties drive me mad sometimes they can be so protective over the consultants who usually are more than happy to help!    Hope you enjoy getting stuck with the needles and more importantly that it works!    Clare xx
    • I phoned N Staffs again yesterday. Switchboard couldn’t put me through to a nurse specialist as they don’t have one on their list!! She asked if I wanted to be put through to ‘the ward’ Which ward I had no idea but said ‘yes please’ As it turned out it was the ward that I was in 3 years ago.   A lovely nurse answered  and I asked my question re acupuncture, she seemed to understand my concerns and immediately went to find a doctor to ask. She came back to me with. . . . Yes Jan, it’s safe to have acupuncture after a bleed on the brain.😀😀😀 Relief?? I can’t tell you !   So, I’m off to do my impression of a pin cushion this morning. I’ll pop back later to let you know how it went. Thank you all again for your advice and support.   Jan xx
    • Hi,    I like Krislwal had my NASAH May of 2017 which was followed by vasospasm 4 days later.  I never had a headache issue prior to this.  I did not have a clip, coil or shunt.  I had an angiogram that put verapamil into the vessels, it was helpful.  My current headache situation is good as I am on Amitriptyline 20mg at bedtime.  I would like very much to come off as I have glaucoma and it is a drug best not taken by me for that reason.   I came off once, slowly, and slowly the headaches came back badly, making me miss work.  I am going to attempt this again soon, with my MD's follow up, hoping she can guide me to a better result. To all suffering with headaches, you have my empathy, they are miserable.
    • I had a NASAH May 2017 and I still get headaches.     I never had anything weird prior to my bleed.  I didn't have any warning, no headaches that were of concern, never a migraine, nothing.     Post bleed I get them all and when they come on they are quick and relentless.     I now get migraines, clusters, tension, sharp pains etc.  my bleed was a vein that burst while I was running and it resolved itself so I had no surgery and thankfully no complications after.     I've managed them a lot through acupuncture and doing what everyone else on here says, water and rest.  I babystep everything.  Good luck to you!
    • I'm going to my neuro tomorrow so I'm going to ask about it.  Thanks
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