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Chelle C

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Everything posted by Chelle C

  1. Hi Von, Welcome to BTG as we call it, sorry to hear about your stroke, you have come to a great place for help and advice. It is still very early in your recovery and fatigue us one of the side effects that we all suffer after a bleed, memory can also be badly affected at first, there are some members of BTG who have problems with their sight, I'm sure someone will come along and share their experiences with you, Try to be kind to yourself, recovery takes time, your body and your brain have suffered, they both need time to recover, try and make sure that you rest when you feel tired, sometimes in early recovery the smallest of tasks can wipe you out, also try to stay well hydrated as this will help with any headaches that you might have. I think we have all had experience of people saying " you look fine " they can't see it, so you must be OK, try not to stress to much about other people's comments, you know what happened to you, not all strokes have visual signs, I had SAH June 2014 then suffered a stroke December 2014, I have no visual signs of that stroke, but it did happen. You could try explaining it to people, if they don't understand then let that be their problem, you explained it. I wish you all the very best as you go along the recovery road, it can be a bit of a bumpy road, don't give up hope, there will be light at the end of this tunnel, it just takes time to get there. Take care Love Michelle xx
  2. Hi Ben, Welcome to BTG as we call it, So sorry to hear that you suffered SAH, you will find a wealth of information here and we are all a big friendly bunch of people, it is also a nice feeling to know you are not alone after such an event. We are not allowed to give medical advice as non of us are qualified to do so, we can however share with you information about our own experiences. It is still early days for recovery wise that is, try not to push yourself to hard, make sure you get plenty of rest and stay well hydrated, staying well hydrated really can help with the headaches, There are a few members who are runners and into keeping fit, I'm sure they will come along and share their own experiences with you, although we always say make sure you take advice from the people who are treating you before doing any exercise. The recovery road can be a bit bumpy at times, fatigue is one of the side effects, listen to your body and your brain and if you are tired, try to rest, as both your body and your brain have suffered this trauma and they both need time to recover. Anyway try to be kind to yourself, I wish you continued improvement as you go along with your recovery journey. You can also pop into the Green Room where there is lots of daily banter, you have come to a great place for help and support and you will make a lot of friends as you go along, look forward to hearing more from you. Love Michelle xx
  3. Hi Charming, Welcome to BTG, sorry to hear that you suffered SAH, sounds like you are doing ok, it is still early days for you and you seem to have got back to your normal routine pretty quickly, fatigue is a very common side effect of having a bleed on your brain, try to make sure you stay well hydrated as this can help with the headaches. Taking things easy and getting plenty of rest is important early on in recovery, if you are overdoing things your body and your brain have their own way of letting you know that they have had enough. Listen to them and when you feel tired take some rest. My SAH happened in the bathroom too, I was also alone when it happened, by the time my partner came back from walking our little dog, I was unconscious. I am 5 years down the recovery road, have a few issues but I am still here, a survivor. Look forward to hearing more from you, I wish you well as you go along on your recovery journey. Love Michelle xx
  4. Hi Vicki, Welcome to BTG as we all call it, Sorry to hear you are having problems 5 years down the recovery road, You have done the right thing by seeing your GP, I still suffer with headaches, I had my SAH in 2014 too, i take paracetamol for them, like you i also suffer with migraine this has only been occurring since my bleed, unfortunately my GP won't prescribe anything for migraine for me. Strangely enough I had a couple of nose bleeds at the beginning of July where I had a bit of a headache, I actually put it down to me having a bit of hayfever and blowing my nose so much, I was at my GP this morning and he basically dismissed it when I told him about it, didn't seem particularly concerned that it had happened or maybe he was just in to much of a hurry to listen as he was running late. Headaches are a very common legacy of SAH, but anything that doesn't go away with normal painkillers or appears to be getting worse should always be checked out, I understand your worried but try not to get overly stressed about it ( easier said than done, I know ) as that could make it worse. Sometimes as well, if you are overdoing things your brain has it's own little ways of letting you know it is not coping with what you are doing, sometimes you can be stressed without showing any outward signs of it, that can also cause headaches, The other thing i would ask you, are you drinking enough fluids, water is your best friend, it really does help headaches if you make sure you are keeping yourself hydrated, I know if I don't drink enough my headaches seem to be worse, it's just a thought. Anyway I hope whatever is going on with you is dealt with quickly, so as to put your mind at rest. Look forward to hearing how you got on with your GP. Take care Love Michelle xx
  5. Happy Anni-versary Andrea, hope you can have a nice day without to much anxiety. Hope your scan goes well tomorrow and your mum will be with you every step of the way locked in your heart always. Love & Hugs Michelle xx
  6. Hi Perry, Welcome to BTG, sorry to hear that you suffered SAH, I think you will find by reading a lot of the personal stories of people who have joined this wonderful group, that a lot of us are discharged without much information about what has happened to us, I know it can be a very scary time, you are not alone, you have come to a great place for support and advice. I personally didn't have a craniotomy, I had coiling, I had my SAH in June 2014 and my follow up was November 2014, it may seem like a long time and feel like a long time but as Jess said they usually leave a while in between surgery and follow up to give you some time to recover. You will have all kinds of questions to ask them, try to make a list of everything that you would like to ask because it can get a bit overwhelming, then you can give them your list when you go in for your consultation and I am sure they will do there best to answer as many as they can. Try not to worry to much, I know it is easier said than done, just try and relax, make sure you are drinking plenty of water and make sure that when you are tired you get plenty of rest. Your brain and your body have suffered trauma and they both need to recover. Recovery can be a slow process and the recovery road can be a bit bumpy at times, listen to your body and your brain they will let you know if you are overdoing things, take things slowly and be kind to yourself. Hope you continue to recover well and you keep on improving. Love Michelle xx
  7. Congratulations Karen on your 14th Anniversary, truly an amazing lady, I just want to say a huge thank you to you, this site is an amazing place, not sure what I would do without it in my life. You have given so much to so many Karen, Here's to the next 14 years, Love & big hugs to you. Love Michelle xx
  8. Hi Sheilau, Welcome to BTG, sorry to hear you had SAH, you were very lucky to have someone call that ambulance. You have come to a great place for support and advice, lots of very friendly people here who will help you along your recovery road. That road can be a bit bumpy at times, although you do sound like you are recovering well, just try and make sure you listen to your body and your brain. When you feel tired make sure you rest, fatigue is on of the main problems after such an event. Drinking plenty of fluids and staying hydrated will help with any headaches that you might have. It is still early days in your recovery and it is normal to worry or have the fear that it will happen again, I think we as survivors have all had the fear. It does get easier as time passes, just take things slowly and don't try to rush through your recovery, it all takes time, your brain and your body have suffered this trauma and they need time to recover, if you push to hard, they will let you know you are going too quickly. It takes time finding your new normal, so be kind to yourself. I wish you well with your recovery journey. Let us know how things are going and pop into the green room, lots of banter and friendly chat goes on in there. Love Michelle xx
  9. Thanks for sharing this, it is a very interesting read and very informative.
  10. Hi Yun, Welcome to BTG, sorry to hear you had SAH, it is still early days with your recovery and the fatigue and wooshy moments are pretty much normal after such an event. You have come to a great place for help and advice, I personally didn't have clipping, my Aneurysm was coiled so I am unable to help you with your questions, there are a lot of members of BTG who have and I am sure they will come along and share their experiences with you. Look forward to hearing more from you as you go along the recovery road. Wishing you well with your recovery journey. Love Michelle xx
  11. Heather that is such fantastic news, a huge well done to Rebecca and of course to you, it is great that she has adapted her lifestyle to what is good for her, she is amazing. Great that she is going to work at the RVI, fantastic hospital, they saved my life too In 2014, hope she gets a lot of satisfaction from this new chapter in her life, you are right to be very proud of her. Sending you both best wishes as you start this next journey. Love Michelle xx
  12. Congratulations on your 4th Anni-versary, As Sami said, don't beat yourself up about the way you have been feeling, I think most of us here can empathize with you where our feelings are concerned. I think once you have found your new home and you get settled, you will start to gain a bit more confidence, don't give up on it, you still have it, just needs a little help to show it's self again. As for you & John walking this path alone ( I know what you are talking about there ) just wanted to say, you will never be alone, you have all of us here at BTG, we are with you every step of your new journey as it all unfolds, I wish you so much happiness with that new journey. As for family support, I can certainly relate to that, my sister's are exactly like yours, they don't see it, they don't understand it, so they feel that " you are better " if only that were true. Jan, there is no need to thank me, we have helped each other, it has been lovely getting to know both you and John over the last couple of years, you both have a very special place in my heart and always will, yes I will always be here for you no matter what, as I know you will always be there for me, love you lots. So here we are looking forward to your next 12 month's, new home, new adventures and definitely a new journey, I wish you well as you set out on this new life for both you and John. Sending you lots of love my very special friend. Love Michelle xx
  13. Thank you all for your lovely comments, here's to the next 12 months. Xx
  14. Mike, I love reading your posts and thank you for your lovely words. Xx
  15. Well I can't believe it is 5 years today since my head went pop, don't know where that time has gone. I do feel I am doing ok, still have my issues with memory, fatigue and the usual things but I am coping with them a lit better than I was in the beginning. This last year wasn't my best, had a few mental health issues and found myself in a situation where I was having some very dark thoughts, I won't go into detail about those thoughts as I wouldn't want to upset anyone, I immediately went to see my GP and told him how I was feeling, he arranged some help and I got through it, I had a lot going on at that time as it was coming up to 1st anniversary of my mam's death and also a lot if hassle with DWP, I think it all just got to overwhelming, but I dealt with it and came out the other side feeling a lot better. I really want to thank everyone at BTG, it is like having a second family in fact you have all been more supportive and understanding than my blood family, for that I will always be eternally grateful, it is my safe place, a place I know I can come to without being judged. I want to say a huge THANK YOU to Karen and all of her team of moderators for giving us this site, I for sure wouldn't be where I am today without it, my BTG family have been my saviour over the last 5 years and I thank you all for being there with support and encouragement, I love you all dearly. I will end this with an extra special THANK YOU for Jan, thank you for being such a very special friend Jan, I will never forget the day we first met, we were both very nervous, don't know why we were worried, we hit it off straight away, you are a beautiful person both inside and out. We made a great connection and I want to thank you for always being there for me, always at the other end of the phone when I need someone to talk to, i am truly blessed to have you in my life and even more blessed to have you as my friend, I don't think you realise how much you have helped me over the last few years, love you to bits lovely lady. I am looking forward to the next 12 months and whatever it brings, all things good I hope. Thank you everyone, love you all very much. Love Michelle xx
  16. So very sad to hear that Cassandra has passed away, such beautiful words from Neil, My thoughts are with Neil, his children, family and friends at this very sad and difficult time. Sending love & hugs to you all. X
  17. I still worry if I get headaches or strange sensations in my head, usually they occur if I have over done things or I haven't had enough water, as Jess & Louise have said, stay hydrated and rest, it does the trick for me, obviously if you feel unwell because of it, get it checked out. Hope things settle for you soon. Xx
  18. Hi Jean, Well done on your 2 years, you have come so far after going through so much, I think we all find a lot out about ourselves after these events. It is lovely to have somewhere to come when things do get tough, it's like having a second family, the only difference being that the people here at BTG can understand a lot more, Wishing you well as you continue to improve. Love Michelle xx
  19. Hi Kerry, Welcome to BTG, so sorry to hear of the problems you are experiencing. I have to agree with all that Macca has said, this needs to be assessed properly, please don't let them fob you off, it's to easy for them to assume it's Migraine, they did that with me and were going to discharge me with Migraine meds, had it not been for a young doctor deciding to do a brain scan after my symptoms worsened things would have turned out very differently for me, that young doctor's actions most definitely saved my life. As Macca said, you have been lucky so far, don't rely on that luck, you need answers, hopefully your scan will show up what the problem is and you will get the treatment you need. Let us know how you get on. Good luck Love Michelle xx
  20. Congratulations Paula on your 7 year Anni-versay, sounds like you are doing really well. Good luck with your routine check up on 5th May, Love & best wishes Michelle. X
  21. Hi Sherry, welcome to BTG as we all call it, You have come to a great place for advice and support as has already been said we are not allowed to give medical advice, but we can share with you our own stories of recovery, although we are all different with lots of different reasons behind our bleeds, a lot of what we go through is as we recover is similar. You are still early in your recovery and the advice I would give is this, try to make sure that you stay hydrated drinking plenty of water really does help with the headaches, getting plenty of rest, both your brain and your body have suffered a huge trauma and they both need lots of time to recover, listen to your body and your brain, they have a way of letting you know if you are over doing things, it usually means rest, sometimes doing the smallest of tasks can make you feel very fatigued, it is normal but if you feel like that it's time to rest up. You will find a wealth of information here, if you have any questions there is always someone who will be able to help, we are all a friendly bunch, when you feel up to it, come and join us in the Green Room, lots of friendly banter in there. Anyway I wish you well as you go along your recovery journey, hopefully as you go along you will make lots of new friends too. Love Michelle xx
  22. Hi Paula, Welcome to BTG, So sorry to hear that you had SAH, it does sound like you have had great care at The Walton Centre, You have come to a great place for support and advice although we are not allowed to give medical advice, we can help you by sharing our own experiences and hope that helps you to understand some of the things you may feel as you go along the recovery road. The fatigue is very normal, you brain and your body have been through a trauma and the smallest of tasks can make you feel very tired, try to make sure you are drinking plenty of water and staying hydrated, this really does help with any headaches you might suffer. Recovery takes time so try not to rush it, it's still early days for you, as has been said, be kind to yourself, if you try to do to much to soon your body and your brain will let you know, plenty of rest is the key thing early in your recovery, listen to your body and when you are tired make sure you rest. We also have a section here for family who are caring for the person who has suffered SAH, lots of helpful advice in that section. We will do all we can to help you and support you as you go along your recovery journey. Best wishes Love Michelle xx
  23. Hi Nikki, Welcome to BTG, sorry you have had a setback, as Tina said it could be your body's way of letting you know that you have over done things. I hope you get all the answers to all of your questions when you see your Neurologist, in the meantime the advice I would give you is to take things easy, make sure you are drinking plenty of water, most of all try to listen to your body, if you are tired make sure you rest, your brain and your body have suffered Trauma and they need lots of time to recover, don't try to push yourself to recover to quickly, have a look at the thread on here titled " A Letter from my brain " it really does make sense when you read it, The recovery road can be a little bumpy at times, up days and down days are pretty normal, just try to take things slowly. I wish you well with your recovery. Love Michelle xx
  24. Hi Norma, Just wanted to say hope all went well with your surgery yesterday, wishing you well with your recovery. Love Michelle xx
  25. Maria, sending love to you both, hope all goes well for you both. Stay strong lovely lady. Love Michelle xx
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