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Chelle C

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Everything posted by Chelle C

  1. Congratulations Andrea on your 5 year Anni- versary, it is amazing how quickly the years go by and how far you have come in that time. Wishing you well and here's to many more years of health and happiness. Love Michelle xx
  2. Sorry I ran out of thank you's Thank you to everyone for your lovely words. Xx
  3. Hi Everyone, Well here I am 6 years since my bleed, can't believe how quickly this time has passed. I think I am doing ok, still noticing small improvements, although I still have a lot of problems with fatigue and my memory I am still learning my limitations, still sometimes pushing myself beyond them and paying the price for doing so, I think we all do that sometimes. The last 12 months have been good and bad, the good being we bought a nice new caravan and had a very large new deck put on it, it's lovely, it really is my sanctuary and having it has helped so much with my recovery, I always feel so relaxed when I am there, no stress in lovely surroundings is really great medicine. The other good thing in the last 12 months was seeing Jan achieve her goal of getting on an aeroplane again, I was over the moon for her, I am aiming to do the very same for my 60th birthday 2023, I know that sounds a long way off but I want to try to save enough to spend 1 month in Lanzarote my favourite holiday destination, so that's the thinking behind it. I also finally got to meet Andrea when I made and delivered her daughter's 18th birthday cake, she really is a lovely lady and it was nice to put a face to the voice after spending so much time talking on the phone to each other. The worst thing to happen was the loss of our very precious friend Win, it really knocked me sideways when I read Sarah's post to tell us that her lovely mum had passed away so suddenly, still struggling to come to terms with it. She always made me smile and laugh out loud with her posts and her singing, she also used to tell me off for talking about the cakes I had made, I would have loved to have made a cake for Win, she will always have a special place in my heart.💔 I want to say a huge thank you to everyone at BTG for always being there, no matter what happens I know I have a place to come where I feel safe and won't be judged. Thank you so much to Karen for giving us all a place where we can feel safe and understood. Anyway here's to the next 12 months, who knows what it will bring. Thanks again everyone Love Michelle xx
  4. Hi Ggirl, Welcome to BTG as we call it, so sorry to hear that your dad has suffered SAH and is in ICU. I was not sedated after my surgery so sadly I can't comment on that, there some members who I am sure will come along and share their experiences of this with you. You have come to a great place for help, advice and support, although we can't give medical advice, we can share with you our own experiences of SAH although you will find that everyone's SAH and recovery are different, we have all taken the journey that your dad is now on. Any questions you have feel free to ask, we are here to help you to understand what may lie ahead as your dad goes along the recovery road, also to support you as you must have so many questions, it can be a very scary time for the rest of the family when they have a loved one in this position, don't be frightened to ask questions, we are a friendly bunch and where we can help, we will. If you go into the page Introduce Yourself, maybe you could tell us a little more about what happened to your dad, also tell us a little about yourself too, you will get a lot of replies by doing that, only if you want to do it though, you don't have to, it just helps us to understand your situation a little more. I would just like to wish your dad well and please take care of yourself to during this difficult time. Love Michelle xx
  5. Hi Paolo, Welcome to BTG, so sorry to hear that you suffered SAH and a stroke, you have come to a great place for support, advice and friendship. We all get it because we have been through it and although we can't give medical advice, we can share with you our stories of our recovery journey. I also had SAH and a stroke, my stroke came 6 months after my bleed, they were not sure if the 2 were connected, my stroke also affected my right side, I was fortunate only to be left with some numbness on the inside of my right foot and I still have slight weakness in my arm and leg but nothing that I can't cope with. It is good to hear that you are recovering well. Still take care as fatigue can be an after affect of SAH, drinking plenty of water and resting when you are feeling tired will really help. The fear or concern of having a rebleed is quite normal, I don't think any of us here have not had that worry, as Louise said, as time goes on it does become less of a concern. It is sometimes just nice to have somewhere to come and off load your worries and fears with people who have an understanding of what you are feeling, I will be 6 years since my SAH in June and I can honestly say that this site has been my saviour, everyone is very welcoming and friendly, it's like having a second family. I wish you well as you continue along your recovery journey. Love Michelle xx
  6. Karen I did the same, pan & wooden spoon and lots of tears too, I really hope our lovely Win heard us..... love & hugs to everyone. Xx
  7. Sarah I just can't find the words to say how shocked and totally devastated I am to hear that your wonderful mum, our wonderful Win has passed away so suddenly. Win was a beautiful person both inside and out, she was always so upbeat and full of fun, she always managed to make me smile no matter what sort of day I was having, I sing all the time now ( Winnie's orders ) she was right, it does make you happy. I used to get wrong off her because when I had baked a cake and mentioned that I had, she always wanted a piece, I would have loved to have made her a cake. Win was loved so much by us all at BTG, this is really going to take some time to come to terms with. Sending love and gentle hugs to you all at this very sad time. Love Michelle xx
  8. Hi Mat Y, Welcome to BTG as we call it, so sorry that you suffered SAH without them being able to give you a reason, sadly there are a lot of members here who had NASAH andi am sure some of them will come along and share their own experiences with you which may help to put your mind at ease a little. I suffered SAH 2014 mine was an Aneurysm, then in 2015 I was diagnosed with Tinnitus and still suffer with it, sometimes I don't notice it but during this lockdown it has been a constant white noise, not sure if it's stress or just that things are a lot quieter than normal so I am noticing it more than usual. I do have times when I am not aware of it, I do however think you learn to live with it as time goes on. You mention fatigue, this is normal it is one of the side effects of SAH, listen to your body, if you feel tired try to rest, your brain has a tendency to let you know when you are over doing things, another bit of advice is to make sure you drink lots of water as dehydration can also contribute to fatigue, it's still early days in your recovery so try to take things easy. It does get better as time goes on and you will start to notice things improving, I had a problem with finding words early on in my recovery and it did get better, I only have problems now with that if I have over done things or I am tired. Anyway I am sure you will have a few replies to your post and I wish you well as you go on with your recovery journey. Take care Love Michelle xx
  9. Congratulations on your 3 year Anni- versary Jean, you have come so far and achieved so much, it's lovely to hear that you are still noticing improvements as you travel on your recovery journey, keep on keeping on lovely lady. Love Michelle xx
  10. Gem, so sorry for the loss of your dad, my heart goes out to you and your family at this very sad & difficult time. We will always be here for you if you need us at anytime. Sending you love & hugs Love Michelle xx
  11. Daff, so sorry I am so late to this. Congratulations on your 8th anniversary, all I can say is you truly are a very special and inspirational lady, what you have been through and all that you have achieved is amazing, you give so many of us BTG'ERS hope and encouragement that things do get better, for that I will always be grateful. Sending you love & Hugs lovely lady Keep on keeping on. Love Michelle xx
  12. Hi Sally, So sorry to hear that you have had another episode of aura after not having it happen for 6 months. It is quite scary when it happens after such a long break from them. It happened to me again just before Christmas, it just came on after I had been bent down cleaning out a cupboard. Like you, I felt like my brain was being squeezed and that is the first time I have had that happen. This last one also gave me a strange tingling in my forehead which I've never had happen before. As this was during the day I just sat myself down and let it take its course. Sitting with my head back and my eyes closed seemed to help me relax. I have never up to now been woken up by one. I hope things have settled down again for you now. Love Michelle xx
  13. Hi Diane, Welcome to BTG, first of all I would like to say a big well done for your bravery in coming to this forum for help and support, as Karen said it must have taken a lot of courage to post this, but it is good that you have and I am sure you will get a lot of support from all of us here as a large number of us have and still do suffer with the affects of depression/anxiety. My bleed was due to a ruptured aneurysm and I myself have had real problems with depression and anxiety plus I was diagnosed with PTSD, which was diagnosed during my counselling sessions that I had after going to my doctor, the counselling really did help. As Karen said you do need to have a honest and frank discussion with your doctor about what is going on and how you are feeling and struggling since your bleed, they will help you and be able to put you on a path to getting the help you need. I am going to send you a PM, there will be a little marker comes up on the envelope at the top right hand side of page. You have taken the first brave step, now please try and be brave enough to speak to your doctor. Sending love & hugs Michelle. Xx
  14. Sarah, So pleased you have been given better news than you were expecting, I think I would have taken that very same option, Asking the question about it being on previous scans is a good idea, as you say if it has shown up on those and it hasn't given you any symptoms then as you say it's less likely to bother you in future. Hopefully you can relax a little now and get back to living your life with a little less stress. Love & hugs Michelle xx
  15. Thinking of you Sarah, So pleased you have someone to go with you for your appointment, hope you get all the answers you so rightly deserve. Sending love & hugs. Xx
  16. Sarah, I really hope you get all the much needed answers to all the questions you must have, it's all stress you can do without. Good Luck lovely lady. Xx
  17. My SAH was June 2014, had follow up scan November 2014 the 2015, had another 2016 and his secretary phoned me to say he was very happy with my scan as everything was stable so he wouldn't need to see me again and I wouldn't need anymore scans. She did say that if I had any concerns or was worried about anything that I just had to call her and they would make an appointment to see me. It did feel like a bit of a double edged sword at the time, relieved that all was ok but worried that no one was looking after my head.
  18. Hi Sarah, Congratulations on you 2 year Anni- versary, After all the stress of last year it is good to know that you have made some progress, it's not always easy to learn what your limitations are, it's good to know that you are finding it easier now, the headaches and fatigue do get better as with everything else to do with recovery from SAH it takes time. It's lovely that you have found BTG such a great support, I think we are all so grateful to have a place to come and to know that each and every one of us can support each other through this journey. Keep on being kind to yourself as you continue along the recovery road. Sending love and hugs to you Love Michelle. Xx
  19. Hi Ojibwe, Welcome to BTG! I am so very sorry to hear about your mom, it is very worrying time for you all and I am sure your mom is receiving the best care for her situation. We are not allowed to give medical advice but we can share with you all of our own experiences of SAH. It is still very early since your mom's event, in terms of recovery her medical team will be able to tell you better what her long term recovery could be. I know it must be very scary for you right now, but hopefully as the days and weeks go on you will see some improvements. It does take time, your mom's body and brain have suffered great trauma, they both need lots of time to recover. The reason the Doctor is telling you he is not sure how far she will go recovery wise - is because they probably don't know. Every case of SAH is very different, no two recoveries are ever the same, different severity of bleed, different areas of the brain can be affected. This could also be why she is moving a little but not seeming like she is awake, her body and brain are trying to heal. This will be very overwhelming for you, it's the shock of seeing your mom like this. It must be difficult after reading that others have woken up and been coherent, like I said earlier, no two SAH's are the same. Give it time, keep asking her medical team questions, keep talking to your mom, she will be able to hear you. There will be others who will come along and share with you there experiences also we have members who are carers who are taking care of loved ones who have suffered a SAH. We are here for you, we will all help you as you go along this journey of recovery with your mom, we will try to answer any questions that you have, just not medical. Sending both you and your mom hugs & strength to get you through this very difficult time. Love Michelle xx
  20. Hi Jenni, I have sent you a Personal Message. Xx
  21. Jenni, Where abouts in Cumbria are you, I have a static caravan in South Lakes, just outside of Grange-over-Sands.
  22. Hi Jenni, Welcome to BTG, so sorry to hear that you suffered SAH, you have come to a great place for help & support, although we are not allowed to give medical advice as non of us are qualified to do so. What we can do, is share with you our own experiences of SAH, 11 weeks is still very early in terms of recovery, I had problems with my sight after my SAH although mine was more to do with not being able to separate words, if I looked at something that was written down or tried to read a newspaper all of the words just ran together. I had an appointment with optician about 6 months after my bleed and he couldn't find anything wrong, things did settle eventually, I don't have any problems now, I do notice a bit of blurred vision if I am tired though. Give yourself time, you have to remember that there has been blood across areas of your brain, our brains don't like it because it's not supposed to be there, so it will be doing all sorts of things to try and compensate for that fact. It needs lots of time to heal after suffering such a traumatic event. I know there are other members of BTG who have had problems with their eyesight, and I'm sure they will be along to share with you their experiences, I know this is easier said than done but try not to stress to much about it because stress can actually make things feel a lot worse. Your best friends at this stage in your recovery are rest and staying hydrated. Make sure that you rest when you need to, fatigue is one of the major problems after a bleed and you will see it talked about a lot as you browse through the site. Also I would say, learn to listen to your body and your brain, they have both suffered trauma and they both have their own ways of letting you know when they have had enough. We have all been sent down a road that we would never have chosen to go down and the recovery road after it can be a bit bumpy at times. You are a survivor as we all are here at BTG. As survivors we all also know how difficult the early stages of the recovery journey can be, we are here for you and we will help you as much as we can, you will get some brilliant advice and a lot of understanding from people who have been through the same thing. Any questions you have just post them, we might not have all the answers but we will do our best. Wishing you well Jenni Love Michelle xx
  23. Sorry I missed your 20 year Anni-versary Louise, you have written a lovely post which will give us all so much hope. I would also like to say a huge Thank You to you for all the support and encouragement you have given to me over the last 5 years, you are an amazing lady. Wishing both you & Ronnie all the very best, here's to the next 20 years. Sending love and hugs to you both. Love Michelle xx
  24. Happy Anni-versary Colleen, well done on 11 years. Hope you are soon feeling better after having your tooth extracted. Love Michelle. Xx
  25. Congratulations Chris on your 4 year anniversary, sorry it's late, not been able to access BTG for a few days. Great to see you are still doing really well and enjoying life. You should be very proud of all you have achieved and all the support and encouragement you have given to everyone. All the very best for the years ahead. Love & hugs Michelle. Xx
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