Jump to content

Chelle C

Members
  • Posts

    1,765
  • Joined

  • Last visited

  • Days Won

    19

Everything posted by Chelle C

  1. Well here I am posting a day late, yesterday was my 7th Anni-versary and I had a really good day. My day started with a lovely phone call from Jan, as always it was lovely to hear from her, i had tried to call her on Monday as it was her 6th Anni-versary but didn't get to speak to her, so we had a lovely catch up yesterday and made plans for her and John to come to see us at some point, we missed out on that last year because of Covid, so it will be nice to get together again. I had a really nice day, i had a lovely walk around a little village called Cartmel, not far from our holiday park, in 8 years of coming to The Lake District I have never been there, i was in the company of my lovely friend Mary and my little Molly. There is a beautiful Priory in the village and I had a lovely walk around inside of it, i did sit in quiet contemplation for a little while and said a very big Thank You to whoever was watching over me on the 8th June 2014, I am truly grateful that they were, i then lit a candle in gratitude for my life and in memory of my mam, which was a little emotional. Then we had a lovely walk around the shops, had a nice cold drink in the village Square, then we headed home. It was just lovely. The last year has been a bit strange, what with Covid going on and everything. The worst parts of the last 12 months were losing 2 very special people who both helped me so much when I first joined BTG. Both Win & Macca were in my thoughts yesterday as I sat quietly in that church, then of course my dad being diagnosed with prostate cancer, that came as a big shock, he is however doing quite well at the moment, although i worry about him, I am not stressing to much. As for me, well i have started walking to try and get myself a little fitter, over the winter lockdown I have to admit i was struggling a bit, i think the dark days made it worse, i only walk for 1 hour every night, it has had a massive impact on the way i feel, both mentally and physically, my blood pressure has come down considerably from 157/75 to 120/ 65 which is about where my GP wanted it, so i am over the moon with that. I have also taken more control of things in my relationship with Verdun, some of you are aware of things that have gone on in that area of my life, well I have stepped up and I seem to be making good progress in not allowing myself to be bullied and abused anymore, still a little bit to do yet, but i feel more able to stand up for myself, i am determined to get things back on a level ground and for the first time in a long time, I feel I am getting my confidence back and some self respect along with it, which can only be a goid thing. I know i haven't visited BTG much in the last couple of months, i have made the decision that if I am going to moan, I won't visit, I feel like i have done a lot of that in the last year, so i thought it would be good to give you all a rest from me. I have been looking in, just not posting much. The one big thing I do want to say is this, Thank you Karen, i know I say this every year but I wouldn't be where I am today if it wasn't for this wonderful safe haven you created for us all to come to, i found this site at a time when I still felt like i was not going to make it, with the support and help that I received when I joined, I am where I am today, I will be forever eternally grateful to you and every member of this group, for every bit of advice, for every note of concern and for the empathy, love and support that we all have for each other. I love my BTG family, I have gained 2 very special relationships from this forum, Jan and I are especially very close, love that lady to bits, Andrea has become a very close friend too, i am blessed to have them both in my life, just as I feel blessed to have you all in my life, my world would be a much sadder place without you all. Thank you, thank you, thank you for always being there, you have all helped me through so much, i will be forever grateful to you all. Here's looking forward to the next 12 months, let's see what it brings, hopefully everything good. Love Michelle. Xx😘😘😘🙏❤
  2. Hi Cindy, Welcome to BTG as we call it, it sounds like you have been having an awful time over the last 8 years. You have come to a great place for help, support and advice, we can't give medical advice as we are not medically trained, what we can do is tell you of our own experiences. I'm sure you will find some very helpful advice by reading through some of the threads on here. It must have been a very difficult time for you, but it sounds like on the medical side of things, they have been very thorough. I'm sure lots of members will be along to welcome you to the site and maybe give some advice. What I will say is, drinking lots of fluids can really help to relieve headaches, i think most of us here were given that advice after our bleed, plenty of rest also. You can also join in the banter in the Green Room, if you want to of course. Take care Love Michelle xx
  3. Hi again, I forgot to mention that last year I had a severe bout of dizziness, a lot worse than my normal dizziness, so much so I had to go back to using my crutches because I was so afraid of falling over. My GP ran blood tests and they came back with nothing, he did say it could be one of 3 things, Labrynthitis, Meniere's disease or Vertigo, but couldn't be certain, i didn't have the nausea feeling that you have had, but yes the dizziness was quite debilitating and quite scary, never during either of my consultations did he mention to me that these conditions could be linked to the onset of another stroke, mind you i am pleased that he didn't, i would have worried myself sick at the thought that maybe that was about to happen to me again. My partner reminded me about this event last year, my memory was affected by my bleed, so please forgive me for that. I really hope that your symptoms improve very soon and that you come through this without anything such as a TIA or Stroke occurring. Keep in touch and let us know how you and your Mum are doing. As Jess has said an appointment for a scan & to see your Neurologist would probably be a good idea. Take care & wishing you well Love Michelle xx
  4. Hi, I suffered SAH in June 2014, spent 11 days in hospital. Fast forward to December 2014, I got out of bed with an awful dull pain behind my eye, i was still suffering with a lot of dizziness, so i wouldn't really have known if it was Vertigo or not, i would imagine not as I wasn't suffering with any nausea. I took pain killers for the pain behind my eye and thought that would cure it. My partner and I went out and about looking for a new car and I was aware that this pain was not subsiding, if anything it seemed to be getting worse. We arrived home and shortly after i had this overwhelming feeling of nausea, probably about an hour later, i had numbness in the right side of my face, my right arm and leg. I was taken by ambulance to hospital, i was diagnosed later that day with a TIA and released from hospital, just over 1 week later I finally got to see the stroke team, although my face, arm and leg had got the feeling back, i was left with numbness on the inside of my right foot, because of this, they told me that I had infact had a stroke, not a TIA as was originally diagnosed. I have to say there is no family history of strokes or vertigo. If you are very worried about this, i would say, speak to your GP, i would imagine at of people suffer with Vertigo but don't necessarily go on to have a TIA or stroke. When I had my SAH, I wanted to know everything about what had happened to me, i was using the Internet, i was given some very good advice from some wonderful members on this forum. That advice was not to use Dr Google, although it can be informative, it can scare the life out of you, the information given on Google is always the worst case scenario, although you may have symptoms or be suffering with Vertigo, it doesn't necessarily mean that it will lead you to have a stroke. We are not medically trained so we can not give medical advice, what i would say is please speak to your doctor, if you are worried about this, they will be able to give you the medical advice needed and probably put your mind at ease. I'm not sure that this post will have been helpful to you, i hope it has helped a little. Take care Love Michelle xx
  5. In Loving Memory of our wonderful Winnie, Can't quite believe that 1 year has passed so very quickly Win, still find it hard to believe that you are not with us anymore, still come to BTG expecting to see you here. I miss you so much lovely lady, you have left a huge void here at BTG. Hope you are singing with your Angels. Sending lots of love to you in heaven Win, rest peacefully. 😪💔 Forever in my heart. Love Michelle xx Thinking of Al & Sarah today, sending gentle hugs to you both. Xx❤
  6. Hi Daniel, Welcome to BTG as we call it, so sorry to hear that you suffered SAH with no cause. I can imagine it being very frustrating, not knowing why or what caused your event to happen. I think it will come under the title of NASAH, which means it wasn't due to a ruptured aneurysm, if i am wrong, i am sure someone will correct me. You have come to a great place for advice and support, i had SAH due to ruptured aneurysm in June 2014, this group has been my saviour, i am sure you will find it will be yours too. It's very early days in your recovery, try not to push yourself to hard, make sure you rest when you need to and drink lots of fluids, staying hydrated really is important, it will help with headaches. You brain and your body have suffered trauma, try to listen to them both, they will both let you know if you are pushing them to hard, they need time to heal and recover, be kind to them and yourself. I'm sure there will be many questions that you will have, don't be afraid to ask them, we have all been where you are now and we understand the fears and anxiety that go with early recovery. I would just like to wish you well as you set out on your recovery journey, the recovery road can be a bit bumpy at times, we are here for you, please don't ever feel like you are alone. Best wishes Michelle xx
  7. Hi Jean, Congratulations on your 4th anni-versary, You certainly have come a long way since your early days, you have a great outlook on life and you are determined to fill your life with good things. It is lovely that you have a new Grandson on the way and a lovely wedding to plan, all things that make life so worthwhile. I love reading your posts and thank you for being such a kind and caring lady. I hope you had a lovely day celebrating with your family. Love & hugs Michelle xx
  8. Congratulations Daff on your 9th Anniversary, over the last 6 and a bit years I have loved reading your posts and taken so much from the strength and courage you have shown, you always have a great positive out look on life after SAH, i wish I could be like you. I thank you for all of the support you have given me over these years. Keep on keeping on lovely lady, I hope you had a lovely day celebrating all that you have achieved. Love & hugs Michelle. Xx
  9. I had Pfizer vaccine 11 days ago and I had all of the side effects, headache, sore arm and quite bad muscle pain in arms and legs, but if there is a side effect to a medication, i am sure to get it. As Super Mario said, everyone is different, you should speak to your doctor or nurse about any concerns, they will talk you through it and hopefully put your mind at rest. I am speaking to my GP on Monday, just to put my mind at rest as I still don't feel 100% back to normal. Xx
  10. So pleased all is ok for you Sallios. Time to relax now and enjoy life. Take care Love Michelle xx
  11. Welcome to BTG, You will as you have discovered find a wealth of information here, lots of people who have gone through and are going through, what you are experiencing. There is always someone here who can answer any questions you may have, although we can't give medical advice as non of us are qualified to do so. Try to make sure that you stay well hydrated and rest when you need to, it all helps to alleviate any headaches and helps with the fatigue. I wish you well as you continue on your recovery journey, be kind to yourself. Love Michelle. Xx
  12. Sarah, that is wonderful news, what a huge relief that must be for you. You deserve to be ecstatic after all these months of not knowing what was going to happen. Really pleased for you. Xx
  13. Congratulations Super Mario, I am so sorry I missed your 17th anniversary. It's great that you are still living life to the best of your ability. I know you will have missed your lovely holidays over this last 12 months, hopefully that will change in the coming year. You have always been a great support to me over the last 6 and a bit years, you have and will inspire others to see that you can still have a life after SAH. I hope you had a good day. Love Michelle xx
  14. Congratulations Claire on you 6th anniversary, you have achieved so much since your bleed, you should be very proud. You have a wonderful positive attitude and have overcome some challenging times where your working life was concerned, well done also on keeping up with your running, you are an inspiration to us all and will be to the many who come along in the future. I hope you enjoyed your run this morning and the rest of your special day. You are truly amazing. Love Michelle xx
  15. Hi ann_calgary I am so pleased that your MRI looked good, that must be a huge weight off your mind. It sounds like your appointment went really well, with your doctor being straight and up front with you must have given you some peace of mind. It also must mean that everything is stable if he feels that you don't need to have the stent fitted at the moment. It's good that you came away feeling at peace with what he had to say. Take care & stay safe Love Michelle xx
  16. Hi Everyone, Today I had an appointment with my Optician, my normal 2 year check up. For just over a week I have been having a problem with my left eye, the only way I can describe it is to say it has felt like i am looking through a very fine net curtain, probably sounds a bit odd, Anyway i mentioned it to him today, so he set about investigating what it could possibly be, his first conclusion was the start of a cataract, which he said at the moment didn't need to be dealt with. He then decided to look a little more closely at my eye, putting drops in, the drops didn't cling to what he thought was the cataract as it normally would, he was a little confused at this point, so out came another piece of equipment and another horrid bright light, which was very uncomfortable to my eye. He discovered at this point that it wasn't a cataract, infact it was a problem with my Cornea, he did give it a name, which i can't remember, but he did say what I have is very unusual, he has seen this problem at the front of the cornea, in his 37 years as an Optician he has never seen it at both the front and the back of the cornea. Anyway to cut a long story short, he will be advising my GP of this problem and to let them decide if I should be referred for further investigation. Apparently this is usually connected to trauma, such as substance being splashed in the eyes and can also be connected to SAH, that he said could be why it has affected both front and back, he can't be certain but because I haven't suffered any actual trauma to my eye from an accident, he feels that the damage was probably caused by the bleed. I did ask why had I suddenly got this net curtain feeling, he said it has probably been a gradual worsening, i also asked what should I expect to happen, he feels that an eye hospital will weigh up the advantages or disadvantages of doing anything, as I have sight in the eye, although a little blury they probably would leave well alone, as it's a complex operation to correct it, using a donor Cornea and the rejection levels are apparently very high, which would mean I would lose the sight in that eye altogether, not something I even want to think about. I have no pain in my eye, it is more of an annoying thing, keep wanting to rub my eye to get rid of it, i have learned to cope with other physical issues, i am sure I will learn to cope with this too. I will be monitored every 12 months instead of the usual 2 years, so that they can keep a check on it, any problems in between and he has told me go go straight back for a check up, so can't really ask for more than that. I just wish I could recall the name of the condition. Love Michelle xx
  17. Aww Sarah, what a day you had. So glad you were ok after your sliding car incident and I really do hope they don't keep you waiting to long for your results. Love & hugs Michelle xx
  18. When I had my SAH, I had told my partner I was going to the loo, then jump in the shower, nearly 7 years later and I still can't say that sentence out loud, I even have to stop myself from thinking about those to scenarios together, I get very panicked by it. When I first came out of hospital, my partner had to stand outside the bathroom door while i used the loo, i was terrified of that bathroom, i used to have a surge of panic everything I needed to go in it, especially if I was alone in the house, i was alone when my SAH happened, my partner was walking our dog at the time. Things had been great until we recently had our bathroom renovated, similar colour scheme to our last house and sadly it triggered my panic again, i have however managed to cope with it better than I did before, it has got better. As Sami said, it never goes away but I can cope with it a lot easier than before. It does get better Love Michelle xx
  19. Hi frmertd, I can say I understand some of what you are saying, when i had my SAH in 2014, my partner was my rock at first, for the first few months, when I had my follow up appointment 6 months after SAH, things changed quite dramatically when we were told I should give myself at least a 2 year recovery window, even then it could take a lot longer than that. He actually said to me the doctor didn't mean it would literally take that long. Well I just said, we would just have to take each day as it came. My family especially my oldest sister was of the attitude, " Michelle, you've only had a blood clot on your brain, i have known people who have had that happen to them and they are perfectly fine now " now that hurt, because when I tried to explain the difference to her and the fact that I nearly died, she was very dismissive. My family don't understand even to this day, the after affects of that bleed, even my partner, if I am having a bad day and I still do have them, I tend not to tell him, i just can't stand to see him rolling his eyes as if to say " here we go again " I just try to deal with it on my own and I usually manage to do that. I try to live my life for me now, our relationship has suffered, more so since 2017 when he physically attacked me, i will say, we worked through that and thankfully came out the other side, he knows it can never ever happen again, if it did, I would leave, no hesitation. I also lost my mum very suddenly in 2017 which had a huge impact on me, but i made her a promise before she passed away and I am keeping that promise. I think sometimes it is easier for family to pretend it didn't happen, than to try to understand that it did and understand the affects that it had on you. I am sorry that your marriage ended, you do sound like it was the best decision for you, as for family, I suppose like you to some degree, I felt like I had been abandoned and I still do. It's not a nice feeling, at the end of the day, they chose not to support or understand, as one of our members Macca once said to me " it is they who have the problem, not you " and that is very true. I wish you well. Love Michelle xx
  20. Hi Selah Welcome to BTG as we call it, so sorry to hear that you suffered SAH, but you have found a great place for help, support and reassurance. We have all walked this road that you now find yourself on and we are all here to help you on your recovery journey. We cannot give medical advice as non of are qualified to do so, what we can share with you is our own experience of recovery, not forgetting of course that no two bleeds are the same, just as everyone's recovery is different. It can be quite a scary time at the beginning, not knowing if aches and pains are normal or not. Your brain and your body have suffered trauma, it takes time for them both to recover, try not to over do things this early in your recovery, take things very slowly, fatigue and headaches are pretty much normal, we have all suffered with these, they do seem to be part and parcel of SAH, try to make sure you stay well hydrated, this really does help with any headaches that you may have, i found if I wasn't drinking enough, my headaches were worse, I am 6 years down the line and i still make sure that I drink enough. Also rest as much as you can, if you feel like sleeping, do it, i slept quite a lot in the early months of my recovery. Try and take things easy, if you over do things your body and your brain will let hou know, even now if I over do things, I usually have a few days where I have to rest and recover from it, so try to listen to your body and your brain, they will let you know if you are pushing them to hard. If you go into the Introduce Yourself thread, you can give us a bit more information about you have family supporting you through this, you will give others a better idea of your situation. You can also pop into the Green Room, that's where all the daily banter goes on. Anyway i will just say, i would like to wish you well as you go along your recovery journey, I'm sure there will be a lot more members along to share their experiences with you. Take care Love Michelle. Xx
  21. Hi Suzanne, Congratulations on your 1st anni-versary as has been said the fist one is always the hardest, i remember my first, it was a very emotional day. It does get easier as each one comes around, i am 6 years now and I celebrate that date now, we survived and are here to tell the tale. Well done on quitting the cigarettes, I tried and failed miserably. Wishing you all the very best as you continue your recovery journey. Love Michelle. Xx
  22. Hi Carolyn Some great advice from everyone, i can only agree with what everyone has said. Slow and steady is the way to go with this, your body and your brain have suffered great trauma and they really do need lots of time to recover, i am 6 years down the line and I remember spending much of my first 2 years sleeping and doing things at a very slow pace. I did try and push myself but I did suffer for doing that, i was given some excellent advice when I first joined BTG, that advice was to listen to your body and your brain, they will let you know when you are doing to much, rest when you need to, make sure you are staying well hydrated and it really was great advice. I also suffered with anxiety, the fear that every little twinge or ache in my head could possibly be something going wrong, mixed also with the fear that is was going to happen again all added to my anxiety, then I found out that what I was feeling was pretty much what everyone at BTG had also felt during the early part of their recovery, which helped a lot, knowing it wasn't just me. I did see my GP and like Karen, i was put on a beta blocker which really did help, I was also assessed by a neuro psychologist just over 1 year ago which I found helpful also. As Karen has said don't suffer in silence, push your GP, they are there to help. Things do get easier as time goes on, it is a slow healing process, the recovery road can be a bit bumpy at times, we have all travelled that road and we are here for you. Wishing you well as you continue your recovery journey Carolyn. Love Michelle xx
  23. Karen, your post has brought tears to me, I can only echo what Sami has said, Macca was a kind, caring, gentle person, with a heart to match. What a wonderful gesture from his family. Xx
  24. Hi Janeece, Congratulations on your 1st anni-versary, the first year is always the toughest, things do get better with time. I think the anxiety and panic attacks are quite normal at this point in your recovery as it is still quite early days in recovery terms. I know what you mean too about head massage, it is as Sami said, a good way to describe it. Try to make sure you are staying hydrated, it really does help with the headaches, i am 6 years down the recovery road and if I don't drink enough, it really does affect my head. Well done and reaching this first milestone and good luck as you continue on your recovery journey. Love Michelle xx Daffodil, I also liked your advice using STOP, i will be putting that to good use in future. Thank you. Xx
  25. Congratulations on your 21st anni-versary Louise, You are an inspiration to so many at BTG, always there with support and compassion, it has been lovely getting to know you over the last 5 years, thank you for always being there with a listening ear and friendly advice. Sending you lots of love & hugs Michelle xx
×
×
  • Create New...