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Chelle C

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Everything posted by Chelle C

  1. Hi Sarah, Congratulations on you 2 year Anni- versary, After all the stress of last year it is good to know that you have made some progress, it's not always easy to learn what your limitations are, it's good to know that you are finding it easier now, the headaches and fatigue do get better as with everything else to do with recovery from SAH it takes time. It's lovely that you have found BTG such a great support, I think we are all so grateful to have a place to come and to know that each and every one of us can support each other through this journey. Keep on being kind to yourself as you continue along the recovery road. Sending love and hugs to you Love Michelle. Xx
  2. Hi Ojibwe, Welcome to BTG! I am so very sorry to hear about your mom, it is very worrying time for you all and I am sure your mom is receiving the best care for her situation. We are not allowed to give medical advice but we can share with you all of our own experiences of SAH. It is still very early since your mom's event, in terms of recovery her medical team will be able to tell you better what her long term recovery could be. I know it must be very scary for you right now, but hopefully as the days and weeks go on you will see some improvements. It does take time, your mom's body and brain have suffered great trauma, they both need lots of time to recover. The reason the Doctor is telling you he is not sure how far she will go recovery wise - is because they probably don't know. Every case of SAH is very different, no two recoveries are ever the same, different severity of bleed, different areas of the brain can be affected. This could also be why she is moving a little but not seeming like she is awake, her body and brain are trying to heal. This will be very overwhelming for you, it's the shock of seeing your mom like this. It must be difficult after reading that others have woken up and been coherent, like I said earlier, no two SAH's are the same. Give it time, keep asking her medical team questions, keep talking to your mom, she will be able to hear you. There will be others who will come along and share with you there experiences also we have members who are carers who are taking care of loved ones who have suffered a SAH. We are here for you, we will all help you as you go along this journey of recovery with your mom, we will try to answer any questions that you have, just not medical. Sending both you and your mom hugs & strength to get you through this very difficult time. Love Michelle xx
  3. Hi Jenni, I have sent you a Personal Message. Xx
  4. Jenni, Where abouts in Cumbria are you, I have a static caravan in South Lakes, just outside of Grange-over-Sands.
  5. Hi Jenni, Welcome to BTG, so sorry to hear that you suffered SAH, you have come to a great place for help & support, although we are not allowed to give medical advice as non of us are qualified to do so. What we can do, is share with you our own experiences of SAH, 11 weeks is still very early in terms of recovery, I had problems with my sight after my SAH although mine was more to do with not being able to separate words, if I looked at something that was written down or tried to read a newspaper all of the words just ran together. I had an appointment with optician about 6 months after my bleed and he couldn't find anything wrong, things did settle eventually, I don't have any problems now, I do notice a bit of blurred vision if I am tired though. Give yourself time, you have to remember that there has been blood across areas of your brain, our brains don't like it because it's not supposed to be there, so it will be doing all sorts of things to try and compensate for that fact. It needs lots of time to heal after suffering such a traumatic event. I know there are other members of BTG who have had problems with their eyesight, and I'm sure they will be along to share with you their experiences, I know this is easier said than done but try not to stress to much about it because stress can actually make things feel a lot worse. Your best friends at this stage in your recovery are rest and staying hydrated. Make sure that you rest when you need to, fatigue is one of the major problems after a bleed and you will see it talked about a lot as you browse through the site. Also I would say, learn to listen to your body and your brain, they have both suffered trauma and they both have their own ways of letting you know when they have had enough. We have all been sent down a road that we would never have chosen to go down and the recovery road after it can be a bit bumpy at times. You are a survivor as we all are here at BTG. As survivors we all also know how difficult the early stages of the recovery journey can be, we are here for you and we will help you as much as we can, you will get some brilliant advice and a lot of understanding from people who have been through the same thing. Any questions you have just post them, we might not have all the answers but we will do our best. Wishing you well Jenni Love Michelle xx
  6. Sorry I missed your 20 year Anni-versary Louise, you have written a lovely post which will give us all so much hope. I would also like to say a huge Thank You to you for all the support and encouragement you have given to me over the last 5 years, you are an amazing lady. Wishing both you & Ronnie all the very best, here's to the next 20 years. Sending love and hugs to you both. Love Michelle xx
  7. Happy Anni-versary Colleen, well done on 11 years. Hope you are soon feeling better after having your tooth extracted. Love Michelle. Xx
  8. Congratulations Chris on your 4 year anniversary, sorry it's late, not been able to access BTG for a few days. Great to see you are still doing really well and enjoying life. You should be very proud of all you have achieved and all the support and encouragement you have given to everyone. All the very best for the years ahead. Love & hugs Michelle. Xx
  9. Hi Sally, I too have suffered with auras, I am 5 years since my SAH and they started about 2 years ago, it really scared me when it first happened as i suffered flashing lights when my bleed happened, i was in a panic thinking it was happening again. I went to see my GP and he explained it as migraine, panic over, he didn't prescribe me with any medication and asked me to monitor how often it happened, I have only had 2 or 3 episodes, I also don't get a headache and my zig zag is very bright colours, usually lasts about 10 to 15 minutes then goes away, it still worries me when it happens but I try to stay calm in case I make it worse. I do hope you get your appointment sorted and manage to talk to someone very soon. Good luck Love Michelle xx
  10. Hi Sarah, So sorry that you are in this position, I really don't know what to say. I would certainly agree with what Claire said, your Neuro team have kept you safe for all these years, trust them, as Claire said they only have your best interests at heart, it must be such a difficult thing to have to deal with. Sending you a huge hug lovely lady, whatever you decide we will all be here for you. Love Michelle xx
  11. Congratulations Ami, huge achievement for you, you deserve to be very proud. Well done you. Xx
  12. Hi Von, Welcome to BTG as we call it, sorry to hear about your stroke, you have come to a great place for help and advice. It is still very early in your recovery and fatigue us one of the side effects that we all suffer after a bleed, memory can also be badly affected at first, there are some members of BTG who have problems with their sight, I'm sure someone will come along and share their experiences with you, Try to be kind to yourself, recovery takes time, your body and your brain have suffered, they both need time to recover, try and make sure that you rest when you feel tired, sometimes in early recovery the smallest of tasks can wipe you out, also try to stay well hydrated as this will help with any headaches that you might have. I think we have all had experience of people saying " you look fine " they can't see it, so you must be OK, try not to stress to much about other people's comments, you know what happened to you, not all strokes have visual signs, I had SAH June 2014 then suffered a stroke December 2014, I have no visual signs of that stroke, but it did happen. You could try explaining it to people, if they don't understand then let that be their problem, you explained it. I wish you all the very best as you go along the recovery road, it can be a bit of a bumpy road, don't give up hope, there will be light at the end of this tunnel, it just takes time to get there. Take care Love Michelle xx
  13. Hi Ben, Welcome to BTG as we call it, So sorry to hear that you suffered SAH, you will find a wealth of information here and we are all a big friendly bunch of people, it is also a nice feeling to know you are not alone after such an event. We are not allowed to give medical advice as non of us are qualified to do so, we can however share with you information about our own experiences. It is still early days for recovery wise that is, try not to push yourself to hard, make sure you get plenty of rest and stay well hydrated, staying well hydrated really can help with the headaches, There are a few members who are runners and into keeping fit, I'm sure they will come along and share their own experiences with you, although we always say make sure you take advice from the people who are treating you before doing any exercise. The recovery road can be a bit bumpy at times, fatigue is one of the side effects, listen to your body and your brain and if you are tired, try to rest, as both your body and your brain have suffered this trauma and they both need time to recover. Anyway try to be kind to yourself, I wish you continued improvement as you go along with your recovery journey. You can also pop into the Green Room where there is lots of daily banter, you have come to a great place for help and support and you will make a lot of friends as you go along, look forward to hearing more from you. Love Michelle xx
  14. Hi Charming, Welcome to BTG, sorry to hear that you suffered SAH, sounds like you are doing ok, it is still early days for you and you seem to have got back to your normal routine pretty quickly, fatigue is a very common side effect of having a bleed on your brain, try to make sure you stay well hydrated as this can help with the headaches. Taking things easy and getting plenty of rest is important early on in recovery, if you are overdoing things your body and your brain have their own way of letting you know that they have had enough. Listen to them and when you feel tired take some rest. My SAH happened in the bathroom too, I was also alone when it happened, by the time my partner came back from walking our little dog, I was unconscious. I am 5 years down the recovery road, have a few issues but I am still here, a survivor. Look forward to hearing more from you, I wish you well as you go along on your recovery journey. Love Michelle xx
  15. Hi Vicki, Welcome to BTG as we all call it, Sorry to hear you are having problems 5 years down the recovery road, You have done the right thing by seeing your GP, I still suffer with headaches, I had my SAH in 2014 too, i take paracetamol for them, like you i also suffer with migraine this has only been occurring since my bleed, unfortunately my GP won't prescribe anything for migraine for me. Strangely enough I had a couple of nose bleeds at the beginning of July where I had a bit of a headache, I actually put it down to me having a bit of hayfever and blowing my nose so much, I was at my GP this morning and he basically dismissed it when I told him about it, didn't seem particularly concerned that it had happened or maybe he was just in to much of a hurry to listen as he was running late. Headaches are a very common legacy of SAH, but anything that doesn't go away with normal painkillers or appears to be getting worse should always be checked out, I understand your worried but try not to get overly stressed about it ( easier said than done, I know ) as that could make it worse. Sometimes as well, if you are overdoing things your brain has it's own little ways of letting you know it is not coping with what you are doing, sometimes you can be stressed without showing any outward signs of it, that can also cause headaches, The other thing i would ask you, are you drinking enough fluids, water is your best friend, it really does help headaches if you make sure you are keeping yourself hydrated, I know if I don't drink enough my headaches seem to be worse, it's just a thought. Anyway I hope whatever is going on with you is dealt with quickly, so as to put your mind at rest. Look forward to hearing how you got on with your GP. Take care Love Michelle xx
  16. Happy Anni-versary Andrea, hope you can have a nice day without to much anxiety. Hope your scan goes well tomorrow and your mum will be with you every step of the way locked in your heart always. Love & Hugs Michelle xx
  17. Hi Perry, Welcome to BTG, sorry to hear that you suffered SAH, I think you will find by reading a lot of the personal stories of people who have joined this wonderful group, that a lot of us are discharged without much information about what has happened to us, I know it can be a very scary time, you are not alone, you have come to a great place for support and advice. I personally didn't have a craniotomy, I had coiling, I had my SAH in June 2014 and my follow up was November 2014, it may seem like a long time and feel like a long time but as Jess said they usually leave a while in between surgery and follow up to give you some time to recover. You will have all kinds of questions to ask them, try to make a list of everything that you would like to ask because it can get a bit overwhelming, then you can give them your list when you go in for your consultation and I am sure they will do there best to answer as many as they can. Try not to worry to much, I know it is easier said than done, just try and relax, make sure you are drinking plenty of water and make sure that when you are tired you get plenty of rest. Your brain and your body have suffered trauma and they both need to recover. Recovery can be a slow process and the recovery road can be a bit bumpy at times, listen to your body and your brain they will let you know if you are overdoing things, take things slowly and be kind to yourself. Hope you continue to recover well and you keep on improving. Love Michelle xx
  18. Congratulations Karen on your 14th Anniversary, truly an amazing lady, I just want to say a huge thank you to you, this site is an amazing place, not sure what I would do without it in my life. You have given so much to so many Karen, Here's to the next 14 years, Love & big hugs to you. Love Michelle xx
  19. Hi Sheilau, Welcome to BTG, sorry to hear you had SAH, you were very lucky to have someone call that ambulance. You have come to a great place for support and advice, lots of very friendly people here who will help you along your recovery road. That road can be a bit bumpy at times, although you do sound like you are recovering well, just try and make sure you listen to your body and your brain. When you feel tired make sure you rest, fatigue is on of the main problems after such an event. Drinking plenty of fluids and staying hydrated will help with any headaches that you might have. It is still early days in your recovery and it is normal to worry or have the fear that it will happen again, I think we as survivors have all had the fear. It does get easier as time passes, just take things slowly and don't try to rush through your recovery, it all takes time, your brain and your body have suffered this trauma and they need time to recover, if you push to hard, they will let you know you are going too quickly. It takes time finding your new normal, so be kind to yourself. I wish you well with your recovery journey. Let us know how things are going and pop into the green room, lots of banter and friendly chat goes on in there. Love Michelle xx
  20. Thanks for sharing this, it is a very interesting read and very informative.
  21. Hi Yun, Welcome to BTG, sorry to hear you had SAH, it is still early days with your recovery and the fatigue and wooshy moments are pretty much normal after such an event. You have come to a great place for help and advice, I personally didn't have clipping, my Aneurysm was coiled so I am unable to help you with your questions, there are a lot of members of BTG who have and I am sure they will come along and share their experiences with you. Look forward to hearing more from you as you go along the recovery road. Wishing you well with your recovery journey. Love Michelle xx
  22. Heather that is such fantastic news, a huge well done to Rebecca and of course to you, it is great that she has adapted her lifestyle to what is good for her, she is amazing. Great that she is going to work at the RVI, fantastic hospital, they saved my life too In 2014, hope she gets a lot of satisfaction from this new chapter in her life, you are right to be very proud of her. Sending you both best wishes as you start this next journey. Love Michelle xx
  23. Congratulations on your 4th Anni-versary, As Sami said, don't beat yourself up about the way you have been feeling, I think most of us here can empathize with you where our feelings are concerned. I think once you have found your new home and you get settled, you will start to gain a bit more confidence, don't give up on it, you still have it, just needs a little help to show it's self again. As for you & John walking this path alone ( I know what you are talking about there ) just wanted to say, you will never be alone, you have all of us here at BTG, we are with you every step of your new journey as it all unfolds, I wish you so much happiness with that new journey. As for family support, I can certainly relate to that, my sister's are exactly like yours, they don't see it, they don't understand it, so they feel that " you are better " if only that were true. Jan, there is no need to thank me, we have helped each other, it has been lovely getting to know both you and John over the last couple of years, you both have a very special place in my heart and always will, yes I will always be here for you no matter what, as I know you will always be there for me, love you lots. So here we are looking forward to your next 12 month's, new home, new adventures and definitely a new journey, I wish you well as you set out on this new life for both you and John. Sending you lots of love my very special friend. Love Michelle xx
  24. Thank you all for your lovely comments, here's to the next 12 months. Xx
  25. Mike, I love reading your posts and thank you for your lovely words. Xx
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