KelBel Posted July 11, 2014 Share Posted July 11, 2014 Hi everyone I felt the need to come back on here after receiving some news this week from the hospital I was coiled at 4.5 years ago. I had a follow up MRA on 8th March this year and then had a follow up appointment with a Neuro consultant 19th March. I have been waiting since then to hear when they might repeat the MRA. In my mind, as there has been no change to my coiled PCOM aneurysm I had assumed I might get scanned again in about 3 to 5 years time... When I was at my appointment on 19th March I happened to notice an email on the consultants PC that was about me (attention to detail or just nosey...) and it mentioned that the "ICA is less conspicuous now"... I naturally asked what that related to and the consultant calmly advised that it was nothing to worry about, it is just a very small 'blister' in my brain that they have been keeping an eye on (what the hell???) and that it cannot cause another SAH so it is nothing to worry about. I left feeling a little unsure about this explanation, as in my mind a 'blister' could also mean an aneurysm!? But I tried to trust the consultants judgement. On Weds this week (08/07/14) I finally received a follow up letter from my appointment in March! (It has never taken this long before...). It reads, and I quote; 1. "In Decemeber 2009 she suffered grade 1 subarachnoid hemorrhage and underwent coiling of a right PCOM. She is also known with a small cavernous ICA aneurysm" 2. "the patient has been well and has stopped smoking" 1. The spelling and grammar is atrocious! Also they are now telling me that this ICA is in fact an aneurysm!! I specifically asked at the appointment what that meant and he specifically called it a 'blister'. He could have actually explained then that it is another aneurysm. I would possibly not be quite so stressed about it now! 2. That sounds like I have recently been smoking but have recently given up. Fact is I have not smoked since January 2007, which is actually 3 years before I even had my SAH in December 2009! I have called the Neuro dept today and spoken to a secretary who was going to email my specific Neuro consultant (not the guy I saw in March as I tend to see whoever is available, I have seen my Neuro consultant once, 3 yrs ago). The secretary was really good and completely understood my concerns and she hoped to get an answer today for me but I did not hear anything so I am hoping to get an answer on Monday now. The letter does state that following their review they have decided to scan me again in 2 years, so I guess this 'small cavernous ICA aneurysm' is not a problem then... But I do need to have some questions answered. Like; how long have I had it? How small is it? What could it cause if it gets bigger, if not a SAH? Questions I now need answered! It's not devastating but it's not great is it?! Kel x Quote Link to comment Share on other sites More sharing options...
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