Missjc1986 Posted June 18, 2018 Share Posted June 18, 2018 Hi all I’ve been reading for a while but only decided to join today. I’m a 31-year old female and before my NASAH, I had generally very good health, non-smoker, am not over-weight, eat well and was physically active. It’s been 10 weeks (2.4.2018) since my permesencephalic venous subarachnoid haemorrhage. It was a small amount of blood in the interpeduncular prepontine and right ambient cistern. During at heated phone call at work, the 'thunderclap' headache came over me and my neck instantly stiffened. I have suffered from migraines most of my life but knew straight away this was different - I was very distressed. I called my partner, and luckily, we were in a place that had paramedics onsite. They clearly were worried about a stroke or brain related issue after they quickly issued morphine and with no relief (the pain actually got worse) got me to the hospital ASAP. I spent 12 days in hospital - after the bleed diagnosis, I had a cerebral angiography which ruled out an aneurysm and other abnormalities. They said rest would be the key. I generally felt quiet well in the hospital beyond low-blood pressure and boredom (no screens) but then struggled with the flow on effects with my body as the blood dispersed into my spin and caused pain/spasms walking and moving. I spent another 2.5 weeks at home resting and getting moving again, then returned to work part time and graduated to full-time about 2 weeks after that due to work pressures. I still feel like I struggle at work with afternoon "brain fog" - normally something you'd get up from your desk, have a coffee and re-group but I often just can get past it now. At this point of returning to work almost full time (about 6 weeks out) I was feeling good, not taking pain killers and saw my neurologist where I received a positive outlook with the aim of approx. 4 months to be feeling 100% again. He even cleared me to travel to Spain (I’m from Australia so 30 hours of travel) for a friends wedding at the 8 week mark. I’ve just returned from the trip to Spain - the travel was very long and the week there (while lovely!) was very busy and I didn’t get much rest. I flew in a returned straight to work on the same day. Now, 5 days later (10 weeks post NASAH) I feel like I am struggling again both physically and emotionally. I haven’t gone to work today and spent the day on the couch - I’ve been exhausted, irritatable, emotional and generally just feel unwell. I didn’t sleep well last night (first night no sleeping tablets since I’ve been back) and woke at 3.00am adding to my tiredness. Do you think I have overdone it and gone backwards in my recovery? I was feeling good (well much better) but now am upset, frustrated and a little ashamed that I feel weak and emotional again, that I've regressed. It’s so hard to explain these feelings to the outside world, especially friends and colleagues who view me as a very strong person. I feel like I’m letting people down. So many of these symptoms are invisible and people have seen me to what looks like I've returned to normal. I also feel bad for my fiancé, who is riding the emotion of this all as well with my ups and downs. Has anyone had similar experiences? Link to comment Share on other sites More sharing options...
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