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subzero last won the day on April 2

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About subzero

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    Sport-(watching rather than participating now)Football, Golf, Athletics

    World travel

    Reading-Gardening-Having a latte as often as possible with my wife (she had SAH 5/2011)

    Late learner for Washing & Ironing, Hoovering, Dusting, Washing up-

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  1. Hello Ruth Thanks for your post. So sorry to learn that you have been diagnosed with Trimengal Neuralgia. Has this condition just recently affected you. Dealing with recovery from NASAH and now this must be so hard for you. I do hope the medication starts to ease the pain soon. Neuralgia pain wherever it occurs is so debilitating. My wife suffered from postherpetic neuralgia in 2012 6 months after her SAH) It occurred following a second bout of shingles and affected her left arm. Every three or for hours, she would experience an incredible burning sensation which would last only about three minutes... but she screamed and cried with the awful nerve pain. I felt so helpless as I could only watch and hold her until it passed. She was prescribed medication which brought the pain under control. A few months later she was hospitalised due to a medicine error not related to the neuralgia. All her medication was halted and incredibly the neuralgia pain did not return. I do hope your GP can help you and I sympathise with your suffering Subs
  2. Good morning MelJam and a warm welcome to BTG. So glad you discovered the site. While we do not give medical advice, you will receive invaluable support from the members who share their different experiences. There is a wealth of information from threads by members who have openly shared their experiences as they have dealt with their recovery from SAH. You say `at least I am still alive`, and you are right ... SAH is a life threatening event and many unfortunately do not survive. Your brain has suffered serious trauma, and it needs time to adjust and make corrections as it tries to deal with your everyday demands on it. It is only two months since your SAH. Time to recover is so important. You need to accept that trying to get back to life as it was as quickly as possible will result in frustration, fatigue and even depression. However busy your previous life style was... now you need to accept that your body and brain need that time . Do you have family to support you in these early months? It is important that you discuss your conditiuon with your employer. Return to work in most post SAH cases requires a phased return after three to six months. How you approach your return to work has a tremendous effect on your recovery.. Push yourself too hard and your brain and body will not cope. You will not win this fight to get back to normal. Your brain needs your respect ... please treat it with respect. Are you resting sufficiently, and keeping hydrated by drinking plenty water? In these early weeks, both you and your consultant are finding out how you have been affected by the brain trauma. They need to help you understand your pain and help you find relief. Keep in touch with them until you get the help you need. I wish you well as you deal with your recovery. You will find that you are not alone as you find your way around the BTG site. Subs
  3. Hi Neil, good to catch up on BTG again. How are you ten years on from SAH.? Subs
  4. Paul.............. I am so sorry to read your post about Linda. Along with you, our hearts are so sad too and many on BTG have shared your journey over so many years. Paul, what you have showed in your unwavering support for Linda is hard to comprehend. Your feelings of love, hope, fear, joy, frustration, relief and helplessness over such a long period is far more than most of us could cope with. Linda had a great `soul mate` in you, and we are proud of the strength you have shown in such demanding circumstances. Paul our thoughts are with you throughout the coming days and weeks. Take care and may God bless you and strengthen you. Subs
  5. Hi Paul .... you are both in our thoughts .... Subs
  6. Hello Kerryn, and also a warm welcome to BTG. Delighted that you are finding the site so helpful following your return home from hospital. Unlike you, I did not find the site early ...(3 and 1/2 years after my wife`s SAH on May 2011) Great to hear that you are so positive after such a traumatic event in your life. Your wife did so well to get prompt attention following your headache. How is she and your young family? Your coiling and 10 days in HDU must have been such a tense time for all of them. While it is so early in your recovery, I am sure it is evident that family life is already adapting to your SAH. You have not mentioned the big `W` word. (work) , although no doubt in reading the many threads available on the site, you will already have come across so many comments about returning to your employment. Please respect your brain trauma and be prepared to take time to discover any limitations in your `new` you. Don`t fight the fatigue when it comes to working. SAH is likely to win every time. Always better to set yourself a controlled phased return to work. You are absolutely right when you say there was so little support information provided when you were discharged. Something that is repeated regularly on BTG. The Brain and Spine Foundation in the UK have a very helpful leaflet for download from their website. Take care you and your family ............ Subs
  7. Hello Fay As Super Mario says, our members will share their experiences with you. Meantime you can use the `search` on the Home page., Key in `pregnancy after SAH` and in the content drop down box on the left.. opt for `topic` This will give you access to some comments already on file. Subs
  8. Hello and thank you for your update on Sandeep. We look forward to hearing of the consultant`s advice following Sandeep`s recent angiogram. Waiting for a reply is always such a tense time given the possible options. Well done to Sandeep on reaching the six month milestone. So much has happened in that time, but also so much still happening. I remember well when with Mrs Subs, each day was another step in the recovery, and before you knew it...it was 6 months...then a year.............and now here we are coming to 6 years on 8th May this year ! Hope you are all adjusting well as you help in his recovery. Please keep in touch Subs
  9. Hello Gemma and a warm welcome to BTG. So glad that you have found the site so early. You will find it a great support as you read how others have faced the recovery issues following SAH. Six weeks from your mum Joanne`s SAH. She and all of you have been through so much in such a short time. Given that her other aneurysm was already being monitored it must have come as an added shock. It is very early days for your mum in her rehabilitation. It is so important that she takes time to let her body and brain start to recover. The obvious feeling is to make every effort to regain normality as quickly as possible. However the reality supported by the many posts you will read here; is that patience, rest and listening to her body and brain is what will give her the best chance. Joanne has done very well so far. As others have said, advice from her medics is essential when deciding to make that trip for your wedding. It goes without saying that she simply will not be able to `keep up` with all the healthy members of your wedding party. Take every step to make her conserve her energies and ensure she rests well and does not get dehydrated. Keep her shaded from that hot sun. Knowing how mum`s think, she will possibly try and hide her exhaustion from you all so think ahead and `insist` she takes frequent breaks during the wedding day proceedings. Thanks for sharing and I do hope that your mum continues to recover well. Subs
  10. Hello Liz.... also a warm welcome to BTG. You will definitely receive much support from the members and also from looking back on previous posts. As has already been mentioned, it is very early in your recovery and time and patience are so important. It is good that you have close family around you to help. This will also be such a difficult time for them. They have experienced the anxieties of your time in ICU, and continue to see how the NASAH has brought so may challenges to your life as you struggle to carry out even the ordinary daily life duties. Wishing you the strength to face these challenging days ahead. Please keep in touch about you progress. Subs
  11. Hello and a warm welcome to BTG. So glad that you have already found the site a support as you have read through some of the earlier threads. You will get so much help and information from the experiences of those who have shared their journeys. While we do not give medical advice, you will find the support invaluable as you and your family cope with the readjustments you have to make to your lives as you help Sandeep in his recovery. Those long weeks in hospital with the uncertainty of what is happening, and with so many issues, and the added complication of the stroke to try and understand; is indeed a time of great trauma for you all. The mental and physical demands of coping with hospital and family life while caring for your young children leave you exhausted. I am glad you had the help of your family during those early weeks. How are you all six months on ? You are right, you have started not a sprint, but a long journey with Sandeep. Six months is early days for him given what he has been through. He has done well to try and return to work so soon. It is understandable that he wants to be back trying to support you all financially, however you will read time and time again on this site that a slow phased return to work is so important. Always reassessing based on how his brain and body are coping. Fatigue and tiredness can be a longstanding post SAH issue for most survivors. Everyone`s recovery is different. Please ask Sandeep to be patient. Ensure that he keeps well hydrated. How are his kidneys now. Did he have any kidney problems prior to his bleed? Kidneys can be very resilient. Please keep in touch with us often and ask any questions. Our members will make every effort to share their experiences with you and support you in the days ahead. Subs
  12. Hello Maria...welcome to BTG. So glad you found the site so early. I can understand how traumatic it must be for you to have seen your fiancé in ITU a week after his bleed, then having to leave him and return to your work the week after ....... not knowing how he was going to pull through this life threatening trauma to his brain. You understandably must be feeling helpless being so far away, unable to give him your close support. Having spent four weeks in ITU, it is so early in his journey to make any accurate assessment about his recovery. Do you know the extent of his current issues? You mention his memory..... it is quite common that his memory will be affected in these weeks immediately following his SAH. Many do not recall the weeks in ITU. My wife spent one week in ITU and has no recall of the two weeks following her SAH. Everyone`s memory recovery is different. Many recover well although short term memory recall can continue to be a problem. Members have various coping strategies to help them remember. Do take time to read the Forum stories of how our members have been challenged by SAH on their road to rebuilding their lives. You will discover much information that will prepare you for the days ahead. Please continue to keep us advised of your fiancé`s progress, and don`t hesitate to ask for help and guidance. While we do not offer medical advice, you will receive much valuable support from members. Some like you are in the early weeks, and others have 5, 10 and over fifteen years of dealing with SAH and it`s challenges. Take care.... as already mentioned...it is good that he is a fighter. A positive attitude will help him greatly. Subs
  13. Hello Heather, your recent update about Rebecca`s great progress is truly heart warming reading. As a family you have come through so much in the past 24 months, and seeing how your young daughter has tackled her recovery, must fill you with so much pride and joy. What a wonderful touch that she is helping others who have suffered from SAH. Please pass on our best wishes to her as she continues to shape her own life, build up her independence at university and get to grips with her studies. Thanks again for keeping in touch. Subs
  14. Hello Phil....a warm welcome to BTG. You have found a site that has a wealth of information and personal experiences shared by members who have survived SAH and their carers. While we do not provide medical advice, you will receive much support from members who understand. Firstly, it must have been quite a traumatic time for you and your family on holiday in a distant country and so unsure about why your health was deteriorating. So glad you received prompt attention on returning to the UK. Six months on following your MRI scan, it is good that you are reflecting on what has happened and what you might expect of your recovery in the days ahead. You say that you work in a stressful environment and that you have returned to work with some support and less hours. You will read on this site that the causes of SAH are very uncertain. However, stress following SAH definitely can cause problems in recovery. Almost six years ago (May 2011) my wife suffered her SAH. My response is based on her experience and from the comments shared by our members. Firstly, there is no `one size fits all` recovery from SAH. Each have their very unique circumstances such as severity of bleed, length of time from bleed to hospitalisation, personal circumstances (work, family life, family support, finances) Your brain and body needs time to readjust, and time off work initially followed by a planned phased return to work is so important, with your return being subject to change if you find you are struggling. My wife worked in a very stressful job, and her phased return to full time started in Sept 2011 and she became fulltime by June 2012. She continued to work in this very stressful environment for 13 months, but it became clear that this could not continue, and she took early retirement in August 2013. She returned to work for 2 days a week and still enjoys being at work. Again, every situation is different, but stress is not good for your SAH, and managed rest breaks are so important. Memory issues pose different problems for many. Again, in my wife`s case she is fortunate and her memory has not really been affected. Phil, your post highlights many issues that everyone here can identify with. I am sure you will receive receive many comments in support. Your question . `What is normal?` has been the subject of much discussion on here lately. Your brain has received major trauma and how well you recover can only be gauged over time. Please be prepared to have patience. I wish you and your family well as you tackle your recovery together. You are all affected b your SAH.... take time and give yourself every chance to improve. Subs
  15. Hello Daff, thanks for your post. You have packed so much into these five years while also dealing with your recovery...family, work and your valued comments on BTG. We get a sense of how far you have gone to understand the `workings` of that incredibly complicated organ as you`ve tried to better your quality of life. Well done. Just finished reading your recent blog, and also December`s......... great reading and very inspirational. Take care and keep up that attitude in the years ahead. Subs