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kempse

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kempse last won the day on December 31 2016

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About kempse

Profile Information

  • Gender
    Female

Converted

  • Biography
    Am married with 3 children, aged 9, 15 and 17
  • Location
    Derbyshire
  • Occupation
    Bank clerk
  • SAH/Stroke Date
    08 November 2008

Recent Profile Visitors

498 profile views
  1. New here :) Amanda

    Welcome aboard Amanda, Sorry to hear about your unfortunate experience, little wonder you have severe anxiety and ptsd. Having said that, with the right support and time hopefully things will improve for you. It sounds like you have done remarkably well in the short time since the event and I hope progress continues for you. Being a mother of four will be hard work, especially whilst recovering from a sah - I found it all exhausting during recovery and I only had 3!! Hopefully you'll find lots of advice and tips on this site which will help you feel more reassured with feelings, etc that you encounter along the recovery path. Wishing you the very best, Sarah
  2. Hi Sammy Anne, I'm so sorry that you are still going through this nightmare situation, my heart goes out to you. Somehow, you need to concentrate on your own health and the effect all this is having on you - your daughter needs you to be as well as possible and it maybe that the antidepressants will help you cope with everything a little easier? There are several of us that have had bleeds on the brain that I am aware of who are taking antidepressants and I doubt that we would have been prescribed them if they were not safe. Discuss your concerns with your GP if in doubt. I'm not sure how long this ruling has been in place, but if your daughter is genuinely afraid I assume it may well affect her schoolwork? If that were the case, can you not speak with her school who could perhaps have someone there who your daughter could confide in and trust with any issues that cause her anxiety. Surely they have a duty of care for their pupils. Despite all that you have on your plate, you display much courage, strength and love. We all need a helping hand at times and I just wondered if you have been in contact with any organisations for domestic violence who maybe able to give you the support you deserve. Wishing you all the best,, Sarah
  3. Kay - new member

    Sorry to hear you had a knock back Kay - I hope the shock has worn off slightly since you got the news, although I doubt it. I say that as I remember all too well when I was told I had to have more coils put in as they hadn't packed it sufficiently for fear of the coils coming back out, blocking my artery and causing a stroke. To hear that when you assume everything is solved is not nice. All that was 2008/09 and in 2016 I was told the aneurysm had grown and there was talk of yet more coiling. A further scan this April and I was told it appeared stable - so all a bit confusing and unsettling. Yes, seeing those images is fascinating. I hope you won't have to wait too long - the hope being that you don't have to worry about it for too long. Best wishes, Sarah
  4. 2 year anniversary

    Congratulations on the two year mark. Great news that your scan showed no change - worth all that travelling to hear that!. Hoping next year is a good one for you. Take care, Sarah
  5. I think my SAH has won

    Hi Jan, Again some wonderful responses with good advice. As others have suggested, it may be a touch of depression returning without you realising it. I say that because I went to my gp about 8 weeks ago, not feeling depressed, just that my head felt full of fog, I was crying regularly, sleeping too much and that I was not coping as well as I had been. I was also concerned that the amount of stress I seem to attract was not doing my head any good. Result she signed me off for 3 weeks with 'depression'. Since that first appointment I have been signed off for a further 7 weeks. My sicknote said 'depression, nos' - I then looked that up nos, thinking it was 'no other symptoms' - it is not that, lol, its Not Otherwise Specified - it's put on for depressive disorders that are impairing but do not fit any of the officially specified diagnoses. I have done much research on the subject and it is a known fact that depression is a common after effect of sah. Having little or no interest in things can be a symptom of depression. Depression too is a bit like an umbrella for all sorts of mental health issues, you don't necessarily need to feel down, it can be a whole host of things that cause human beings to feel the way we do - having a brain injury/sah as we all know can alter the way we were and everything can feel so much more difficult to handle. It is frustrating! For those of us who have suffered a sah, there is little wonder we experience feelings that are not ones we perhaps had prior to it happening. Anyway, I'll try and post in the GR regarding family support - essential, but not always forthcoming. I'm not sure if you've had any counselling, but it can be very useful to discuss your issues with someone outside of the family - I'm not sure if Headway may be able to make recommendations re 'neuro' counsellors, but I've often thought speaking to someone with knowledge of sah would be more helpful than an ordinary counsellor. Although I didn't want to be put on antidepressants I did agree to try Sertraline and I do feel that I am coping better now than I was just prior to starting the tablets. Having gone from too much sleep, I'm now not getting enough and keep waking in the early hours - so I've still a way to go before my 'normality' returns! Wishing you all the best Jan, Sarah
  6. Sarah's Album

  7. Havent a clue

    Hi CJ, That will be quite a worrying time for you which is not helped by the lack of speed having been referred as urgent by the neurologist. Whilst I am not medically qualified in any way, I did read this on the internet which states the different sizes and their classifications: Small aneurysms are less than 5 mm (1/4 inch). Medium aneurysms are 6–15 mm (1/4 to 3/4 inch). Large aneurysms are 16–25 mm (3/4 to 1 1/4 inch). Giant aneurysms are larger than 25 mm (1 1/4 inch).14 Nov 2016 It is my understanding that although aneurysms could potentially rupture at any size, the chances of it doing so increase the bigger it is. Some aneurysms grow in size, some more quickly than others and some not at all. I have an unruptured aneursym measuring 3mm and it has stayed the same for the past 8 1/2 years since it was discovered. Although at that time an 8mm one ruptured. I have annual scans to check them both. Of course we are all different and the location of the aneurysm also plays an important part in their assessment. One thing I have learnt over the years is that neuro departments can appear to be quite slow in their responses, which for us can cause a lot anxiety. I know they are extremely busy and will be prioritising their patients etc, but I do think you ought to ring them again if you don't hear something soon. It's impossible to say how concerned they may be until they make contact with you. It's the not knowing that can become difficult to deal with. Good luck and let us know how you get on, Sarah
  8. Hi there, Macca is right, you need to get checked out - it's not right that you are not being taken seriously. I had a similar experience in that my concerns and symptoms (severe headache, not being able to put my chin down to my chest, feeling nauseous and very sleepy) were all ignored by my gp, nhs direct, my optician and even the paramedic that came when I called 999 at the outset. It was 6 days later and a phone call by my dad to my gp to insist that I be investigated that an appointment was made for that day, at a neuro clinic at hospital. After a 5 hour wait to be seen, they very nearly sent me home again. Luckily a consultant came to see me and said he'd just like me to have a ct scan and if the result of that was ok I could go home. The scan revealed a bleed on the brain and I was in hospital for 11 days. Now, hopefully yours may not be this and I certainly don't wish to worry you further, but you do need to insist you get checked as it is not uncommon for the professionals to miss the symptoms being something potentially serious. I knew something was not right with myself, I never had headaches and certainly not one that lasted for days on end and painkillers had no effect. Good luck, Sarah
  9. Andrea, I really feel for you, it's not nice being so worried about something. I've not had a plate fitted, but I remember well how worried, apprehensive and scared I was when I had to have another coiling procedure. The procedure was cancelled twice at the last minute which just prolonged the anxiety. Whilst these procedures are new to us, they are done on a regular basis by the surgeons and their teams and their skills and knowledge really are the best. Therefore we should be able to put our trust in them without fear, but in reality it is our brains they are dealing with and therefore there is bound to be some apprehension. Try and focus on the relief you will feel when it's all over - that time will come and focussing on that may help take your mind off the operation itself. Sorry I can't offer anything more comforting for you but you will get through it and then you will be so proud of yourself. Hugs, Sarah
  10. I am new to

    Hi Andrea, a warm welcome to BTG. I'm sorry that you are struggling at the moment - little wonder after such an event. I think the shock and realisation of it hits us all at some point during those first few months following a sah. It's a natural response and one that takes a long time to adjust to. Whilst there is little 'follow on' support once you leave hospital, there is a host of information on here from people's personal experiences and I hope as you make your way round the site, you will come across things that you can relate to and hopefully give you some reasurrance that things will improve over time. I personally didn't have weakness down one side, so I can't comment. The brain and spine foundation website has a helpline which is run by neuro nurses who would be in a better position to answer some of your questions. Best wishes, Sarah
  11. 3 Years since SAH

    Apologies for my late response Michelle. Another anniversary to be proud of, a year that has had many ups and downs along the way. I've always said that recoving from a sah is hard enough, but the stresses and strains of life are so much harder to deal with during this process. Like Colleen said, you have held up admirably when faced with these challenges and I'm sure you will find the strength to continue the excellent support you provide to your parents. It's a pleasure to read your posts in the green room which bring a lovely ambience to the place. Enjoy your time with Jan this week - I'm sure you'll both have a lovely time, Love, Sarah
  12. Sorry I'm late in replying - some lovely responses as usual from the people of this wonderful site to your well written and descriptive post. I know you have struggled at times with the aftermath of sah, but one thing that shines through is your lovely personality and sense of humour - oh that's two things - two great assets that should help you through the next year and beyond. Love, Sarah
  13. Scared - New Member - Verna

    Hi Topsy, I've only just seen your post and am sorry you have suffered a second sah and all the ensuing anxiety that it is causing you. I'm not sure whether, since you posted on Monday, you have decided to take the antidepressants or not, but I was wondering if this person you mention who told you about the medication possibly causing brain bleeds does in fact have any concrete medical knowledge or is just scaremongering. Two weeks ago I was also prescribed sertraline 50mg and would be very surprised if my gp would put me on something that could possibly cause brain bleeds knowing my history of having had one and the fact I still have annual check ups for the ruptured aneursym and an unruptured one over 8 years later. I do recall her saying she chose sertraline because it was the safest and was non addictive. It took me 3 days of hesitation to start taking them, but I'm glad I did. Let us know how you get on, take care, Sarah
  14. New SAH patient

    Hi Melissa, I'm pleased you are getting injection therapy - like you say, hopefully it will work and make things a little easier for you. Yes, the remembering aspect is frustrating - again something that affects most of us to some degree. I used to set up a list on my phone and add things to it as and when I thought of them because I knew I would forget. If you can take someone with you to your meeting, it's helpful as it can be equally as hard remembering everything you've been told when you get home. I think the most embarrassing thing I forgot in those early days was to collect my son from school! I had my sah 8 1/2 years ago from a ruptured aneurysm which was coiled. I was 47 at the time. I too suffered severe vasospasm although I had no knowledge of this at the time. I had more coils put in a year later and because the aneurysm has a wide neck and another smaller aneurysm was discovered at the time, I am still monitored every year by MRI scans. Last year I was told it had grown slightly and I could either have an angiogram to see about a possible stent and more coils, or wait a year and be scanned again. I chose the latter and have just had the results of that further scan. The letter said "stable appearances and another scan will be arranged in 12 months" Phew! With reference to your point re migraines - I have never had one in my life, but ever since my sah I have suffered with the aura of migraine. Thankfully I don't have the headache, but since the very first episode of the aura was while I was in hospital at the time of my sah and I have had well over 100 episodes since (I kept a diary of it), I personally do not believe that the two are not connected in some way. I was prescibed atenolol for it and they have definitely reduced the frequency of these episodes since being on it for the past 7 years. This forum group is an excellent source for anyone who has had the misfortune to suffer a sah - I don't think there is any better aid to recovery than being amongst those who have travelled that path. There are also two other excellent uk based websites that supply a whole host of useful information including fact sheets that can be downloaded - these are 'the brain and spine foundation' and 'headway' - google will find them! Take care, Sarah
  15. New SAH patient

    Hi there, a warm welcome to BTG. I'm really sorry that you are going through so much at the moment - no wonder you are tearful, it's an awful lot for you to have to deal with. Recovery from a sah is difficult enough without the added stress you have with your husband and all the pain you're in. I do hope your appointment on 1st June proves to be helpful - perhaps make a list beforehand of all the issues and concerns you want to discuss, so that you don't miss anything. I really do empathise with you having myself endured many stressful events whilst recovering from my sah. It can be really tough so I'm surprised you say no doctors care about depression setting in - they really ought to. It is very early days in terms of recovery for you and a lot of what you describe is very common and I do believe that getting plenty of extra sleep is the best way for the brain to repair after such a trauma, so try not to be concerned about sleeping too much. Wishing you all the best, Sarah