Winb143

Colleen, I used to prepare for me dying after what I was told what happened to me (Morbid Win) lol I then found via my Daughter coming on here, BTG and to see people joking about their Anni's etc was an eye opener to me. That is when I realised there is life after a bleed/SAH and it was okay to laugh about it. I think when we have a bleed or whatever we think the worst. But to come on here and be able to share or give vent is brilliant. Thanks once more BTG and all on it xxxx Doesn't Chris look healthy grrrrr lol

Take notes Jan and let them know memory is bad hence the notes. But all I hope will go well and try not to stress yourself out. You are a charmer anyway lol xx Take care and Good luck. Love Win xx xx

Jac I was told not to drink or smoke again so I took heed lol shut door after Horse/SAH had bolted lol xx When you feel down Jac always think of happy times in life and coming on here just cheers me up and I know I'm not alone.xx I ate chocs when I woke up and have got so big lol so now trying to diet, I'll get there one day xx Keep Well and remember Happy is the word today xx Love Win xxxx Smile? lol

Hi Katy, I had an SAH and remember nothing for a year, people say I spoke to them but I still don't remember. Good in one way !! I was going to mention Clare but I see she has responded to your post. Keep well and do not overdo it xx it can be a long haul but you get used to ringing etc. or see Doc about it. Good luck on your recovery and keep smiling xx Love Winb143

Luke, I saw my Daughter walking with my hubby when I had hydrocephalus and she was 14 but in real life then she was in her 30's. Guess you could call that confabulation ? After I had my shunt put in my Daughter said "Welcome back Mum" and we both cried and hugged. Me I guess for what I had put them through. Now we laugh at the things they tell me what I said and done. I even thought my Dad was alive. He died in 1999. You hang on in there and your Mum will get through it with your help. Keep her brain busy by doing easy quizzes xxx that's what daughter did with me. Singing helped me, but poor family!! Love to you All Win xx

Me also shame though as I haven't had a decent wine for ages lol xxxx Keep going and never give up xxxx Welcome To BTG Jac xxx Remember no problems/Stress while brain is mending itself. You think of a happy song and you start to sing it. No I wont sing just yet but remember only happy songs, also I read when you have a smile on face, sadness cannot come through xx Love Win

Welcome Jac and all what Tina has said Ditto, You think you are alone and you come on here and we are many who have gone through it. I know this sounds selfish but I thought to myself "Win all these people have been through it so you are not alone" which was my cue to get up and start walking as OT's said I wouldn't. Getting there apart from backache. You have been through a lot now remember to drink water, smile and no Stress Whatsoever !! (Neurosurgeon told me no stress) so I wish you a happy and healthy life and remember it is early days xx Be Well Winb143

Hi Boozy Suzi, If you do not need them, why take them ? I have had Epilepsy since puberty and Epilepsy started then at 14, but oldun now. I went ages without them and was thinking hmm I reckon they are leaving me. Then Docs messed around with pills and I had 1 after 6/7 years of being seizure free. Calls Epilepsy a few choice names lol xx So try not to worry just yet over Epilepsy as the more you stress etc !!! Get op over and done with and then take it from there. Be Well (and easy for me to type) No Stress and just take one step at a time. Love Win xxxx

Hi Again Chris, MR is an MRI isn't it anyone ??? Magnetic Resonance (MR) Imaging. I copied that bit . See us Mums have our uses, and about the letter from Brain, makes you know to take things easy no rushing or worrying You will be okay Good luck Win.... Shewhomade it shorter this time lol x

It is bad enough waiting and you must be feeling let down. Another woman on here had cancellations and she was getting fed up (to say the least) But although you must be stressed, perhaps he wants a team he knows around him, so good for you !! I know you must be so "grrrrr and fed up" and I am not helping much xxx Head up and do not get too stressed (easy for me to say). Keep Well Love Win xxxxxx Grrr = me when angry or upset xx

Hi BoozySuzi, We are always being told by people who have had it done "it is more Straight forward without the bleed" I understand you are scared and if I knew what was happening to me I would have been scared also. Luckily or not I was out of it due to my Hydrocephelus so I was in Dream Land. I remember asking the nurse when having my shunt put in "Will you put my cross back on straight away" and she told me she will be with me all the way too put my mind at ease and I awoke and sung to her lol. (Hope it wasn't my Dads rude songs). So you hang in there and I wont tell you not to be scared, but remember no bleed = makes it easier for Surgeon As Tina has said Let us know how you get on and good luck xxxxx Love WinB143 xxxx

Hours before my SAH, my Sister was phoning me and I was cooking hubs tea/curry and she moaned about her son. This went on for approx. 1 hour plus. I tried being polite but she then moaned about our Sister and in the meantime my hubby came in with some wine. My head was banging listening to my Sisters tales of woe. She had already phoned me at lunch time and I told her I wasn't feeling great. Anyway back to me cooking a curry, I passed out and he/hubs took the phone and said to my Sis something is wrong with Win can you get off the phone I need to call ambulance. She got off I assume lol and since that day, I cannot take anyone shouting or telling me their tales of woes. I wish you well and Keep away from Concerts lol and always think of happy stuff and go to bed with a smile when possible xx Good luck in recovery Suzy and early days yet xxxx it does get better. Although I cannot take arguments anymore or others problems apart from on here lol xx Regards WinB143 xx Always go to bed with a happy thought xxxx

Chris, Okay forget singing etc, but there is on here 'A Letter From Your Brain' if you can manage to read it you will understand what your brain has been through. When I came home after Ventriculitis and Sepsis along with my SAH, my home looked different and it took a while to realise that a new fire had been put in and they moved furniture to allow for hospital bed. Once I had shunt fitted all went back to normal, me singing and learning how to walk. Still stuck at 125/200 yards but they said I'd never walk again !! What I am trying to say is "You Will Make it" just don't rush things and you will get there. Wishing you all the best and we can beat this xxxx

Next step to take her out even for a water or a cuppa and then she will have an aim. My hubby took me out and although I remember nothing he said I enjoyed it and I used to drink from a teacher beaker then progressed to cardboard cups lol. But I remember being in a light place with all windows it was Marks and Spencers café with lots of Windows xx I am so glad I had my hubby and Daughter as when I had hydrocephalus I used to think the OT's were bullies to me ha !! I must have been a pain as when they told me to do things I used to cry and sulk as they told me off. Glad your Mum has you xx keep spirits high Luke and good luck to you All xx Winb143

Hi Chris, A lot of people say they have been sent home and it is like "okay what now". My Daughter found this site and put me on here and it has been a Godsend as I thought doom and gloom to follow !! There is life after a Brain bleed and you need to surround yourself by positive people not Doom and Gloomers. So as my Surgeon said to me."No Stress " so when stressed I sing it helps but only happy songs, and it relieves my stress and I try to be happy most of the time. There are times when I want to shut the world out but BTG has helped me so much and the people on here, I always walk away with a smile. You will get there Chris keep looking forward and occasionally look back to see how far you have come. Not too often though xx Head up shoulders back off we go xxx We will beat this together. As for short term memory read, sing, read again do what you think will help you the best. I couldn't remember where I lived so hubby wrote it on the wall and every morning he'd say (covering address) Where do we live. it comes back slow but surely Win xx

I was told I'll never walk but I do but the botty always sticks out lol and after a while back aches and then neck lol We will get there sooner or later, never give up and when down come on here and give vent to how you are feeling. We have all been there and got the scars although they don't show, but we will get there eventually ..keep going forward and see how far you have come. Best wishes Win xxxxx

As usual Daffs writes a good post, I mean it Daffs and it doesn't hurt if we do not cook, or we rest up for a while as we always say to each other listen to your body. I know you do not have the luxury of being able to go bed when body tells you as you have children, good job you have your Mum to help you Daffs and when body/brain tells you full steam ahead, take Mum and you out or what you do with Mum. You must have been wiped out to stay off here lol. Now remember to rest up and don't be brave be a lazy moo for a few days, as that's what I do lol xxxxx Keep smiling and singing and get Mum to join in xxxx Sorry you are on a downer but I know my Shunt pard, she will be okay after a rest, so be happy and never give up as I need my shunt pals for my barometer head days. Now smile and sing and do not overdo it. Wins Orders !!! Take care Pal xxx feet up and rest xxx Tap dance coming up later, the one where I slip into the sink xxxx

Singing helps me, remembering words to songs and new songs helped me. Do not help him, unless he is stressed, when he forgets as it will come to him later. My Hubby put our address on wall, so I was reminded that I never lived in the old house. Also what was sad I forgot my Dad had died and used to say to my Sisters "Tell Dad I'll be up when I feel better" I forgot he died. in 1999 It comes back eventually but it will do it at its own pace so get him to learn a new song. One he doesn't remember from past lol xx Good Luck both WinB143 Poems also helped me but will Son want to recite lol xxx Keep smiling both xx No Stress hence my singing

Hi Goodie, I do not drive but someone will be able to give you advice. I took Epanutin and was told to come off them. Good luck to you both. Win x

You seem to be bouncing back quick Brian so Well Done. Try and take it slowly at first, listen to your body and all will be well. I was coiled, but got Ventriculitis and then Sepsis while in hospital. It was a hard time for my Family and we go through it but so do our Family as they feel helpless. I wish you all the best and keep smiling when possible it really helps (So does singing happy songs) WinB143 x My surgeon told me NO STRESS so passing it on hence my singing lol

Ditto to what Bronco has already said. Keep happy thoughts nearby xx Good luck Jen Win xx

It is a real thing this fatigue and I am no Doc but I go through it also. I have the luxury of going to bed during the day whereas your Hubby will have to soldier on when he returns to work !! Ask for a longer breaks during the day until he can get past the fatigue or sleep during lunch break (easier said than done) I wish him all the best and hope he can sort it out. Keep Bright it does get better with time xxxx Love Win

My Hubby put up our address as I thought I still lived in my old house I moved from in 1994/5 . So Every morning as he left for work he'd cover our address up, he'd pinned on the wall and ask me "Where do we live Win?...Every day he'd do this xxx I'd look up at the wall and try and remember what addy was there. Eventually I remembered it. He was so kind and patient with me. Hope Mum gets well soon and starts remembering. Wish your Mum Well xxxxxx

Julie , Glad you got a bed at last and sorry about the fits they are poo things to have, I've had mine since puberty but have become stronger since SAH but we will get there. Coiling isn't as bad as what you just had. It is less invasive. (Not that I can remember any of it). You keep well and listen to body and when shattered relax when possible. We have to listen to our bodies more but all mine says is "more chocolates" xx Be Well and all the best Win xxxxxxx

Hi Luke, I had a grade 4 in 2009 and I slept a lot, and also was sick after my Family gave me too much food also. Does Mum have a catheter in ? I ask this as it made me so ill and tired. In the end my Doctor took it out and after having a shunt fitted for hydrocephalus I came around. I thought my Dad was still alive and he died in 1999 !! Get help for Mum ie washing and take her out for a coffee or something. Give her something to look forward to as I know it is hard on our loved ones but it is hard on us also . My Family sang to me and talked with me, I thought I was dying and my Daughter found this site and it has been a God send to me, knowing I'm not alone and the only one. Good luck to You Mum and Dad xxxx