Winb143

Can't talk about driving as I do not drive, now bright lights I use sunglasses as I cannot take any harsh lights. Give yourself time and keep a smile close at hand xx I remember typing I feel giddy when I first came on here and was told when standing swing legs off bed, sit for a while and do not rush up, it works honestly !! xx It is a long haul but take it easy and we are survivors so take your time and let your brain heal, on here there is "A letter from your Brain" it tells you what brain has been through xx and you of course xxxx Good luck and take it slowly at first ~ http://web.behindthegray.net/index.php?/topic/2113-a-letter-from-your-brain-by-stephanie-st-claire-©1996/&do=findComment&comment=29089 l Win xx

You will only get good advice on here Verna. I came on and saw people happy and joking and I thought there is a life after SAH, and I can honestly say I have left here with tears in my eyes. Tears of laughter only!! I have put a song in someone else's post, changed the topics of someones post and they all stuck with me even though I was a pain lol. You will get better and you will get there eventually, so sing up with happy songs and think of good times only. We have been through it. The other side is much brighter xx So be of good heart and lets see a smile break across your face ..come on one smile xxxx when ready ! Love Win xxxx

;My shunt woke me up as I said Heather and made me more aware, as it is supposed to do !! A woman on here has an adjustable shunt perhaps she can tell you more about it. Her name is Daffodill. As Subs has said it is a long journey and when I had my shunt in I am told I sang to the nurse who was kind to me directly I woke up. I wish you both well and may your hubby improve with time. Good luck Winb143 or just Win lol xxxx

Hi Heather, Welcome to BTG. I had a SAH and other problems ie Ventriculitis, Sepsis and after I got well had a shunt put in for Hydrocephelus. It was hard on my Family but they sang to me and when I remember what happened, I realise my family went through it all xx I forgot my address and luckily I never remembered anything until shunt was put in. It is a long haul and it will take a time. If you can get him out even for a coffee it will do him good, I couldn't hold myself upright and used to slide sideways, I had a special chair which held my neck upright, bet I looked a fool !! but getting me out was good and my hubby got me a teacher beaker and I drank from that !! Then I moved on to cardboard cups and as I said getting out made me feel so much better. Keep him away from people who tell you their tales of woe. If possible surround him with happiness. His memory will improve slowly I am still saying to my Daughter or Hubby "did I take my pills?" So anytime you or hubby are worried it is a good place to come as this site helped my Daughter when I was ill. It helps me now xx Good luck Heather and chin up it does get better xxxx Good luck to your hubby xx Warm salt water on his head as it could be scars itching, it helped me xx or see Doc. ?

Hi Luke, Keep strong for Mum and now Dad xx Make sure you rest up also and no stress (easier said) for any of you xx When times get rough come on here and let it out, I hope all goes well with Mum and Dad. Speak soon and wishing you All Well xx Win xx

17 years is a long while Louise, pleased for you also Hope all goes well and as Tina said a few kind words help us all to know we are not alone in our fight. Well done You !! xxx and many more xxx Love Win xxxxxx

Stand back Tina, Colleens cake could explode and I already have mouth open to catch bits lol Who said is that where the drafts coming from !!! Cooey Colleen I am here lol chocolate to Win c/o BTG hands off all !! Seriously happy Anni versary and many more xxxxxxx Love Win xxxxx Be Proud and head up high xxx

Put some fresh fruit on them for her Luke xxxxx and cream on mine with chocolate lol xxx Keep smiling Win xxxx

Katy, I had a CT scan after having an MRI, but in those days I came on here and said "Oh I have to have a CRI scan" but meant CT lol It done me no harm, as at that time my temples were looking swollen so the gave me a CT scan. Still not gone down but they said it was nothing to worry about !! ahhhh lol You will be okay as Deb says. Love Win xxxxxx

Hi Luke, I missed my 40th Anniversary due to SAH and I remember my hubby got a big box of chocs. Well the weight I put on was nobody's business ! After my SAH I developed a craving for sweet things and I knew I was over eating, but I was like a kid in a sweet shop and after I was told what happened to me the more I ate. Think it is a comfort thing but I am not happy with my size, always been plump but this is ridiculous !! my aim is to be a 16 !! When people told me no more, I knew they were helping me but I used to sulk . After I had my shunt put in I decided to do something about it. Still I diet and come off it same day. I cannot walk that far so that doesn't help Do you hire yourself out as my Daughter isn't as good a cleaner as you sound. Anyway hope all goes well with Mum and meal. Love Win xxxxxxx Shhh hide this up in case my Daughter see's it lol xxx

Hi Verna, I was sure I was going to die lol when told what happened to me. SAH, Ventriculitis and then to top it all Sepsis !! My Daughter found this site and it helped her. She put me onto it and I have never looked back. It is a long haul and slowly but surely you will get the old you back and be needing your own space but it is natural to be scared at first. Keep coming on here and you will get reassurance as I did and any worries just type away, they are a helpful lot xx and can be funny at times. Remember we are survivors so onwards and upwards xxxx and get singing xx Love Winb143 xxxx

Hope brother will get better with every day that passes. Good job he has you xx My family sang to me so I am told and I awoke singing Irish songs lol xx I'll take you home again Kathleen and Sweet Rosie O Grady lol. Shh don't tell brother I might break into song or he wont come on here xx, This site has helped me and my Daughter as she got advice while I was out of it and then I realised it wasn't the end for me and there is a life after an SAH xxxx Wishing you Both Well Win xxxxxx

I wish your Brother all the best Jackie, I remember nothing after my op, as had Sepsis and Ventriculitis. See Doc and ask his opinion, it cannot hurt. Good luck to Brother xx Win

Verna, I was so scared after I knew what happened to me but it does get better, and you are around people who have had the same experience as you have been through. Type away and go from there, do as Super said Introduce yourself to Us and you will get replies this site has helped me and my daughter who had nowhere to turn when her Mum was in Hospital (Me) lol xx Good luck xx Win

Just let us know how you get on and we will be here for you when you come back from op and all is well. So don't forget to tell us how it went and speak/type soon xx Love Win xxxx

Hi Cassandra, I had mine in 2009 and it has been a long haul, I awoke really when shunt was put in 2010, as before that I have hardly any recollection just vague little memories. My Daughter found this site and it helped her. So here I am, walking is hard for me but 60/100 yards then back goes. Do not look on sites as Paul said, listen to others stories and you will see you are in an Elite Group lol, as we made it !! phew !! It is time that heals us and the stronger we get the more able we become, fatigue is awful I must admit !! Keep drinking water as our brain needs it and my surgeon said "No Stress" well life is full of stress so I try singing or thinking happy thoughts. You will get there eventually just keep typing and giving vent to your feelings by coming on here xx a trouble shared as the saying goes !! Wishing you all the best and never give up !! Order from Win lol xx Keep Happy and sing is my answer to all ills !! Best wishes Winb143 xx

Natural to worry Gemma, but hubby will be with you and waiting or pacing up and down. I know it isn't the same but when I had my shunt put in my husband was going to cancel it, or so he told me afterwards. I wish you all the best and you are a fighter !! Good luck to you Both Love Win xxxx

Stacey, I agree and put your mind at ease as my Aunt had one and her sons but I was told they are not close enough. So see Doc and then you can carry on with life stress free xx Good luck Win xx

Hello BigE, When I had my SAH/bleed my hubby and Daughter were great. Now roll forward 7 years and I am a pain lol. Life goes on and Family support was great but we are in this for the long haul, and that is what others do not understand. Greg who is on here sent a link for us to read, it explains what we go through and fatigue and tiredness to name but 2. Wish you well BigE and keep going onwards and upwards, keep a smile close at hand for the down days and try singing !! My answer to all ills is to sing happy songs, and remember you are not alone xxx keep typing when down or you need to vent your problems. Good luck Win ~ No Stress my Surgeon said xx

Good work Sherlock Greg ha That is what I mean when I say I need happiness around me and I do not want to hear Doom and gloom. The brain needs a break from others troubles, I do switch off a lot xx Well done Greg this is going straight to my hubby and Daughter lol and maybe a few who think I should be better by now. Don't get me wrong I am 100% better but I need another 20% lol Love Win xxxx

Hi Debs Pest Again, Coffee, I cannot stand anymore and weird smells also. I can drink Costa coffee but instant coffee is yuk now !! I drink water and orange juice and long for a coffee but it doesn't taste nice. No matter who makes it !! Doc said it is in my head, I think it is called Olfactory someone correct me if I got it wrong !!! My clothes smell, Lenor is a horrid smell now. Going to buy some baby shampoo and look for milder cleaners/detergents see if that works. Wish chocolate tasted horrid !! ha ha Good luck Win xx

Good for you Debs, It can be hard at times and I sometimes want to tell my family to Shut Up !! in no uncertain terms. I bite my tongue lol. When I first came out of cuckoo land after being ill with Ventriculitis and Sepsis after SAH. Then had a shunt in head to rid me of hydrocephalus. That is when I came around. I think how lucky I am xx Now Family moan at me lol. Back to real life !! Ask Hubs if he will take you for a coffee on a Saturday and try and get into a pattern. No overdoing it though and when body tells you to sleep, when possible have a rest xx Wishing you Good Luck on journey back with your head up etc etc lol and always go to sleep with a smile xxxx

My first time out was in a café with hubby and daughter Debs as he knew getting me out would do me good but I remember nothing apart from windows. I used to get the sea running through my ears like as a kid, when you held a shell up to it. I still get the buzzing shhh noise in ears but it is usually when I am tired or stressed. You need to surround yourself with laughter (easier said than done) No listening to others problems but you are a Mum !! hard going xx I sing when the ringing and buzzing gets too much or have a lay down. My Surgeon said "No Stress" so I come on here and a majority of times it helps me to know I am not alone in this. Welcome and drink lots of water and sing lol xxxx Anytime you need to let off steam come on here xxx All the Best Winb143 xxxx bbl after a nap lol xx let me know if you want a sing song ha ha xxx

Okay ready Jan Phewwww a sigh of relief !! Did you feel heady after wine I did and mine was only a Bucks Fizz with added lemonade, felt tipsy after my first half a glass xx Also good luck Sami to hubby take Jan or her hubby as a lucky mascot xx lol Good luck seriously xxx and once again Jan well done xxx

Kim and Hubby Hope wife is feeling better and listen to what others have said. We leave hospital and we do not know what to do, You as a carer and us as the ones who went through it. I was out of it for a while so remember nothing apart from an itchy head/scars healing If in doubt call Doc in. Good luck to you both and hope to hear some good news xx Also as others have said plenty of water. Good luck both xx Winb143