Winb143
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Everything posted by Winb143
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I was cooking a curry when I had my SAH and I remember nothing until I had my shunt put in and then little by little it came back to me. Thanks to this site and my Family xx When I had an SAH/Bleed plus Ventriculitis/UTI/Sepsis my Hubby and Daughter were there for me and when the O/T's said "put her in a home and grieve for who I once was, as I am no longer that person and never will be. My hubby decided I'd be better off at home (love him so) and my Daughter was brilliant and made sure I was looked after. Then, when my brother Terry knew I would get better he came and sang with me. Him and Barbara xx We sang and talked about olden times. I come from a big Family and music was a part of our life. I am so glad I came from a big Family who all cared about me. Cheers to the Keys Family for your songs that kept me going. Not forgetting my Sisters who sang to me while I slept. I opened eyes to correct their singing only lol. This was in 2009 and in 2010 I had a shunt put in. Pre shunt I remember very little but after shunt was like awaking from a dream and learning to remember names. My Daughter showed me this site and it was so good as I thought the next step was to die, far from it ! I have a new lease of life thanks to everyone on BTG and my Family for the music and sorry for typing songs in the middle of a topic lol xxx Love to everyone xxxxxxxxxx Most of all my Hubs who Always Always took me out for a coffee in a teacher beaker lol. (early days) To all Newcomers, Welcome and the message is, never give up. I walked into Sainsburys this morning ! xx
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Hi Cat, I get teary and I can be a miserable old gal to live with, poor family. I try and explain but then I feel like I am nagging them !! I do find when stressed singing happy songs help me. I try and think happy thoughts but end up teary half the time. We will get there and as time goes on we find we are not alone in this. It helps to know we are all going through what others have been through and we are still here xx Thanks to Karen and Mods and Karen's Family who started this up xx So if you hear or see a song it is me typing a happy song as I must not stress ha ha xx Keep chin up and keep looking forward xx Love WinB143
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Well Debs, Whatever Consultant says, you know he has your best interest at heart. I wont tell you not to Worry as I would also. So go in and listen and you can talk it over with him, Good luck for Tomorrow is it? Wishing you Well Love Win xxxxx If it is nothing to worry about tell him to tell you next time as you have stressed yourself for nothing xxxx
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Good to be alive isn't it Daf, Welcome to BTG xx and remember to drink water xx I awoke and thought it was the beginning of the end for me, but then my Daughter found this site while I was in Hospital. It helped her no end and it has done the same for me, knowing you aren't the only one is such a relief !! Selfish I am xx Found I was allergic to Codeine, never was before SAH Wishing you all the best on your recovery and keep a happy frame of mind if and when possible xx Regards WinB143 xx xx
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Hello Claudia You have done really well, go at your own speed, and it is good to find a site where we are not alone in our goal to get better. This site was a Godsend to my Daughter and myself. Anytime you are feeling low come on here and have a rant, better than bottling it up xx Well Done You ...Now I say this to all newcomers so you are not getting away lol ..My Surgeon told me to try not to stress and I do this by thinking of fun times and a song xx So Good luck and Welcome to BTG Love Winb143 xx
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Hi Josie, I got up and went back to bed at 10ish ..just got up !! You will get used to it . It is your brain telling you have a rest xx I have always been a watery head, guess that's why I got hydrocephalus ha ha xx Josie come into Green room and have a natter, well when you feel like it xx Now cheer up and remember to smile xx Love Win (I will sing otherwise) xxxxx
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Mild hallucinations/live dreams?
Winb143 replied to Mindy's topic in Non-Aneurysm SAH or Perimesencephalic SAH
Hi Mindy, I had no dreams like Michelle once I awoke from dreamland, but they have returned now . Always write down about the things that happen to you as I cannot remember 5 mins ago xx Wishing you well and drink water as you have already been told and try not to Stress as stress is a no no xx bad for us !! Now singing is good for us and keeping away from doom and gloomers, we need laughter in our life not others troubles. I don't mean that rude but you need calm and no stress around you, so give yourself a break and get well at your own speed xx Take care of yourself xxxxx Love Winb143 xxxxxx -
I agree with Sarah alias Kempse Lise xxxx Not making light of what you are having done but trust the Docs they know what is best for us. I wish you well and I will have a word when nearer the time xx I always chat with Sky and my Mum lol xx Wishing you all the best and let us know how things went after op xxx Love Win xxxx No Stress if possible xxxxx
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When I first went visiting I was" thingyme bob and whatshername said". My short term memory was shot, it comes back slow but sure. Was always proud of my memory. Long term okay but what happened 10 minutes ago I just couldn't grasp. So you can always ask me to keep a secret as I will forget within a minute xx Good to be alive no matter what xxxx Win xxxxxxxxxx
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Hi Luke, I called it Cukooland as I saw and spoke but everything was in the past, I saw my Daughter but she was at school age and she is 40 plus I remember weird things like nurses jumping on me and I swore at them. I fell out of bed lol xx poor nurses having a seizure ! This was in 2009, I also had a catheter in which also made me ill. 2010 came and they decided to move me to hospital nearer to me Then they said a shunt would help me and Neuro Surgeon said if it was his wife he'd have it done. I woke up singing to a nurse so I am told and have gone from strength to strength. Was told I would never walk again now I can walk 200 yards when feeling okay but when back aches approx. 60 to a 100 yards. A Walk is walking though !! I sing old songs my Family sung to me while out of it . Every little you can do to help your Mum even if it seems daft do it xx She is in there so good luck to you all and never give up on her xxxxx Give your Mum my best wishes xx If this makes no sense I am typing with dog on my lap xx WinB143 xxxxx
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Mother, Brother and Myself Cindy - all early 50's
Winb143 replied to Cindyvincent's topic in Introduce Yourself
Hi Cindy, My Aunt Nell/.Ellen had a brain bleed and all she remembered was the light going off. Her 2 sons had bleeds also and they had bad ones, going way back as I was 10 when Aunt Nell had hers. I asked N.S. if it was a weakness on my Dads side and he told me we only look at immediate families ie Brothers, Sisters, Mums and Dads !! Glad in a way my Daughter has migraine as they gave her an MRI scan which put my mind at ease..Phew . I am not medical but it seems funny that an Aunt and her 2 sons had them and me !! but who knows xx. Take it easy and keep happy it really helps if you can keep Stress at bay and sing or remember a time when you laughed, as that helps me. Good Luck and remember no rows or listening to others worries xx Smile at everything and think only of good times, Love Winb143 xx xx Hard to do but go for it xxxx -
Hi Joanna, Hope you get better soon, Do not rush things, This site has helped my Daughter and myself no end. When I was in hospital it gave her somewhere to write her worries /concerns about me down. I was out of it so never knew what was happening. Best thing is No Stress !! Try and keep happy and never take on others worries. Good luck on your recovery and a smile a day helps xx Take Care WinB143 alias Win xxx
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Dealing with daily vomiting
Winb143 replied to Cassandra's topic in Cerebral AVM's - Arteriovenous Malformations
Thundery weather does mine in and dull overcast weather so always have sunglasses at the ready Keep Bright as the worst is over with xx now you can mend xxxxx Love Win xx -
Dealing with daily vomiting
Winb143 replied to Cassandra's topic in Cerebral AVM's - Arteriovenous Malformations
Hi Cassandra I have a shunt also, touch wood (head) no trouble YET !! Glad it is sorted and you feel a bit better !! No Stress, My surgeon told me this so pass it on to everyone lol Water helps xx Take it easy and all will be well, don't worry when weather becomes overcast as all who have shunts on here get what some call a barometer head. heavy feeling xx Well I think most do ???? lol xx Take it easy Win xxxx -
You will get there Pete and Sal, When I awoke and told I had a bleed this site was a life line for my Daughter and then me once I had a shunt in. Had hydrocephalus !! I was told by Neuro surgeon no stress and life is full of it, so I sing when down xx Good luck to you both and keep asking questions xxx Win xx
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brian hemorrhage Sadz - Brain Hemorrhage ICH
Winb143 replied to sadzter's topic in Introduce Yourself
Hi Sadz Never give up on Brother and as Super said, we cannot offer medical advice. Perhaps there is someone on here who has been through similar. I was told I'd never walk again but I can walk 60 yards on a bad day and 200 plus on a good day. (Back goes) I do hope your Brother gets better as it is a long haul and he'll need family around him. Keep his spirits high and with you in his corner who knows what he can do as the human spirit is strong. Be well and keep brother happy, I wish you and Brother all the best on his recovery. Regards Winb143 xx -
Hi PJ, All I can do is ditto what others have put xx ie drink water as it helps head. Perhaps ask you to read this and imagine if your brain could speak to you xx Now take it easy and I know you have a lot to contend with but I find not to listen to Doom and gloomers tales, rest up when you can and listen to your body. I find a smile helps me to get through rough times. Perhaps one day you can and will smile again and no stress my surgeon said. So I sing when down xx poor you, you have yet to hear me sing/type a song out xx Wishing you well Winb143 xxxx Welcome to BTG xxxx
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Also Jan, Thank Goodness we made it to see our kids again, no matter what age and adaptations we made, to be able to tell them how much we love them. Thank our Families for sticking by our sides, when others gave up on us. The Love we felt when we awoke. Everyone who knew us before SAH/bleed was caring for us. Now they have adapted and I guess so must we. Life goes on but we have altered slightly, I cannot take noise and arguments. (Unless it is me singing) ha ha Be well Both xx Love Win xx xx
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Phew thought I'd never get rid of check boxes lol Hello Sally, I had coiling done when my head was bleeding and everyone says it is so much easier when there is no blood about. You will still feel hesitant but they will sort you out xx xx Glad I was in cuckooland when I had my shunt put in for hydrocephalus . This site is a God send and it is good to know you are not alone in this xx Wishing you all the best and chin up xx Winb143 xx
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Hi Lise, I had an SAH and it is much easier for you that there is no bleed they have to contend with. Coiling is so much less invasive, but it is natural for you to be worried so worry away xx Good luck and when is op ? All will be okay. xx Keep Strong Win xxxx
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Hi Josie, My Daughter has panic attacks and she always keeps water with her when she feels uptight. I wish you good luck on anxiety and hope it goes. I had a weird feeling like a migraine and my eye went dotty so I assumed it was a migraine and this was in a Café. Once my food came up and hubby came back, I felt secure xx Food always helps me lol xx Good luck and do not let anxiety win, you can beat it xx
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Various issues after brain haemorrhages - new member - Robert
Winb143 replied to Robert semple's topic in Introduce Yourself
Hi Robert, Glad all is okay your end and you sound like you are doing so well. Do not worry if you get down moments as we all get them. Sounds like you are doing really well. In the early days decisions were my downfall, as I didn't want to make the wrong decision ha ha, that wound my family up more. You are doing so well, so be proud of any little improvements and if you get a little forgetful it is your brain telling you relax. Keep Well Robert and smile always xx All the best Win xxxx Note: Pop into Green room when you have spare time?? if ever lol and let us know how day went xx -
Deteriorating eyesight 18 months post SAH
Winb143 replied to Jan's topic in Subarachnoid Haemorrhage Discussion
Jan you missed and kicked me lol xx Good luck the 2 of you xxxx All will be well and you will walk away with a nice pair of glasses and bump into each other lol j/k xx Hope all goes well at opticians Victoria and Jan xx Deb go with them xx Win xx xx -
Hi Josie, Life is precious as I found out after my SAH. Take it slow and do it at your own speed. I had mine in 2009 and was told I'd not walk again but 60/200 yards feels good. So never give up and keep happy always as we are the lucky ones. A song or a smile always helps me keep cheery. Yesterday was a bad day for me but today all is well, no tears lol poor hubby xx Take care of yourself and water as Clare said xx All the Best Win xxxx
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Hi Deb and Joe I had my SAH 2009 and still get tired, but it is great to be alive, I agree !! Something went in my back and it stops me walking too far, but they said I would never walk again. 60/200 yards depending on how I feel. Good luck on your journey's and never give up xx A song helps me and a smile xx and knowing I am not alone in this, we can all understand when others have a bad day xx Keep a smile at hand for bad days. Good luck you both Win xxxxx
