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Hi Janet

Sorry to read your having a tough time x x I think a few of us are feeling it lately x x I also have a headache, feel dizzy and resulting in feeling/being sick x x

Its so hard to just get on with life when feeling like this x x I get through by focusing on this is just a rough patch and I will have good days again x x even though i am on my 6th day of feeling like this x x and trying to get out at least once a day helps x x fresh air and in my words keep you sain :lol: only so many days I can take of looking at 4 walls x x

The good days are just around the corner hun hang in there and keep smiling x x x a smile a day keeps the doctor away in my moto x x

lots hugs

donna

xxxxx

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Hi, it will pass in time, how much time is different for everyone. I am coming up to 1 year post SAH and I can honestly say it took 10 months before I started to feel a little better. I still get bad days, stiff necks and extreme fatigue but the good days are starting to outnumber the bad days.

Take your time, don't push yourself, don't over do things, and don't expect to see big improvements in the early days.

Start to do things a little at a time and get plenty of rest.

Look after yourself, Kelvin.

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Hi Janet,

It's not abnormal after a SAH to feel the way that you do and emotions can be all over the place for quite some time after the SAH, but would advise you to see your GP and have a chat, especially if you think that you're becoming a little depressed or experiencing anxiety ... they're able to help you and even though we normalise the experience here, you don't have to sit and suffer, as there are meds that can help.

Rest up for a while and if you're not feeling better, then try to make an appointment with your GP.

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Hi Janet - Yeah, unfortunately it is normal. Know you don't want to hear this probably, but you are still very early on in recovery. You've experienced a tremendous shock to your body - a huge thing has happened to you. That doesn't make you feel better, but it's your brain in the healing process and it does take a while. Like Kelv said, we all recover at different rates and I think it's safe to say for most of us, it's months before those "feelings" let up a bit. Not trying to discourage you at all, just being realistic. It is a process, and not a fun one at that! Things will improve with time, it's just hard while you're experiencing these things now. Donna was right - you'll have good days and bad. Give yourself a big hug and know that it will get better. Hang in there - you're not alone in this. I'm glad you're coming here and asking questions - It took me about 5 months before I started posting anything at BTG. Wish i'd started sooner, like you have. It's given me great comfort to know everyone here knows what I'm going through and how I'm feeling.

Sending big hugs and good energy from across the pond,

Carolyn

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Hiya, I would call the GP's back and explain what you've been through, if that dosnt work get them to get a doctor to call you back, and if that dosnt work just ask for a home visit, I'm sure an appointment will suddenly become avaliable......

take care, but dont wait 4wks hun

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Janet, if you're feeling poorly after a SAH, they should be able to offer you something earlier .... tell the Receptionist that you've recently had a brain haem and experiencing bad heads and that you need to see the Doctor as soon as possible. The waiting time for my own GP (who's very good and hence being busy) is also about 4 weeks, but I can get an emergency appointment with another Dr who's on Triage or a telephone appointment with my own GP within the next few days, where they can assess you over the phone and decide whether or not you need to come in. If you're worried, then phone them back and tell them of your situation.

Another avenue is your Consultant's Secretary, at the hospital you were treated ... they should also be able to advise you.

Unfortunately, from what I've seen on this site, there is no standard after care post SAH throughout the UK and it seems to vary with GP Practices and Hospitals in each region. ... I often find that a visit, face to face with the Dr's Receptionist at the Surgery, makes a huge difference, rather than being on the end of the phone where someone is faceless ... :wink:

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Hello Janet,

Sorry to hear you're feeling so rough, as everyone else has said, time really is a healer. You are still in such early days. When I came home from hospital I was pretty much in my bedroom for about a month, then with time each day I would go out for a walk, firstly around the garden, then down to the end of the road etc. It took me a long time to feel confident just to walk to the end of my road on my own. I still get nervous sometimes now, crossing roads is the worst.

I'd also like to say that I too used to have a problem getting a gp appointment. As others have said, phone them again, maybe speak to the practice manager. I put in a complaint and my gp was not happy with the way reception dealt with things so she put info on my records that I'm not to wait so long to be seen.

I hope you're feeling better soon and get the treatment needed from your gp asap.

I'm sending a big hug.

SarahLou Xx

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Hi Janet,

I'm over on the west coast of Canada (waves from across the big pond and the continent between us) so I have no idea what your health care system is like over there...but that in mind I would suggest the following:

a) listen to the other 'more experienced' SAH'ers over here on BTG (I had my PMSAH on June 17th, so am a newbie, like you) - we are indeed in the early stages, they have gotten through and are futhur down the road of recovery...they've all been here and made it through, they have lots of wisdom to share.

B) see your GP as soon and as often as possible. I think I"m annoying my GP with my (almost weekly) presence, but at the same time I think (hope) I am helping him to learn as we go along. If nothing else, he is charting my progress each week/two weeks which may be helpful for me down the road.

c) if you haven't already, watch the 1/2 hour video (click link here) produced by the NHS with patient's experiences following SAH, and share the video with those close to you. This will help you feel that yes, you are normal, and help those around you know the same and what to (not) expect from you in the coming months

d) let yourself cry...lots...and then lots more. I have found myself on the floor wailing many times in the past weeks. I wait until I am alone at the house because I don't want to worry anyone, and it gives me such freedom to cry what really needs crying. To say this is part of the grieving process begins to explain it, but there is so much more in this that words can't even begin to describe.

e) go easy on yourself, check in here, believe us when we tell you "Yes, it is normal" and go easy on yourself again. You've been through and are on an indescribable journey.

f) do walk everyday, even if only for a few minutes, get some air and get out of your house/flat

g) drink the prescribed (by other BTG'ers) 3 litres of water each day. It will help clear the drugs out of your system and flush your body cleaner...it does stave off headaches.

h) check back in here at BTG as often as you want/need to.

Good luck on your healing journey. None of us asked for this, but it's the hand that's been dealt to us. I thank all there is that I am still alive - even tho I often feel that life is overwhelming me these days.

All the best to you.

Riane

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Janet

Thats weird ive been having a lot of neck pain recently, and strange heads. I usually find that i have a good couple of weeks then bam a few days of weirdness again. I ttry not to worry anymore as that makes it worse. I also find it worse around time of month.

Hang in there and take care.

Traci S xxx

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Hi Traci,

That's a really good point to mention :-D, as many of us ladies around the run up to .. or during a period, tend to feel worse with the head, fatigue and PMT and it's been well documented on the site ... the drop in hormones certainly doesn't help. I would also say, that if you have fairly heavy periods, then it's worth mentioning it to the Doc .... I was also iron (Folate) deficient, due to heavy periods (which I've always had) and was put on folic acid, which improved the fatigue, after spending years of suffering. Don't ever think that there's nothing that can be helped with or blame everything on the SAH, as a good GP will carry out a range of blood tests to test for any deficiency.

Thanks Traci for pointing this out. xx

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More hugs from me! It's definitely very early on in your recovery (I know, I hated hearing that too) and you are going to have good days and bad days, like the others have said. I'd also phone back and explain to the surgery about your recent brain haemorrhage - you shouldn't have to wait 4 weeks. It's probably nothing, but you do need to be examined by a healthcare professional. Or as Karen said, try the Consultant Surgeon's secretary. Did you get the number of a specialist vascular nurse at your hospital? I did and even now, 18 months on, she says to ring any time I am worried....

Don't be too hard on yourself. You need to take it easy and put yourself first! hugs x

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Hi Jan,

Sounds like we have same Doc .... I made appoint 5th Jan... they said okay end of January...4 weeks nearly !! okay 3 weeks lol

Before my SAH if Doc would not give me appointment when I needed it...I would say "okay can I have home visit"...they soon fitted me in.

Since my SAH I am more quieter (No I am not who am I kidding lol ) a little quieter then. !!!.No Win stop lying ..oh gosh anyway

Hope you cheer up and feel better in yourself....Now try and sing or do somthing that makes you happy

Good luck

Love

WinB143 x

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Hi Janet

As others have said you should be able to see another doctor on the day you ring. I was told after my coiling by my own GP that if I felt that unwell and was unable to see a GP to go straight to Accident and Emergency, this I did on two occasions because I was worried just like you. I was told everything was OK and that it was early days, at no time did they say I was panicking and were very helpful. Although you are experiencing these problems which is normal you should get checked out.

Chin Up

Regards

John

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Hi Jan,

Been away so only just catching up with things on here. I felt exactly the same as you this time last year and I'm glad to say that it has got better. Some days I can actually forget for a few hours what has happened. I went to see my doctor and got some medication which has helped me over the low periods but I feel as if it has also diminished the highs as well so am going back to see him and hopefully stop taking them. If you were in Walton get in touch with Kath Stoneley, she is brilliant and will put your mind at rest and never makes you feel like you are bothering her. I know I've said it before but if you need to talk pm me and i'll send you my no.

Jan x

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