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Tina

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Everything posted by Tina

  1. Hi Liz A very warm welcome to BTG, so glad you found us. Some great advice from Clare above. I had an SAH and had all the symptoms you are having too. It is scary but things will get better. Listen to your body and be kind to yourself. It just takes time and getting to know your limits. Its great you have your wife, sister & dogs around to support you. It is such a very worrying time for them too. You will find lots of helpful information here and friendly caring support Feel free to ask any questions and to join in the daily banter in the Green Room in the members area. As Clare says, you are not alone you have us now Take care and we look forward to hearing more from you. Tina xx
  2. Hi Shobs & Sandeep A very warm welcome to BTG ! So glad you found us. Some really great replies from the others above. Good days and bad days we are here for you. Keep in touch, we are a friendly bunch and we look forward to hearing how you are both doing. Take care Love Tina xx
  3. Hi Karen A very warm welcome to BTG. Find above the link to 'A letter from your Brain' that the lovely Win mentioned in her post Wishing your Mum well and look forward to hearing more from you. Take care Tina xx
  4. Agree with Sarah, so beautifully written Daff Thank you lovely lady for all your caring, helping, supportive, inspirational words to others on BTG. Well done on all that you have acheived and hope you enjoyed your special day. Take care Love Tina xx
  5. Hi a very warm welcome to BTG. I really hope you hear soon from the DVLA, it does take time. As Subs says above, keep chasing them. At 6 months after my craniotomy i still had head pain. Especially if i bent down, it was awful. As everything was mending and knitting back together, I felt very sharp twinging pains, also felt like something was crawling around my head, very strange sensations ! Things did improve over time, apart from down the right side of my face, eye and side of head, where i have nerve damage and metal plates. The cold weather really aggrivates. Please feel free to join in the daily banter in the Green Room and also the Brain Games. We are a friendly bunch . Look forward to hearing more from you. Take care Tina.
  6. Hi A very warm welcome to BTG. So glad you managed to get to somewhere you knew to direct the ambulance services....how scary ! Well done on getting back to work so soon, but i do agree with the others, that it seems very quick after such a major trauma to your brain from the bleed. I was given some great advice from Karen who created BTG....she said be kind to yourself and listen to your body. When you are feeling irritable slow down and take a break. Your brain is working over time trying to repair at the same time as functioning as normal. Did you start a phased return to work? Most find this gently eases them back into work with less stress. Here is a link posted by Super Mario, you may find this helpful: Wishing you well and we look forward to hearing more from you. Take care Tina.
  7. Cat, you are in the very early stages of recovery and just taking it one day at a time is the very best way. Pace yourself and listen to your body and drink plenty of water. I think we all have good days and bad days, its only natural after going through such a life threatening trauma. So pleased you found BTG We look forward to hearing more from you. Take care Tina xx
  8. Hi Cat A very warm welcome to BTG ! Great news your 3 month MRI was clear How are you doing and feeling ? Feel free to ask any questions, we cant give medical advice but can share our experiences. You have come to the right place for lots of helpful information and caring friendly support. Please also feel free to join in the daily banter in the Green Room and the Brain games Take care Tina xx PS love your profile picture
  9. Hi Tim A very warm welcome to BTG. So glad your partner found us. I think that many of us are so grateful to be alive and concentrating on getting better in the first few months/years. Then it all hits you, how your life may have changed and what you and your family have all been through. Going to see your Dr was a very good thing and I agree with the others, let your Dr know how you are doing. Also maybe ask about some counselling, i found it very helpful to be able to talk to someone away from family and friends. I did have to wait over 6 months, but it did help. Keep coming back here, you will find lots of helpful information and friendly caring support for both you and your partner . Feel free to join in the daily banter in the Green Room and the Brain games. Take care Tina xx
  10. Hi Mindy A very warm welcome to BTG. Glad you found us. Thank goodness they finally did a CT scan, so often we are mis diagnosed ! To answer your question, in the early days I used to have very vivid dreams and also used to twitch and sometimes jolt myself awake. You are as you say in the very early stages of recovery and your brain is working over time to recover from the bleed. Make a note of all the things you are unsure of or worrying about and take the list with you to your check up in a couple of weeks.. Try and rest up as much as you can and drink plenty of water. You have certainly come to the right place to find lots of helpful information and lots of friendly caring support Take care Mindy and let us know how you are doing. Tina xx
  11. Hi Luke Thoughts are with you. It must be so very hard for you and your Dad to see your poor Mum go backwards like this, but its for a way forward to a permanent solution. As Paul has said, it is very early days after her craniotomy and recovery will be slower. Your Mum is a fighter, she has proved that by doing as well as she has and also has the wonderful caring support of you and your Dad. Sending lots of positive vibes your way & wishing your Mum a speedy recovery. Remember to look after yourselves too and let us know how you are all doing. Take care Tina xx
  12. Congratulations Clare You are an amazing lovely lady and have done so well in 2 years Huge respect for getting back to work and for all your caring support to others on BTG Take care Love Tina xx
  13. Belated Happy 13th Anni-versary Super Mario You are indeed a real inspiration to us all and an amazing lovely lady I have had the pleasure to meet Lovely posts for a lovely lady Thank you for all your helpful caring support on BTG xx . Take care Love Tina xx
  14. Hi A very warm welcome to BTG. So glad you found us. Bless you, it is such early days for you in your recovery. I agree with Clare that you should stop working and take time to recover. You body is telling you to slow down. Your body has had a major life threatening trauma. Go and see your Dr as it sounds like he understands and explain how you are feeling. Ask him to sign you off work. it is very hard as you say, when you look well on the outside to others. I also can't believe the way you were treated in hospital ! Sadly It seems most of us are discharged from hospital without any information on recovery or support. What you are experiencing with the headaches, anxiety and frustration is all very normal, especially at only a few weeks in recovery. Things will get better, it just takes time. Listen to your body. Keep in touch and let us know how you are doing. You have certainly come to the right place for lots of information and friendly support to help you with your recovery. Take care Tina xx
  15. Hi Victoria, Bless your heart, please dont be in despair. You have come so far and done so well. It took me along time to come to terms with the new me too. It is so very hard when your whole world as you know it, is turned upside down. It's a huge step forward that you now can accept what you cant do and know your limits. Feel very proud of the new you and try to embrace the things you can do. Have you ever considered counselling where you both go and can talk things through. Sometimes family just dont get it. Its not because they dont care, they just dont know how to cope and deal with their own feelings because you did not just 'snap back to normal'. Things will get better, it just takes time. As Jess has said, tell your husband how you are feeling. We are always here for you. Take care and let us know how you are doing. Sending a big cyber hug your way. Take care Tina xx
  16. Hi Sharon A very warm welcome to you and your partner. So glad you found BTG. Some great advice above from the others. It really is patience, rest rest and more rest and plenty of water. Two weeks is so very early in your partners recovery. You will find a wealth of information here and lots of friendly support for you both. Keep in touch, take care. Tina xx
  17. Hi Jennifer At two years I was also struggling just like you. You are still in the early stages of recovery. The fear of it happening again even though we are told it wont is only natural after such a life changing trauma. Have you thought of asking your Dr to arrange some councelling for you? I know it really helped me and many others here, just to talk things through. PTSD is very common after SAH. You are not alone and have definitely come to the right place for help and support. Look forward to hearing more from you. Take care Tina xx
  18. Hi Robert A very warm welcome to BTG. I agree with Clare that you may well be struggling with anger and anxiety due to fatigue. I think your body is telling you to slow down. I had my SAH 9 years ago and i still have numbness in my forehead and side of face due to nerve damage from my surgery. My right eye brow is paralysed. I also suffer from anxiety and fatigue, I dont cope with things the way i used to before SAH. As much as I tried and pushed myself to get back to work, sadly i could not. Maybe as Clare has suggested you could step back, reduce your hours and see if things improve for you. Take care and keep in touch. Tina xx
  19. Maya, wishing you a wonderful Christmas and a very Happy Healthy New Year xx Good luck for your appointment on the 11th January. Let us know how you get on. Take care Tina xx
  20. Hi Maya, Good news you have been to see your Registrar and hopefully after the next meeting you will know exactly which way forward is best for you. Endovascular treatment is coiling and is less invasive than being clipped, so is a positive. I was clipped, but I am sure others will be able to reassure you about the treatment. Here is a link below that may help you. Take care Tina xx
  21. Tina

    Myra

    Hi Myra A very warm welcome to BTG. Some great advice from Sami, Subs & Clare. Like you, i have terrible trouble sleeping. Try getting into a routine of going to bed at the same time that's good for you. if possible. I found i sleep a little better if i do this. As the others have said, you are in the very early stages of recovery. I think your body is telling you to slow down. Be kind to yourself and listen to your body. Dont rush back into work, give your brain time to mend. Wishing you well with your recovery and look forward to hearing more from you. Take care Tina xx
  22. Happy 2nd year SAH Anni-versary Wendy Hope you have a lovely day and celebrate how far you have come. Wishing you a very Happy Christmas and a Healthy New Year ! Great to hear from you. Take care Love Tina xx
  23. Hi Howard a very warm welcome to BTG I had to wait for over 2 years before i got the all clear for driving again because of my double blurry vision. I was referred by my Neuro Consultant to Moorfields eye hospital at St Georges and had regular checks & tests. They have hospitals in many areas, some NHS some private. Maybe as Sami has suggested you could see your GP, they may be able to refer you to an eye specialist if you have not been already. At 14 months you are still in the early stages of recovery. Keep in touch and let us know how you are doing. Feel free to join in the daily banter in the Green Room, we are a friendly bunch. Wishing you well with your on going recovery. Take care Tina.
  24. http://web.behindthegray.net/index.php?/forum/9-the-green-room/ Graham, above is a link, click on it, it will take you to the Green Room Section.
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