Tina

Hi Adam A very warm welcome to BTG, so glad you found us. How very scary for you and your family not being able to be with you because of Covid ! I was told 6 months to a year for recovery from a ruptured aneurysm that was clipped. Totally unrealistic. You are right, everyone is different in their recovery. Some great advice from Sarah and Sami. Rest lots and drink plenty of water. I also got very anxious and had panic attacks. My GP arranged for me to have counselling, it did help. The fatigue is something is still struggle with nearly 14 years later. Listen to your body and pace yourself. Sometimes i found i went one step forward to go two steps backwards if i pushed too hard to quickly. Wishing you well with your recovery and we look forward to hearing more from you. Feel free to also join in the daily banter in the Green Room. Take care Tina

Great news Tony hope it wont be long before you get your license back ! xx

Hi Tony A very warm welcome to BTG I know how very frustrating it is waiting to get your licence back ! It took me 2 years because of my double vision. If you have not already, read through some of the other threads here in this Driving section. Others have posted their experiences and this may be helpful. Try not to stress too much about your next test. You passed ok last time and i am sure you will this time. I would send all the information you sent before as well as your new test, just to make sure they have all the information to hand. Good luck for your eye test and please let us know how you get on. I do know the DVLA are notoriously slow, keep chasing them. Take care and we look forward to hearing more from you. Tina

Hi Dawny A very warm welcome to BTG So very sorry no one replied to your first post, i know how much courage it took me to post first time. Big hugs xx Again so very sorry xx I am pleased to read that you are going to have a telephone appointment next month and hopefully you will know more about what they plan for the next step. Must be awful for you, all the waiting! Agree with Clare, make sure you write down all your questions so you dont forget anything you want to ask. Sarah, Poppy and Lorraine have had a re coiling and have shared their experiences in the link below: Hope this may help. Click on the link below and scroll down the thread xx https://web.behindthegray.net/topic/3294-more-surgery-after-initial-endovascular-coiling/?tab=comments#comment-46184 Please keep us updated. Take care Tina xx

Hi llse, a very warm welcome to BTG glad you found us. As the others have said, i love your attitude and the fact you have ordered the masks and t-shirts Really hope your phased return to work goes well. We look forward to hearing how you are doing. Please feel free to also join in the daily banter in the Green Room: https://web.behindthegray.net/forum/9-the-green-room/ Take care, go steady. Love Tina xx

We are always here for you Susan. So pleased BTG kept you sane It has been a Godsend for me and many others too. Glad you are going to try and talk to your husband again and make some calls. Yes, it is more than ok to feel frustrated, sad or lonely. It is very normal to feel this way. You are both going through a huge life changing trauma. I hope no nasty reaction to your vaccines and you both have a lovely vacation. Your happy place ❤️ enjoy, you deserve it Keep in touch Take care Love Tina xx

Hi Susan Bless you, its so hard sometimes. Sending hugs your way 🤗 Never feel like you are complaining. I know your husband went through it, but so did you and both are adjusting to the new him. Lock down this past year has been very hard and working from home and being together 24/7, you have noticed these changes in his ways so much more. If you feel you really cant sit down and talk about this with your husband. I would definitely go and see his Dr, maybe go together. Your GP can refer your husband or both of you for counselling. It would be an opportunity to discuss your feelings. I know you dont want to make your husband feel more self conscious but he may be totally unaware how you are feeling. I am sure his need of control and reassurance is because he lost some of that. Your lives have been turned upside down. It can take a long time to come to terms with whats happened. I was a very independent person before my SAH. I worked full time and hated that i could not do the things i could before. I got very frustrated at myself. I also hated noise. This did improve over the years. I still suffer with fatigue and most nights i am in bed by 9pm. My body just goes on close down. My husband has been amazing and very understanding. We talk a lot about how we feel and always have. This really did help. If i go out for a late night it would take at least two days to get over and always does. Its about compromise and meeting in the middle. Communication is so important for both of you. For your husband, its about learning his limits and again compromise. At 5 years i was getting there, but still struggled. I am now nearly 14 years down the line and still struggle. Good days and bad days. I had counselling in the early days and it really helped me to talk things through. I hope things get easier for you both and you get some help. Keep in touch and let us know how you are both doing. Take care Love Tina xx

Hi Rory A very warm welcome to BTG, As you have found, there is a lot of very helpful information here. So many of us leave hospital with little or no information on what to expect in recovery. I also wish you all the best with your recovery and agree with all the lovely Clare has said above. Feel free to also join in the daily banter in the Green Room. https://web.behindthegray.net/forum/9-the-green-room/ We look forward to hearing how you are doing. Take care Tina xx

Thank you for the update John. How very frustrating for you ! Hope you hear soon from the DVLA. Keep chasing them. Good luck Tina

Delboy thank you for sharing your experience. Welcome to BTG. Great news you got your licence back, congratulations

Hi Survivor13 A very warm welcome to BTG. Bless you, you have been through so much with your own recovery only to have also lost the love of your life during this time. Devastating for you and your family, cant begin to comprehend what you have all been through. Thank you for sharing. So glad you won a real love story ❤️ You look amazing in your pictures with your lovely family. Wishing you well and look forward to hearing more from you. Take care Tina xx

Sarah, just beautiful and can only echo Michelle. Win really was such a special lady in every way and always made me smile. Thoughts are with you and family. xx

Fiona how scary for you, bless you, wishing you well. Take care xx

❤️ xx

Oh Sarah, such very very sad news. God bless our lovely Win, who gave so much joy and made so many smile. So sad & gutted too. She will be missed so very much by us all. Thoughts are with you, sending much love to you, Al & Tilly xx

Beautifully written Chris xx

Johnnie i will message GCoutt letting them know you are asking after them.

Julian hope you had a great Birthday and the crying babies didn't ruin your dinner out hope you had your ear plugs ! .... stay strong xx

Hi Julian Happy NASAH Anniversary Great to hear all mostly good, practically 100% Wishing you well with your on going recovery. Take care Tina xx

Hi Mary-Clare A very warm welcome to BTG. Thank you so much for sharing your story. So pleased members posts have sustained and inspired you. Wishing you well with your ongoing recovery and look forward to hearing more from you. Please feel free to join in the daily banter in the Green Room, we are a friendly bunch. Take care Tina xx

Colleen congratulations on your 9 year SAH anniversary Well done you for all you that you have achieved, be very proud ! Sending much love back to you, Take care Love Tina xx

Hi Peter John A very warm welcome to BTG, glad you found us. It is very early days in your recovery, be kind to yourself, listen to your body, pace yourself and don't push too hard. Some great advice above and you will find lots of helpful friendly support here Look forward to hearing more from you and how you are doing. Here is the link for NASAH section : http://web.behindthegray.net/forum/16-non-aneurysm-sah-or-perimesencephalic-sah/ Take care Tina xx

Hi Clara I can relate to a lot of what you mention. I felt like my whole world had been turned upside down, which it had, devastated ! Many years later i stopped trying to be the old me and started to embrace the new one. Learnt how to pace myself and know my limits. I am much kinder to myself, instead of pushing too hard and making myself ill. I also had my down tearful days, more from frustration, when my words would not come out the right way or i could not remember things or did not want to see or speak to anyone or had an anxiety attack i could not control. I think it is all part of the road to recovery and it does get better, i promise Take each day as it comes, one step at a time and you will get there. BTG was a Godsend for me, good days and bad days i found great comfort and support from others here and still do You will get your mojo back, it just takes time. 5 weeks is so very early in your recovery. As Karen Hyder once said to me, be kind to yourself, very wise words. Take care Love Tina xx

Hi Krislwal Hope you will get some answers and comfort when you see your Doctor. Take care xx

Hi Dotty A very warm welcome to BTG Glad you found us. So sorry to hear about your Dad, such a stressful worrying emotional time for you all. Two weeks is so very early in your Dad's recovery, his brain will be working overtime trying to mend and recover from a huge trauma, plus doing the normal everyday things we take for granted. Really fantastic news he recognises you all, is eating, swallowing and reading signs. The confusion often comes from extreme fatigue, have you noticed your Dad sleeping a lot. This is normal as he will need lots of rest and sleep to help with his recovery, also lots of water. The surgeons are closely monitoring your Dad, and sometimes recovery does take months & months, there is no time limit, everyone's recovery is different. Although he is confused and seems in his own little world , he is responding to your questions and his memory is there, which is a huge positive Wishing your Dad well with his recovery and look forward to hearing how you are all doing. You will find lots of helpful information on the Forum. Please feel free to ask any questions, we cant give medical advice, but can share our experiences. Take care & remember to look after yourself. Tina xx