SarahLou Posted August 5, 2011 Share Posted August 5, 2011 Hi, I was wondering if anyone has started suffering from tinnitus since they've had SAH? I've never had this before but started to get it 6 months after my operation. I've seen an ENT specialist,my hearing test was fine and he said he was sure the tinnitus had been caused by the brain trauma. However, when I saw the neuro consultant a few days later he said no, the tinnitus wasn't caused by my op if it had been I would have had it since when the op was done. No one can tell me if it will be permanent. At neuro they checked all over my head and neck pressures,all ok. I see ENT again in sept.Gp has given me sleeping pills,but I know I can't stay on them for long.I don't sleep too great even with the meds. The tinnitus drives me insane, to cope with that on top of everything else at times brings me to my knees in tears. Wondered if anyone else suffers with this too since SAH?? SarahLou Xx Link to comment Share on other sites More sharing options...
goldfish.girl Posted August 5, 2011 Share Posted August 5, 2011 Hi SarahLou, Yes I have had ringing, buzzing & various other noises in my ears since SAH which were never there before. I don't think it happened straight away (or maybe I was just too focused on other side effects to notice this at the time?) It has got better over time and is now only a rare occurrence, hopefully you will find the same. M x Link to comment Share on other sites More sharing options...
Bill B Posted August 6, 2011 Share Posted August 6, 2011 Hi Sarahlou & GG. I'm glad you've brought this subject up. Apart from lack of balance and double-vision, Tinitus is the most invasive symptom that that I have experienced. A constant ringing, like some after effect of a giant bell, that worsens with fatigue. I have had numerous conversations with Nueros, GPs and Opthalmics, all to no avail. There is no medical explanation, as far as I know, for the auditory residue of SAH. Yet, here it is. We can't all be making it up! I must admit, it's the least of my problems, so I don't pursue it with any vigor. Just as a matter of interest, the note That I receive is "G". Is this the same for you? (Use a glockenspiel or tuning- fork to assess.) The symptoms only appeared after my second coiling (August 2010) when the pressure, of an un- ruptured aneursym, was consolidated upon the Third nerve. Double vision, nausea, lack of balance and tinnitus have all resulted from this procedure. Since the invasion of "G" I now write all my new musical works in the key of "G" because it's easier to go with it, rather than fight it. Coincidentally, "G" is the note emitted by amplifier transformers and also seems to be the note most prevalent in background radiation. Spooky, eh? It does drive you nuts at first, but I have found it melts into the background after a while, and is only noticeable when it stops, for a brief moment. There is no advice I can give you , other than my own personal methodology, which is to embrace the sound,and use it as a Mantra/focus for relaxation. It's not going to go away, so embrace it, or it will drive you nuts, like an un- attended car- alarm , incessant and unending. Dreaming of quietness! Bill B. x Link to comment Share on other sites More sharing options...
SarahLou Posted August 6, 2011 Author Share Posted August 6, 2011 Thank you for your replies. Goldfish.girl I'm keeping everything crossed that mine too fades with time. It's there all the time but does seem louder when I'm tired or stressed. Bill, I haven't been given a note, all they did was a hearing test and a bit of a chat, he really thought it was due to my surgery. So maybe other things will be done at my next check up in September. Thanks again for the replies, I've been feeling so alone over this. SarahLou Xx Link to comment Share on other sites More sharing options...
maggie Posted August 6, 2011 Share Posted August 6, 2011 Hi SarahLou, I'm experiencing the same. It gets worse as the day goes on by then my head sounds like radio that needs tuning.And I can always measure my fatigue levels by the intensity. Thanks for the tip Bill I like the use if this invasion as a mantra,may as well make use of it eh! Sorry Sarahlou I haven't any helpful tips or advice to give only empathy and I share the same frustration too. Link to comment Share on other sites More sharing options...
Winb143 Posted August 6, 2011 Share Posted August 6, 2011 SarahLou, It doesnt go as much as you cope with it ...and it doesn't bother you so much I have found......I get a sound like a seashell up to my ear....a woosh shoooo woosh shoooo oops ..lol I nearly sent myself to sleep .....Ha ha Going shopping took my noises away honestly noise about me helped !! My brother sang in the key of C so G is much too deep for us ..lol....Sang = Song..Ready all .....okay all hold ears Again !!! Oh Danny boy the pipes the pipes are calling From Glen to glen and down the mountside The Summers gone and all the leaves are falling Tis you Tis you must go and I must bide enough Win hush your mouth Love to all Winb143 xxxxxxxx Link to comment Share on other sites More sharing options...
jess Posted August 7, 2011 Share Posted August 7, 2011 Hi yes I suffer with it too but it has got better as time as gone on or I don't notice it as much. I will also be lying in bed sometimes and I hear the odd click which wakes me up. Jess.xxx Link to comment Share on other sites More sharing options...
FionaH Posted August 7, 2011 Share Posted August 7, 2011 I don't think I have tinnitus but I have found that post SAH any white noise such as a fan whirring etc makes me think I can here music! It is a bit hard to explain but it sounds like a radio playing somewhere, not quite loud enough to make out what 'song' is playing but if I turn my fan off the 'music' goes too. Also sometimes if I move my head to fast looking round etc I hear a swooshing noise in my head. I might mention it when I am next in the Brain Injury Unit but I don't suppose they can stop it:crazy: Link to comment Share on other sites More sharing options...
Anne Fleming Posted August 17, 2011 Share Posted August 17, 2011 Hi Sarah Lou Yes I have tinnitus in my right ear since my SAH, 3 years ago. I think it is caused by losing quite a bit of hearing in my right ear. I now hardly notice the tinnitus. I don't really hear it when everything is silent but when I am listening to someone speaking or to any kind of noise, I hear this buzzing in my right ear. It's like my right ear is still fighting to hear what is going on even though it can't. With warm wishes Anne Link to comment Share on other sites More sharing options...
xizzi Posted August 27, 2016 Share Posted August 27, 2016 I had SAH surgery in March 2016. I don't believe I had tinnitus immediately, but have developed it and it just keeps getting worse and it is driving me nuts. I take cholesterol pills and now blood pressure meds since my surgery as well. We think the extremely high blood pressure caused the SAH to rupture. I hope this tinnitus goes away, can't stand it Link to comment Share on other sites More sharing options...
SarahLou Posted August 28, 2016 Author Share Posted August 28, 2016 Hi xizzi, It's strange for me to see this post after so many years! Saddens me tinnitus still causes an issue to so many people following an SAH. Well, six years on and the tinnitus is still with me. If you want my honesty I have never really learnt to accept it or cope with it. It does, at times, still have me climbing the walls. It's defently worse if I'm extra stressed, fatigued etc, so I do all that I can (most of the time!!) to have complete brain rest, after work for example, and I try not to put myself in situations that I know will make it worse. However, some things are beyond my control. I've been having quite a few issues recently and am seeing a Neurologist in a few weeks, increased tinnitus is on my list of things I need to talk to him about. I also take cholesterol meds and BP meds since SAH. I was put on them soon after as I only have one kidney which took quite a bashing from the contrast dyes used for surgery,so they needed to keep further stroke risks as low as possible. I've had two MRI scans since the original ones, no known cause for the tinnitus has been seen. I had a big rupture, a lot of blood, my ventricles were full of blood, I had hydrocephalus too, and a borderline vasospasm, so heck I wouldn't be surprised if all that caused the tinnitus!! I'd just like some answers though, oh and a cure would be really fantastic! I'm sorry that I don't have any answers for you and I really do hope you're tinnitus goes away for you. I'm here should you ever want to chat or rant! Take care, SarahLou Xx Link to comment Share on other sites More sharing options...
Winb143 Posted September 1, 2016 Share Posted September 1, 2016 I find if I get stressed out it is worse, I tell my family this but as of yet no one listens to me about it. I think because no one can see it, then it isn't there but we know different xx Think I have learnt to cope more with it rather than let it lead my life, so no Stress and do not get uptight. Good luck All xxxx Win xxxxxxxxxx Link to comment Share on other sites More sharing options...
Lyn Posted September 1, 2016 Share Posted September 1, 2016 I can only hear ringing when I'm in bed trying to sleep, its definitely worse when I'm really tired. I've had 3 ear infections in 6 months since my nasah. Doctor doesn't think its all connected...bit of a coincidence tho! Link to comment Share on other sites More sharing options...
Winb143 Posted September 1, 2016 Share Posted September 1, 2016 Try singing as I always sing at night and in the morning and lunch time lol I never found it so bad when I was out and about but indoors it was really loud and too many people talking also xx Be Well and keep happy when possible Link to comment Share on other sites More sharing options...
Jan Posted November 28, 2016 Share Posted November 28, 2016 I'm so pleased to have found these posts. I have a sound in my right ear mostly, sometimes both not all the time but more and more frequently now. Hard to describe, sounds like Ive put the central heating on?! Or a very distant train. Im not sure if it's tinnitus, no point going to my GP, he's not the most helpful man. There is a 'hearing centre' in town I wonder if they might be able to help? Jan xx Link to comment Share on other sites More sharing options...
Deb Posted November 28, 2016 Share Posted November 28, 2016 I'm also happy to have found this post. I have had terrible noises in my head since I had my SAH, pretty much from when I can remember anything about it. When I was still in hospital I asked the nurse if she could turn the radio off as the songs on there were on a loop and really annoying me. They all looked at me as if I was crazy, One male nurse actually said "Are you mad" There was no music. Now I have a variety of noises ranging from whooshing, squeaking to actual words being constantly repeated. No-one seems concerned that it's hppening but it drives me insane at times. I also don't understand how it can be so loud yet no-one else can hear it! Deb. x Link to comment Share on other sites More sharing options...
Chelle C Posted November 29, 2016 Share Posted November 29, 2016 I was diagnosed with Tinnitus last year, never noticed the noise prior to SAH, I was very aware of a ringing noise in my ears, it sometimes sounds like the noise you get when you put a seashell to your ear. It`s always worse when there`s a lot of noise and then it goes quiet, it sounds even louder. Bedtime is the worst, it always sounds a lot louder then, probably because there is no other noise to distract from it. The person who tested my ears said they couldn't be sure that having the SAH had caused it but they couldn't rule it out completely, they did recommend a CD that plays certain types of sounds, but I decided to try to learn to cope with it. I do have days where I have no noise at all and it`s lovely, they are few and far between. There is a tinnitus website, where there is a lot of information. Love Michelle x Link to comment Share on other sites More sharing options...
Winb143 Posted November 30, 2016 Share Posted November 30, 2016 My other Sisters husband had timber fall on him and he had a bad case of it bless him xx and had it the rest of his life. As I have put, I have ringing and shhh ing (my explanation of it) especially when under stress !! I put everything down to stress since SAH. Like you said Michelle a shell up to ear xx Cannot take loud voices or being told off, or listening to my sister on phone too long. As she always tells me her tales of woe and how sad she is. I do Love my Sis but I need happiness around me so I sing. Really I am a selfish moo!! My Dogs barking gets to me but I love her so xx Tilly is forgiven ha ha Sorry Sis lol So we sing and think happy thoughts xx and listen to my Sister lol whom I love so much XX Just hope Hubs comes in happier lol xxx Link to comment Share on other sites More sharing options...
Lizbeth Posted December 18, 2016 Share Posted December 18, 2016 Hi, I'm very new to this (signed up today). I had my NASAH over 2 years ago, and my main problems now are fatigue and headaches. But.. since spring this year I too have been getting tinnitus on and off. Hearing tests etc. all ok. It actually hadn't occurred to me that it might be linked to the SAH. And certainly didn't to the GP, who also seemed not to realise that extreme fatigue is part of the "package" too. It is thanks to BTG and the Stroke Association that I now know this myself. (I gave the GP a printout of the Stroke Association's "Fatigue After Stroke" leaflet. Possibly not the most tactful thing to do, but now she knows!) I have found that the shooshing noises vary a lot, but make listening to other people quite tricky at times. It is comforting to know that there others of "us" that this is happening to. Thanks for all the useful info this site provides. Link to comment Share on other sites More sharing options...
Winb143 Posted December 18, 2016 Share Posted December 18, 2016 When you know others get it Lizbeth it does make you feel better doesn't it. Wonder why that is , guess it makes us all together in the fight to get better and a trouble shared is a trouble halved. And we cannot all be imagining the shhhhh and whistling etc ..lol xxxx Good luck Win xxxx Link to comment Share on other sites More sharing options...
Jan Posted December 21, 2016 Share Posted December 21, 2016 I gave in last Friday and booked an appointment at the docs. I saw a new doctor who was very reassuring, he checked my ears and throat, all clear so he referred me to the Audiology dept at my local hospital for a hearing test. I went yesterday ( yes, that soon! ,) Result being: Yes I have tinnitus and slightly decreased hearing in my left ear. I knew that. I think everything on my left side is slightly decreased! ! The Audiologist has suggested that I try a hearing aid in my left ear and a sound blocker in my right ear The sound blocker will 'play' white noise. It's to be hoped I put them on the correct ears!?Has anyone tried a sound blocker? I would be interested to know if it helps. I go to get them fitted on 5th January Jan xx Link to comment Share on other sites More sharing options...
Skippy Posted December 21, 2016 Share Posted December 21, 2016 Not tried them Jan - if anything my SAH has left me almost super human hearing, especially when it comes to hearing annoying noises!! Link to comment Share on other sites More sharing options...
george Patterson Posted March 7, 2017 Share Posted March 7, 2017 I have had white noise and octave concert c since 1995, I sleep fine, its ringing away now so dont worry you lot you will become used to it if it never goes, I hear perfectly, my wife had a brain hemorrhage dec past and it has left her with tinitis, does any one know why??? And does it signal that she may have another hemorrhage Link to comment Share on other sites More sharing options...
Jan Posted March 7, 2017 Share Posted March 7, 2017 Hi George, I don't know why some of us seem to develop tinnitus after Sah, personally I think it must be part of the aftermath of the bleed rather than it signalling another one. I'm no doctor, just my opinion.Annoying as it is , it is reassuring to read your post knowing that perhaps we just get used to it and learn to live with it.. I have an ENT appointment tomorrow , so I'll hopefully learn a little more about t, I'll report back if I do ! , Jan xx Link to comment Share on other sites More sharing options...
Winb143 Posted March 7, 2017 Share Posted March 7, 2017 Good luck to Wife, George and Good luck with appointment Jan xxxxx Be Well All Win xxxx Link to comment Share on other sites More sharing options...
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