Jump to content

New Member - Rob


rob.com
 Share

Recommended Posts

Hi,my name is Rob.I have been reading some of your stories and had not realised there were so many people 

affected by aneurysms. 

 

My story

August bank holiday.after taking my daughter and her friend to our local Mcdonalds got back home and was sitting down.got up and felt a bit strange.head rush,only way to describe it.

remember going up stairs.and then waking up in hospital two weeks later.after suffering a Baslier tip aneurysm hydrocephalus.which was coiled and an Evd was inserted.

 

Luckily I got to hospital fairly quickly, thanks to my daughters quick thinking.and came through with out to much damage.and consider myself extremely lucky..I don't remember much about hospital and the time i was there.proberly due to the amount of drugs and pain relief i was given.

 

Its been five months now,and i feel loads better.

Have a few problems one being fatigue.and tiredness.

Link to comment
Share on other sites

Hello Rob

 

Glad you found this site. You will get much help, advice and encouragement from the members here.

 

I also just found out about BTG four weeks ago-

 

Getting you to the hospital quickly certainly helped you get the care you needed. How long were you in hospital and what type of work do you do? How many hours are you working now?

 

You will find that fatigue is a common after effect of SAH as you read the comments here.

 

Keep asking the questions that you need to know and you will get help here.

 

Regards

Link to comment
Share on other sites

Hello Rob

 

Glad you found this site. You will get much help, advice and encouragement from the members here.

 

I also just found out about BTG four weeks ago-

 

Getting you to the hospital quickly certainly helped you get the care you needed. How long were you in hospital and what type of work do you do? How many hours are you working now?

 

You will find that fatigue is a common after effect of SAH as you read the comments here.

 

Keep asking the questions that you need to know and you will get help here.

 

Regards

hi subzero

thanks for reply..

I was in hospital for just over three weeks.two in icu,and one in hdu.

i'm a self employed carpenter doing four days a week.hpoe fully back full time soon as pos.

Link to comment
Share on other sites

have been reading other peoples topics trying to find out about strange sensations in heads after sahs.

i get what can only be described as spiders crawling over my scalp.even have to get my wife to check some times.

drives me nuts.

the other one is quite strange,on the side where my drain was, i get the sensation hard to describe.like a squalching.

 

if any one knows what i mean.please let me know .

Link to comment
Share on other sites

Hi Rob,

Welcome to BTG.

 

You will find fatigue is a common problem amongst survivors.  I was coiled.  I suffered fatigue on a grand scale to the point where I was sleeping up to 16 hours a day and when I was awake I was very tired and wanted to go back to sleep!

 

Over time, it emerged that my pituitary gland had been damaged and stopped producing growth hormone.  This helps children grow but in adults it affects stamina, muscle strength, concentration and the like.  After many months of tests I now have daily injections of this hormone and I am much, much better.  

 

Let me stress at this time it is a rare condition and there are many causes of fatigue, not least the event itself which will have taken a toll on your body strength which will need more time than you think to recover fully.

 

All I will say to you is keep liaising with your doctors/nurses at the hospital where you were treated to see if there is any underlying problem and describe to them what you have described on here.

 

Everyone's experiences of SAH are different and are described differently, but they have several common themes, one of them being fatigue.

 

Seek medical advice Rob or you will just keep wondering and that will drive you as potty as the spiders on your scalp!

 

Best wishes

 

Macca

Link to comment
Share on other sites

Hi Rob a very warm welcome to BTG :)

 

I used to get very strange sensations too....I was clipped. It was only when I found this Forum that I found out others were creaking, squelching and feeling like spiders crawling etc. It's  the mending of your brain and the blood dispersing and also bone, muscle, nerves repairing. I found it very scary at first. As Macca has said, its always best to seek medical advice just to be on the safe side.

 

Glad you found us and wishing you well.

Link to comment
Share on other sites

Rob, I had an EVD placed and that 'squelching' sensation I recall. Lots going on there as they run the tube under the skin from the burr hole to its exit hole to avoid infection so it is probably still early healing days for you. The burr hole itself is pretty sensitive in the early days, I remember Super Mario, who is one of the members , telling me it lessens over time and she was right , so sharing that the funny feelings of creeping and tingling and pinching will pass but it is important that if you notice any change in sensation or increase in discomfort or pressure then always get it checked especially as you had a drain placed.

Personally I use the burr hole as an indication of how I am doing as it acts like a little like a baby's fontanelle, if it is more depressed than usual then I probably need to up my h2o liquid intake.

Link to comment
Share on other sites

Welcome Rob- glad that you found this site- just very sorry that need it! There is lots to learn about brain injuries. Read all you can so you better understand whats to possibly come. Its better to be prepared, hopefully you won't need the info- but if you do you'll have it.  Another good thing about being on this site - you can ask all kinds of questions. Pretty much someone here will know the answer, or have experienced it.

Glad to have you on board.

Take care,

Link to comment
Share on other sites

Welcome Rob - So sorry you had to hunt the site down but glad you found this one.  I had a coil and two clipped in june 2014.  Was home for a week or two when I got so scared about the feelings in my head.  I also got a shunt - forgot to mention that.  The best way I could ever describe the feelings was that a herd of ants had moved in under my skin near the shunt.

 

They had marches, pinched and bit me once in a while, tazed me (lol), etc.  I found this site and lots of people told me they had the same thing.  My doc describes it as nerves healing as well as the incisions themselves.  It's been 8 months now and I can safely say the ants have calmed to the point where they just dump buckets of water around the inside of my head.  All advice on rest and drinking water is very valid.  

 

Take care of yourself.  See doc if worried.  Keep in touch here.  Nice to meet you.

 

Carolynusa

Link to comment
Share on other sites

hi guys thanks for warm welcome.its been nice to talk to fellow sufferers.

and have some of my questions answered.every body says talk to your local gp.

so i ask my questions and he looks at me like I'm alien and says "what does your consultant say"

Link to comment
Share on other sites

Penny's right, my first trip to see the GP - he told me that he after 30yrs had to get his text books out the night before to swat up on what happened to me.  which I found impressive on the one hand and scary on the other that after being a GP 30yrs he had too..

 

If anyone's GP is lucky enough to do a stint in the neuro then that's really good...

 

For this GP that I had I was his first, same with the GP I'm with now..

Link to comment
Share on other sites

Rob welcome to btg. I asked at our surgery and there was no other anni sufferer there and mines a big surgery.

Since having my op I only know of one other sah sufferer and that s a lady at hubby work. My gp is as good as she can be and willing to listen but she doesn't really understand.

This and headway are the only places I've found where you're really understood.

Link to comment
Share on other sites

Rob,

That's why I said liaise with your doctors and nurses at the hospital -not your GP.  GP's are generalists, not specialists and you need the latter.  Been there, done that - got nowhere with the GP - no disrespect - just simply hadn't got the knowledge!

 

Good luck.

 

Macca

Link to comment
Share on other sites

Hey Rob,

 

Welcome to the site.  I experienced the same thing with my GP, he had little to offer when answering my questions.  Seek out a specialist for medical advice as our family doctors seem to have little experience in these areas.

 

Best of luck to you and wishing you a speedy recovery.

Link to comment
Share on other sites

Like all the others Rob I also had the creepy crawly, heeby jeebys, as I called them.

I remember my Mum always saying to me "Wash in warm salted water it kills germs" so I did so.

 

Slow but sure it went and I felt better.

 

You are doing well Rob but you need to sing also it helps. 

 

Good luck and be well if worried see Doc/Surgeon.  as like Carolyn I have shunt in and felt like water

was running down my face.  No stress !!

 

Regards

WinB143  xx

  • Like 2
Link to comment
Share on other sites

Hi Rob, Sorry I'm late in saying hello! My sah was caused by a Basilar tip aneurysm rupturing too - 6 years last November in fact.

 

I hope you continue to do ok - it will take time to recover, but with that time it will become easier and those creepy crawly feelings you describe, should disappear in due course.

 

Sarah

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

 Share

×
×
  • Create New...