Cassandra Posted January 27, 2019 Share Posted January 27, 2019 Hello, this is Cassandra's husband, Neil. Cassandra's journey of recovery went very pear shaped but she is back on the road to recovery now hopefully. It's been a year since her last brain operation - the sixth in a series between December 2016 and January 2018, all needed to either revise her VP shunt or do some surgery on or around her fourth ventricle. Regrettably, the last two operations left her with significant damage to the 4th, 6th and 7th cranial nerves which has resulted in a range of debilitating deficits. One of the worst is dysphagia, meaning she has a lot of trouble eating, chewing, swallowing, speaking etc. This has led to medical anorexia and the need for her to move to a tube-fed regime. She also has diplopia, which gives her permanent cross-eyed double vision, so its impossible for her to read, watch television, use a computer etc. Which is why I'm writing on her behalf. Anyway, it's been 3.5 years since her SAH, and I feel that her hydrocephalus is now being managed with a twin-catheter shunt which can be adjusted externally. Now she just needs to get back to 55+ kg after hitting 41kg, and have the strength and energy to pick up her various therapies and get back to some normality! Love to all of you dealing with your own challenges! Link to comment Share on other sites More sharing options...
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