Jump to content

subzero

Members
  • Posts

    7,875
  • Joined

  • Last visited

  • Days Won

    168

Everything posted by subzero

  1. Hello and thank you for your update on mum. It is encouraging to learn that you have found support and help from the BTG members. Please keep in touch with her progress in the weeks ahead. Hope you are keeping good too given these extra pressures in your life considering your work is located in Denmark. Subs
  2. Hi Iola and well done five years post SAH Thank you for that very personal and honest insight into your life with SAH. Your advice and support to others on BTG is always valued. Subs
  3. Hi Colleen ... and also a big well done. Great to hear you sound so positive 9 years on. Many thanks for keeping in touch with BTG... over the years. Our advice to everyone in the early days is to take things slowly .... well... now you certainly sound as if you are enjoying life in a much faster lane. Take care and wishing you well in the years ahead. Subs
  4. Hello Peter...and also a warm welcome to BTG....... how did you find us? While we do not give any medical advice...you will receive much support from reading the various Forum threads, and also as members share there comments. As Louise mentioned.. the NASAH Forum contains the experiences of many who have been faced with a bleed and the scans show no obvious bleed site. As you look back into the NASAH Forum you will quickly see that there is no timescale for recovery. The degree of the after effects of such a bleed can for some be minimal, while for others... fatigue, headaches, low morale and return to anything like normality can feel very much like a tough, tough challenge. During the first 12 months you will be finding out what issues are becoming less and less a challenge. Also, you will find those that are more demanding and leaving you feeling that the `old you` is no longer attainable, and that you have to become more accepting of the limitations caused by the bleed. We are here to give you help and support during your recovery... please don`t hesitate to ask about anything that you feel might help. Being retired does ease the pressure as many members have also had to contend with returning to work while still confused about how much effort their body and brain can sustain. Continue to keep well hydrated, and rest plenty. Trying to exercise is good, but never push too hard in these early months. Being patient with your recovery and watching for the signs of a reaction from your body and brain is very important. Please keep in touch and I wish you well in the months ahead. Subs
  5. Hi Tori... thank you for your update about your mother. Well done to all of you ...... everyone`s recovery is so different.... and five months on you are obviously so encouraged at the progress she has made. These early days are filled with so much pressure and worry when you are witnessing her at her lowest... and although 5 months is still early... we can sense the hope in your post. Keep in mind Shobs` helpful comments about attending the Eye Cinic if she has not already been there. Keep strong and please continue to keep in touch Subs
  6. Hello Shobana... so pleased for you both. The relief and happiness is flowing from your post...... a big milestone for you all. Subs
  7. Hello Ann and a very warm welcome to BTG. You are very early in your recovery process and it is good that you have found this site so soon. While we do not give medical advice, there is a wealth of information within the various forums which will help you understand how others have coped following SAH. Also our members will try and answer any questions you may have. Each recovery road is unique as SAH has so many degrees of severity and the after effects of the brain trauma such as fatigue, headaches, memory loss, reaction in a crowded area, a degree of personality change, irritability, inability to process too much noise; affect different people in different ways. It is so important to accept at the outset, that recovery is a lengthy process. The first six months is a time not to rush into trying to get back to normality. Your brain and body need time to heal and adjust... if you ignore any signs that you are pushing yourself too much... you will find your brain reacting to let you know it`s time to rest. You cannot rush to get back to work... and you will need much support and understanding from your close family members and your employer. So in these early months you are finding out how things are following SAH and dealing with the challenges as they arise. This site and it`s members will help you through this journey by relating from their own experiences. I wish you well as you begin that journey. Please continue to share your journey with us. For example what type of treatment did you receive while in hospital? Subs
  8. Great to hear your news about Sandeep. So glad his coiling has been successful.....and don`t worry about shedding these tears of relief. Waiting during such a delicate procedure is very tough on the emotions even with the knowledge that the success rate is very high. Take care both of you.... Subs
  9. Hello Clara Mac... if you look at the second post on this thread by Super Mario you will find a link that explains the GCS. Subs
  10. Hi Chris, and also a big well done 2 years post SAH. It has been great to have your input from across the waters and thanks for sharing the good times you have had with your lovely family. Three ladies to keep you right ! While you say that you have been fortunate given the good recovery you have made, you have done well to maintain your pressured job and cope with the issues from your bleed. Wishing you well for the future ................... Subs
  11. Hello Shobana and Sandeep Well done to you both one year post SAH. Your lives have taken such a turn since Sandeep`s SAH.... It`s great that you are taking time to show your appreciation to all who have helped you both along the recovery journey.. We are glad that members of BTG were able to play a part in providing support and encouragement when you needed it most. I also wish you well as Sandeep returns to hospital on Monday to prepare for his procedure. An anxious time but he will be in the good hands of very professional medics. Take care and thanks again for sharing. Subs
  12. Hello Taka... also a warm welcome to BTG. Glad you found the site... you will find much support as you read the accounts of others who have shared their experiences and challenges with recovery. As Winnie says... try and keep stress low in these very early months not easy with such a young family) and keep well hydrated. You have every reason to be concerned and anxious...... scared about another bleed is a concern that many have felt in the early recovery days. I can assure you that partners, husbands and other members of your family are equally going through these same fears. Take time and patience to allow your body and brain to adjust and heal. This site will a be a great support to them too. Any doubts and don`t hesitate to contact your consultant. Your scheduled scan will hopefully serve to reassure you. Take care and I wish you well as you get through thee early months. Please don`t hesitate to post with any concerns or questions. Subs
  13. Hello Maeve and also a warm welcome to BTG. So sorry to learn that your mum passed away following an SAH. Please don`t feel bad about asking these questions ..... it is only natural for you to be looking for answers if you and your sister are still struggling with coming to terms with your loss. You will find so much information on this site about the challenges faced by those who have survived SAH. Did you receive much help from the hospital consultants at the time? How and when an SAH happens can be so different for everyone, and following an SAH some can continue for days without a diagnosis or even attending a hospital, while others like your mum pass away quickly. One thing is certain, the fatality rate from SAH is very high. Most survivors recall experiencing a severe headache (often referred to as a `thunder clap` or being hit by a hammer) You mention stress, and while some have been involved in stressful exercise when it happened, many others have not. Also you can imagine that so many people are living stressful lives and never have an SAH. I do hope that you and your sister can move on knowing that your mum would have passed away peacefully. Please don't dwell on the `what if`s for too long. Wishing you both well as you find the answers you are looking for. Subs
  14. Hello and thanks for sharing your concerns about your progress post NASAH. Can I just reassure you that you are certainly not a `downer`. Confronting life post SAH is a major challenge for most. You have survived a life threatening bleed. I am sure members will share their experiences with you. From following the site for some time, you will no doubt be aware that each recovery experience is different depending on the severity of the bleed, and the age and personal circumstances of those involved. You say that you are unable to return to full time work. How many hours are you working, and how soon did you return to work? Did your employer help with a phased return? Trying to return to `normal` is a great challenge to everyone, and many of those who have been on the recovery journey for several years would stress that patience is so important. Your body and brain will react against any desire to push too hard to reach that `normal` Many of the complaints you mention are exacerbated by too much exertion. You mention your lovely family, and they will have been with you throughout your journey willing you to make progress while also affected by the difficulties you have been facing. Advice offered often on this site is to set yourself realistic goals and always be prepared to re-evaluate as your brain and body react to what you are doing. You will also find members who are involved in exercise to various degrees. Definitely not for everyone. I do hope you continue your positive attitude despite these set-backs. Subs I meant to ask.... is it almost 3 years since your NASAH? You mention 3 1/2 years in your `Header`
  15. Hello Maria...... six months since your fiancé`s bleed and we can feel the many tensions and anxieties you are feeling. This far on I can`t begin to fully understand how you are coping being so far removed from your fiancé. Trying to keep concentrating on your own employment must be so hard, and keeping your own life afloat each day must leave you exhausted, frustrated, tired and yes you have alluded to it.... feeling that because his progress is so slow.... will he ever recover to any degree. Perhaps you could explain the role his family are playing in his recovery. How many are involved, and what times are they able to spend with him. How positive are they about his treatment and recovery or lack of recovery to date. Many of our members have mentioned to you that even six months is still very early in his recovery. You clearly show from your own comments that you are not prepared to give up on your relationship built over two years. You deserve much respect for this. With so much of the man you loved affected by this devastating bleed, we can tell that you are trying so hard to resurrect the relationship you once had. The distance you are apart must be something you are constantly wishing was different. Did you ever contemplate asking your employer for extended leave of absence to enable you to spend continual quality time with your fiancé. No doubt you have, and this could well be just an impossible action to take given not only that you would be risking your employment, but you also will have your own commitments to cover each month. Maria, I do hope the time you are about to spend with him proves valuable for you both. He may not show it now, but we know that you are doing your best for him. As many have also mentioned earlier..... take care of yourself too. Eat well, sleep well and share your fears and anxieties with a close friend, and thanks for sharing them with us here on BTG. Subs
  16. Thanks Beth .... it makes such a difference when you know you are not alone in dealing with a condition that only those who experience it and their carers understand. Take care Subs
  17. Hello Beth, a warm welcome to BTG. You will receive much support from members and also from reading the comments on the various Forums within the site. As far as your immediate RCVS question is concerned, please use this link which you may find helpful. http://web.behindthegray.net/search/?type=all&q=RCVS Another way to find this information is by keying RCVS in the search box at the top right of the home page. Please continue to ask any questions which you feel might help you on your recovery journey. Subs
  18. Hello Amanda Also a warm welcome to BTG. It`s good to know that you are not alone in your recovery journey. As Macca says, here there is a wealth of information from real life journeys all with their own high and lows, twists and turns and yes.. medical `issues` too. Concentrate your energies on adjusting to life after SAH. You will find from reading the content of these forums that one of the greatest hindrances to recovery is pushing your body and brain too hard. I am sure you have come up against this many times. However, your positive attitude to your SAH has seen you exceed the medics` expectations. Well done and I wish you well as you cope with the difficulties posed by PTSD and severe anxiety. You will find much support within BTG both in the Forum content and the knowledge that you can share some of your anxieties with members who understand. Wishing you and your family good strength as you face these challenges together. Subs
  19. Hello Amy, and a warm welcome to BTG. You will find much helpful information here from members who have shared their post SAH experiences in the various forums. Sorry to hear that your husband is really struggling with tinnitus. It must be so debilitating to be unable to get any respite. Please key `tinnitus` in our search facility at the top right of the home page. There are already some useful comments available. Also please continue to give us your comments on your husband`s progress and our members will make every effort to answer any questions you have. Please feel free to share what happened to your husband back in December in our Introduce Yourself Forum on the Forums page. Take care Subs
  20. Also a well done two years on post SAH. Great that there is no change in your latest scan result. Hope you enjoyed that cuppa from hubby. Wishing you continuing progress in the months ahead and many thanks for your contributions on BTG. Subs
  21. Hello, many thanks for your update. So pleased that you are feeling positive following your meeting with your consultant. As ever with SAH recovery. Patience and time.......... Good news. Subs
  22. Hello Yoyo, many thanks for continuing to share your anxieties. It is clear from your comments that you are desperate for your relationship to work following your SAH. Our members are urging you to talk it over with your husband and maybe you are even afraid and already presupposing that the outcome of such a discussion may not be what you hope for. The content of your latest post is ideal for moving forward with your husband. It tells him exactly what your anxieties are. Is he aware of this site? There is so much within BTG that would help him too. As has already been said, SAH does have a major effect on relationships. It poses different obstacles depending on the severity of the SAH and it`s after effects; and also depending on the strength of the relationship that existed before SAH. For example, seeing a partner become disabled and no longer able to function as they used to, is so hard. It may take months or even longer before you can consider returning to work, and even then a new set of issues arise. Often full time work is no longer a reality. In addition, SAH may have changed your personality (often this can be temporary and certainly can improve with time). It is not easy to cope with a loved one who seems no longer able to control emotions such as irritability) A bleed can often damage the area of the brain that allows you to take that few extra seconds to evaluate a situation before you comment or react. Now you may say it as you see it without thinking that your actions or words may be hurtful. Your husband may well be confused and uncertain about what the future holds for your relationship Also, from what you say, it appears that you want the relationship to be more physical. Often, due to post SAH issues such as fatigue and low libido and just physical weakness, it is the partner who feels left out of a physical relationship. You have everything to gain by showing your husband that you care about what happens to you both ... you cannot give any guarantees about the extent of your recovery, but you want to do your best to build the future together. I do hope that you can both take that step to share your feelings and find a way to help each other deal with what SAH has done to your relationship. Subs
  23. Hello and a warm welcome to BTG This BTG link referred to by xmartz 3 hours ago may prove helpful with many of your issues raised in your post. http://web.behindthegray.net/index.php?/topic/2112-what-happens-to-us-by-marie-allen-psychotherapist/#comment-110929 Subs
  24. Hello Deb, well done for sharing with us one year on from your SAH. I sympathise with your struggles during the past year as you have tried to deal with recovering from your SAH and having to deal with the other issues in your life. You have had a tough time. It would be great and a benefit to others if you could summarise the highs and lows of the past 12 months. However if you want to leave this for a later time that is ok. Take care Deb, and always remember that BTG is always around to offer you support. `As they often say, `A burden shared is a burden halved`. Subs
  25. Good morning and a warm welcome to BTG. You are in good company. There is a wealth of members` experiences over 10 years within the various forums. As you search for cases that you feel are relevant to you I am sure you get much encouragement finding how members have dealt with the challenges of their SAH. We only offer support, we do not give medical advice. As you mention in your post, your life has been totally turned upside down by your bleed. No work for three years must have been so hard given the type of work you were involved in. How did you cope? Often, the tendency is to try and get back to normality too soon and your body and brain just don`t get the time they need to adjust and recover. This can lead to frustration and disappointment as you discover that it is all these items on your list become very relevant and prevent you getting to where you want to be. Patience and listening to your brain and body are so important. Do you have family and friends around you? Your list of issues affecting you are common to most but in varying degrees of seriousness. Thanks for taking the time to share your experience on this site. Wishing you well as you try live your life post SAH. Subs
×
×
  • Create New...